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Nederlog

 

June 26, 2010

 

ME + me :  Professor Malcolm Hooper tells it like it is

 

    "The mild and the long-suffering may suffer forever in this world. As long as the patient will suffer, the cruel will kick."
     -- Sidney Smith
      "The only thing necessary for the triumph of evil is for good men to do nothing."
    -- Edmund Burke
    "A person may cause evil to others not only by his actions but by his inaction, and in either case he is justly accountable to them for the injury."
    -- John Stuart Mill, On Liberty

I am still not well at all and also still sad, and it is very warm with days of "tropical temperatures" announced, and I do not handle that well, what with ME, but I have been viewing and listening to something else I was ignorant of until today:

An informal excellent lecture by professor by professor Malcolm Hooper - Emeritus Professor of Medicinal Chemistry in the University of Sunderland UK - who tells it like it is with and around ME, caught in 10 Youtube videos, published in 2007.

Enjoy and learn!

Mind though that collectively it is over an hour of spoken Irish English, which may be not so easy to follow if your English isn't really true, but then this by far the most rational and reasonable lecture on ME, its many problems, and the politicking and intrigueing around it that I know. Also, it does probably require an interest in both ME and in science, but provided you have these the following is very highly recommended: Professor Hooper Engaging with ME:

The reason to list them all - otherwise a bit of a useless exercise, I admit - is that I hope to add summaries of the contents of the 10 segments later. (This is no promise though.)


P.S.  As indicated in the title, I can effectively do very little on days with temperatures like this, also from earlier experience. So the PPS still applies:

P.P.S. It may be I have to stop Nederlog for a while. The reason is that I am physically not well at all, and it seems a heath-wave is coming, which is the type of weather I can't handle well. I don't know yet, but if there is no Nederlog, now you know the reason.


As to ME/CFS (that I prefer to call ME):

1. Anthony Komaroff

Ten discoveries about the biology of CFS (pdf)

2. Malcolm Hooper THE MENTAL HEALTH MOVEMENT:  
PERSECUTION OF PATIENTS?
3. Hillary Johnson

The Why

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf)
5. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

6. William Clifford The Ethics of Belief
7. Paul Lutus

Is Psychology a Science?

8. Malcolm Hooper Magical Medicine (pdf)
9. SleepyDust (patient) M.E. / Chronic Fatigue Syndrome (video)
10. Laurel (patient) Laurel's October 2009 CFS/CFSAC Testimony (video)

Short descriptions:

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:
   "it is wrong always, everywhere, and for anyone, to believe anything upon
     insufficient evidence
".
7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.
9. SleepyDust explains what life with ME/CFS is like for patients
10. Laurel explains what life with severe ME/CFS is like for patients

"Ah me! alas, pain, pain ever, forever!

No change, no pause, no hope! Yet I endure.
I ask the Earth, have not the mountains felt?
I ask yon Heaven, the all-beholding Sun,
Has it not seen? The Sea, in storm or calm,
Heaven's ever-changing Shadow, spread below,
Have its deaf waves not heard my agony?
Ah me! alas, pain, pain ever, forever!
"
     - (Shelley, "Prometheus Unbound") 

    "It was from this time that I developed my way of judging the Chinese by dividing them into two kinds: one humane and one not. "
     - (Jung Chang)


See also: ME -Documentation and ME - Resources


P.P.S. ME - Resources needs is a Work In Progress that hasn't progressed today.


Maarten Maartensz

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