As before, I continue being not well, and indeed am pretty PEM'd -
exhausted - so for the moment this is just a fairly brief piece after two
days of nothing. ("I do as I can, not as I want.")
1. Neurasthenia, CFS, bloodbanks, Nederlog and the
2. The press and the Lo/Alter paper
3. The British forbid persons with ME to donate blood
4. Alison Awol the neurasthenic troll (aka: »Du gehst zu
Frauen? Vergiss die Peitsche nicht!«)
1. Neurasthenia, CFS, bloodbanks, Nederlog and the
I have written rather a lot this month and indeed the previous month
about the Lo/Alter paper, for various reasons, such as attempting
troll-fired hysteria of persons with ME in front of bloodbanks, and start
with some links, because I like to be intellectually right
This is from July 7, and soon led to my excusion from the ME-F
forums led by the totally anonymous CFS Since 1998 (brave man you
are, Master Since!) and the no longer anonymous Wildaisy, now
known (?) as Patricia Carter, former legalese eagle.
In fact, both "leaders" very much rather play hysterical havoc with
patients interests and science rather than listen to me or a few other
reasonable folks, and meanwhile also invited collaborator(s) of
Bleijenberg and Van der Meer to troll their forums and take down people's
chats, and who also very much protected and supported
Eric_Johnson_from_I&I (*), who turned out to be a
neurasthenic "Nietzschean", who compensates his
complexes by nazi-like prose and the statement that CFS is neurasthenia.
This manner of folks gets elaborately invited and protected by the
anonymous and cowardly Master Since (= CFS since 1998 on PR-F) and
the no longer anonymous malicious Patricia Carter, whereas people
like me get excluded and totally blocked from seeing
anything from "their" forum, clearly because there is a lot else to
see that stinks morally and intellectually on "their" forum, at least
if one has brains and a scientific education, and is not afraid or too
ill to use these gifts honestly and rationally.
Meanwhile, both Master Eric and Mistress Patricia have elaborately
rewritten their positions on that ME-F, on which there are
sufficiently many persons to mail me tidbits they feel unhappy about, so
that I was not overjoyed but intellectually pleased to find that they
have been lying themselves green in the face about what they originally
wrote, that I took exception to.
Thus, Master Eric now wants it to be known that he never
said CFS is neurasthenia and that he doesn't know what neurastenia is,
and also could be viewed on line the last days commenting on the
Psychology Today's masterspinner, the
medical doctor Mark Borigini who tells the world that I and 17 million
other persons with ME are "Jihadi Terrorists", while Master Eric also
was active on other places on the internet, where it indeed clearly
emerges that he either badly needs to see a psychiatrist or
else does his very best to suppport Borigini's claims about persons
with ME. But being a kindhearted man and a psychologist, I now do guess
the former, and strongly advice Master Eric to take his written
effusions of the last months to a decent psycho pro.
Incidentally, here is what Master Eric really said, starting off his
long mad diatribe on ME-F, much admired by Master Since, by
Mistress Patricia, and by Alison Awol the neurasthetnic
CCC-defined CFS equals neurasthenia, and I think some non-CCC CFS
cases are also the same disease. But I can't prove either, of course. I
am not 100% confident about neurasthenia, rather much less than 100%.
I think XMRV is an interesting potential cause of the illness of Nietzsche
- not necessarily of his psychotic paralysis, but the symptoms he had
I realize though that we have a public relations or 'communications'
problem there, and that one would not do well at all to emphasize
'neurotic' phenomena. That would be naive. On the other hand, my
view is that it is not expedient (or true) to deny the elevated
prevalences of neurotic phenomena in ME/CFS.|
Many people can sense neurotic phenomena keenly, they can see perfectly
clearly that these are commoner in CFSers, and I imagine that you won't
dissuade them even if you want to do so.
So I know all the hallmarks, such as guilty rumination about
long-past minor misdeeds, in depression. But I have no doubt really
that those things contribute to how we get viewed by so many
doctors, healthy people, and so on.
guys like the 'discoverer' of neurasthenia, Beard, would say frankly
"they're nuts, they wear themselves out with their endless anxiety,
they're so pessimistic, they're out on guilt trips about the oddest
little things, so naturally they ruin their physical vigor."
And I am pretty sure that those elevated prevalences of depression
and anxiety do exist among CFSers. Around 40 or 50% for depression.
By the way, Abe Lincoln was gay. Wife said he was emotionally
Some sources suggest that Proust himself had 'neurasthenia.'
Don't you think I was much more manic yesterday though? But I have
been much worse than that on occasion.
THAT is the sort of stuff CFS Since 1998 and Patricia
Carter want to see on ME-F. If someone protests, like I
did, who does have the psychological and philosophical degrees,
and the age, and the knowledge, and is 32 years ill with ME, including
diagnoses by medical specialists, they kick him off.
Mistress Patricia, meanwhile, has likewise extensively been redefining
her position, as never having said she wanted to upset the bloodbanks or
poison the blood. Here is the dear lady on July 4 on ME-F
My feverish brain has been hard at work, and it has come up with
an idea. Since the CDC says this illness we have does not
exist, and the XMRV retrovirus does not exist, and therefore no
warning is necessary for us not to give blood, how about we call
Suppose people with CFS coordinate a day to go give blood.
Suppose each person gets videotape of himself or herself giving
blood, and puts those videotapes, in a bunch, on Youtube.
The drawbacks are that most of us have low blood volume, and it
would be a real sacrifice for us to give up a pint of our
blood. The second drawback is, of course, that we do not want
our blood to cause another person to develop this horrendous
illness. It is our belief that our blood might be likely to
cause infection in a recipient.
For the first problem, I have no solution. Who among us can
spare a pint of blood?
For the second, another person has suggested this solution.
Suppose after we videotape ourselves giving blood, we then
present a packet of papers containing the WPI 10-9-2009 paper
and the CDC paper, explaining that we believe our blood contains
deadly material which may cause infection with ME/CFS. Would
they still use that blood? And further, we can videotape their
How do you feel about this suggestion?
Here is more from the very honest former lawyer who claims to be
constantly in living hell, though she can do FAR more than I can:
If we don't do something that gets the public's attention,
we'll be in for another 20 years of illness with no help from
our governments. If it takes scaring the public to get research
money, then I'm in favor of scaring the public.
I do think (..) if we want to get anyone's attention, we
need drama. Nicey-nice slogans are going to get us more of the
same, and I, for one, am sick to death of this.
If you want to read more, including my own stance and arguments, see
On infecting and storming blood banks of July 7
Unsere ME-Fuehrerinnen und ME-Fuehrers
of July 18, for which Mistress Patricia and Master CFS Since 1998 kicked
me from "their" forums, without giving any word of explanation also, like
true shits, since I don't want to consent to their bullshit and
their protecting Master Eric, as quoted above. ("Etiamsi
omnes, ego non!")
Meanwhile, if you, dear readers, keep reading Nederlog, you will very
probably learn a lot more about a really awful brazen, shameless, lying
troll I've meanwhile found - including real name, institute,
associations, university etc. - in the coming month! It will probably be
quite a splash also.
2. The press and the Lo/Alter paper
Interestingly, both the English and the Dutch papers had mostly
nothing about the Lo/Alter paper, quite unlike the rest of the world.
In fact, all that came to my attention, as published in a British or
Dutch paper were (i) the Daily Mail article, already reported in
More about the Lo/Alter paper
(ii) an article in the Dutch Reformatorisch Dagblad, that was not
bad but that is a small quite Christian daily, and at long last, after a
lot of dragging of the heels, it seems, and possibly to cover their asses
mention in the Guardian, on internet at least, and hardly other
than a repetition of Reuter.
What is the explanation for this strange fact?
Well... the same as why messrs. Wessely
and Van der Meer, in respectively
England and Holland, "couldn't find XMRV" or indeed anything
wrong in anyone with ME/CFS, apart from
dysfunctional belief systems, of course: The gentlemen didn't
want it to be found, and so arranged it that it wasn't; and the gentlemen
did not want to have the public - including many medical doctors - made
aware of the findings in the Lo/Alter paper,
and so presumably mailed and phoned their journalistic contacts like mad
to implore them not to publish anything about it.
Clearly, one cannot prove this conclusively without tapes of
the phone conversations with or mails from the gentlemen, but it seems a
very good guess this is what happened, where the reader should realize
that (1) Wessely and
Van der Meer are Professors of
Psychiatry And Medical Doctors, and certainly not below abusing whatever
authority or credit they may have - and besides: their fames and
fortunes, and who knows their healths are now at risk, rather than those
of 17 million ill people they have been lying about for two decades; (2)
Professors Wessely and
Van der Meerare not at all real
scientists, and therefore, unlike real scientists, have a LOT of time to
cultivate journalistic contacts, and practice "how to make friends and
influence people; and (3) investigative journalism, and indeed good and
independent journalism, are almost dead, not because of ME or lying and
scheming professors of psychiatry, but because the papers have far less
money, and journalists are not as well educated as they were, several
decades and more ago, what with the destruction of the real universities
in Europe and the US since The Sixties.
What does this strange fact show?
It's a bit difficult to say, and I am eagerly awaiting for an
editor of an English or Dutch paper with the guts to put urgent mails by
Wessely or Van der
Meer online, possibly after having contacted
dr. Alter -- who really is a
man with MUCH more status and fame then all Wesselytes and Van der
Meer-collaborators combined, gentlemen of the press: Look at
Harvey J. Alter - Wikipedia, the free
But it is not difficult to note that none of the usual crowd of
professorial liars about ME/CFS, not Wessely, not White, not Sharpe,
not Van der Meer, not Bleijenberg, talked publicly to the press
attempting to sow the tissue of lies they attempted to sow after the
Science study: That there is no XMRV; that nothing will be found;
that ME/CFS is not a neurological disease, as the World Health
Organization has been saying since 1969, and so on.
It shows, therefore, that they probably are badly rattled, and indeed
dr. Alter by himself is worth very much more to medical science
than they are combined (and indeed 5 times zero still is zero). Besides,
they probably are not so much rattled by the Lo/Alter-paper as such, but
by its implications: INDEED there now WILL be serious and honest
(!!) REAL scientific research into XMRV, MLV, ME/CFS and related
diseases, and the probability is that the psychiatric pseudoscientists
are going to find they will be refuted by hard science, as has happened
many times before, in science, against the same kind of opponents also -
with this difference that now there is internet and now there is a large
group of very angry patients with ME/CFS since decades, like me, who also
are - some of them - like me, well educated, scientific, and capable of
writing and talking.
More to follow on this place!
3. The British forbid persons with ME to donate
One quite interesting finding and result of the last two days is this,
that I quote from ME agenda's
site, where these and other materials are very carefully
collected - and I reproduce it with a tiny bit altered in the formatting,
and some added blue bolding in the text by me:
REPLY RECEIVED 27 AUGUST 2010
Dear Dr Shepherd
ME/CFS and Blood Donation
Thank you for your further letter to
Professor Dame Sally Davies, Chief Medical Officer (CMO) for the
Department of Health, about myalgic encephalomyelitis /chronic
fatigue syndrome (ME/CFS) and blood donation. I am responding on her
As of 1st
November 2010, blood donors who report that they have had ME/CFS will
be permanently excluded from giving blood in the UK. This
change is being made on the grounds of donor safety, as ME/CFS is a
relapsing condition. It brings practice for
ME/CFS into line with other relapsing conditions or neurological
conditions of unknown origin.
The change to donor selection
criteria is being made following a recommendation by the UK Blood
Services Standing Advisory Committee on the Care and Selection of
Donors, and Joint Professional Advisory Committee (JPAC).
Director of Health Protection
Department of Health
Wellington House, 133-155 Waterloo
Road, London SE1 8UG
The original letter of the ME Association is here:
brings practice for ME/CFS into line with other relapsing conditions or
neurological conditions of unknown origin" - in which "other
relapsing conditions" can be seen as a sop to Cerberus Simon,
but the real meat is "neurological conditions of
unknown origin", which indeed is what ME/CFS (also correctly
named in the above letter!) is at present, also according to the WHO.
Professor Dame Sally Davies is also to be
thanked for settling this within 12 days and for including the phrase "
In any case: This clearly is a direct consequence of the Lo/Alter
paper, that indeed was in part caused by the concern about
the safety of the blood in bloodbanks in the US,
and it is a good thing to happen, both in the interest of the English
population in general (you don't want to get a human retrovirus when you
need a bloodtransfusion) and for persons with ME, and for the last,
because it is, at long last, granted by some medical professionals
working for the English government that they indeed may have a
neurological condition, and be really ill.
The reason for that is, of course, that if you are merely suffering
from a dysfunctional belief system, there is no reason to
refuse your blood, e.g. to save Professor Simon Wessely if he were
to need a blood transfusion after an accident, and you happen to be
English, have ME/CFS, are a blood-donator and have the same bloodgroup as
Which leads me to my last remark, that I hope Professor Dame Sally
Davies will also consider, namely that there may be problems for
persons with ME/CFS and a rare bloodgroup,
either because they may be in need of a bloodtransfusion for some
reason, and there may be no or too few donators, or else because others,
e.g. without ME/CFS, may be in need of a bloodtransfusion with blood of
their rare type. (I merely raise the point because I have a logical mind
and because I know of one such case: A woman with a rare bloodgroup and
4. Alison Awol the neurasthenic troll (aka: »Du
gehst zu Frauen? Vergiss die Peitsche nicht!«)
I have written about the excrescence that calls itself Awol before,
Animal Forum - 3: Slaughterhouse 11, where I
also quite clearly described her SM-technique, for I am quite convinced,
being about as old as Awol's grandfather; being a real psychologist;
being far more intelligent and civilized and learned than this postmodern
bit of mediocrity apart from insanity; and having thrice run into her
stunning, crude, crazy, grossly impolite style of "argueing" myself.
Here is the Awol technique, precisely the same as that of professor
Michael Sharpe, by the way, as reported by Craig1947:
First you find out what will offend someone
Having found it you offend him or her deeply and
rudely, but deny you do.
The other(s) of your team move in to accuse the
offended one for feeling offended.
The original offender "apologizes", ambiguously, as if
it is the offenders fault.
The other members of the team accuse the offended of
not being polite.
And offend in one half of the sentence, and deny they
offend in the next.
the readers of Phoenix Rising meanwhile have had, within a few days,
something like 36 pages filled for a considerable part with Awol-like
SM-prose, firmly supported and in collaboration with something
that calls itself V99, that is known to me as an exceedingly
tiresome creature of apparent infinite energy and meddlesomeness, that
first struck me - months ago - by her habit of demanding scientific
explanations from other ill people, "because I am not a scientist"... and
with infinite energy to post endless illwritten illreasoned mails, and is
also unwilling to do some science or internet-searching herself, but not
at all to write ream upon ream of illwritten criticism of others' ideas
about science, and about the real meaning of the Lo/Alter study, as if
she is qualified.
But V99 clearly has an IQ not much higher than
115 (for which reason others consider her "intelligent": "And so it
goes" amongst the colorblind and partial colorblind), and possibly
means well. Meanwhile, she lectures everybody on PR-F on their lack of
understanding of XMRV and of the Lo/Alter's paper, so there is clearly a
considerable amount of neuroticism and simple lack of nous
involved, next to possibly genuine good will and obvious real stupidity.
It's otherwise with Awol, who claims to have ME/CFS since 1
1/2 years or so; who is an American living as a Swiss student of some
totally crazy postmodern pseudoscientific
subject called "The philosophy of architecture"; who joined the forums in
May; and who insisted copiously and endlessly that what ails her is
not what others with ME/CFS ails, but - and I quote -
"Severe Cognitive Impairments"
which indeed is one of the very few things she wrote I can
totally agree with her, and indeed to some extent sympathize with...
were it not that, for whatever reason, she believes that she,
hampered so sorely and seriously by "Severe Cognitive Impairments"
and by a total lack of scientific competence, insight or knowledge, is
the perfect person to order many others around on two forums for ill
people with ME - many much more intelligent, much better educated, much
older, much better writers, much more polite, much less neurotic or crazy
- and accuse them of not belonging on forums for people with ME,
tell them they are sexist, and tell them they can't read (and denying she
said anything she said half a sentence, a paragraph or a day later).
Of course, being Awol The Neurasthenic Troll
(and self-declared beauty, who of course took her picture
off as soon as she had enticed others to put their pictures online), in
the next half sentence she promptly denies what she said in the first
half, and in the sentence after that will insist that it is your
fault (whoever protests against this manner of impolite crashness, and
carefully composed anonymous offenses) that you protest her, and anyway
you can't read, and ought not to be on the forums, besides failing to
understand science, and not reading Awol properly.
Here is a typical Awol-bit:
Originally Posted by Recovery
And glad the attack dogs are back! Oh how I missed thee.
How about you guys just stay out of it since Cort and I are
actually having a good, civil discussion here ok? You've done
Here is another beastly Awol gem:
I am personally deeply offended by the attacks on Judy Mikovits's PR
skills on this site. To me, this stinks of sexism, though I am sure this
was not the intention. (**) This is because there are
thousands of examples of male scientific geniuses out there who have been
tolerated for poor social graces. However when it comes to women it is a
constant theme. If we can't attack the actual work, we attack the way
they present it. And as soon as there is the slightest hint there might
be a problem with the actual work we pounce gleefully.
To me, Awol sounds like verbal sadist and like a hardly sane woman, but I am sure
that this was not her intention. Here she is a 100 posts or so later on
the same subject, exemplifying her technique:
Absolutely noone called Cort a sexist. I said that a particular
behaviour pattern in a particular situation (attacking Mikovits PR skills
and using this to undermine her brilliant science), to me, was
reminiscent of sexism. Subsequently, a whole swarm of men chose to jump
on me for this comment. Wow.
Anyway.... kick this piece of disturbed sanity and gross inanity of any
ME-list for patients with ME or sent her to Wessely or Sharpe. As to the
quote in my title: It is a warning to Awol's husband to be, because while
the lady already 1 1/2 years is suffers such
"Severe Cognitive Impairments"
that she can't write a Ph.D., not even on such a typical pomo BS
subject - with Nazi-overtones also (***) - as "The
Philosophy of Architecture", and also claimed the last year she was not
capable of reading a serious book, since May she has written more than
750 posts, almost all of the above quality, it seems to me because she
has eaten to much from the mandrake root.
So let me welcome her, together with the by her much admired
Eric_Johnson_of_I&I, as two excellent examples of the
Wessely-White-Sharpe-thesis: Two persons who claim to have ME, who are as
mad as hatters, judged by their public prose and stances (about 2 in
about 17 million, to my knowledge).
I don't think I have seen anyone as capable of offending as many
people in as short a time as I have seen Awol doing, and I am 60, and
have lived a very controversial life, and I have met very offensive
My serious suspicion - as an elderly psychologist - is in fact that
Awol doesn't know how to finish her Ph.D. and is trying for an out, that
is, if she has not fallen in love with her very own perversion on a list
she is free to exercise it on genuinely ill people. In any case, she has
written since May enough text to fill three pomo Ph.D.'s, especially about
such mock and very pretentious empty bullshit subject as "The
philosophy of architecture".
And that pretends to speak for the likes of me!
P.S. Let me point out for those who do
not know that I have an MA in psychology, and a BA in philosophy, and
that I am far less dumb than Awol. The German in the title is excellent
advice for Awol-types by the much admired Nietzsche, quoted from "Also
sprach Zarathustra", and recommended from the bottom of my heart to
Awol's husband-soon-to-be, whom I indeed do hope will be Master Eric the
Neurotic Neurasthenic Nietzschean: They are very much two of a kind, and
clearly deserve the likes of each other. Live and prosper, but please not
Finally, my reason to write this out, tired as I am, is that I want to
insist, as a person with 32 years of ME, with a diagnosis by medical
specialists, with the best possible MA in psychology and an excellent
degree in philosophy, that an ME-forum like Phoenix Rising, and a forum
like ME-F, and persons like Awol, V99, CFS since 1998, Patricia Carter and Lansbergen do
NOT speak for this patient AT ALL, and indeed cannot and
should not be taken as speaking, writing or acting for any rational,
reasonable well-educated person with ME, especially not with Awols and
other trolls vomiting their verbal bitchshit daily over them on public
lists for persons with ME, and in the
face of anyone reading them.
P.P.S. It may be I have to stop Nederlog
for a while. The reason is that I am physically not well at all. I
don't know yet, but if there is no Nederlog, now you know the reason.