(ME + me:) More on dangers of the internet
With more than 400 million users Facebook has grown into the main supplier of data to external commercial parties.
Do you think it's good total strangers know who your friends are? That your future employer knows that you are a member of a political party? Or fan of a death metal band?
There soon will be half a billion human beings who think this is good, no problem, don't care or who - in vast majoirty - have no idea what Facebook really involves, in terms of their privacy and datamining, for which see (ME:) On some of the dangers of internet in which I have briefly but fairly adequately described these.
And it seems to come down to the fact that at present Facebook has turned into a trawling site for dataminers and advertisers, openly and secretively helped by its owner:
"Everything can be social, said Mark Zuckerberg", who seems to feel and think postmodernistically about the meanings of words and the rights of persons. And no doubt, for a mind like Zuckerberg "Everything is relative", as the genius moderator on the Phoenix Forums had it to me, conveniently forgetting relativists tend to feel quite absolutistic about their own feelings, ends, rights and interests:
To the extent of allowing its founder become immensely rich by selling your private data, opinions, values and ideas to anonymous dataminers who can compile profiles of you that will allow salesmen of all kinds to secretively be informed about you the coming decades of your life. Or that will allow the next government - say: the Teabag loonies in the US or the Wilders idiots in Holland - to have you fit for rendition in no time, or at least thoroughly investigate your Political Correctness and Usefulness for The State, in our happy Brave New World were almost everying is virtual, from privacy to human rights, but the stupidity of the millions as big as ever.
But that was not quite my problem, though the US mentality is, to some extent, of which more below.
A few paragraphs lower:
Immediately followed by
Who is to determine what "is defamatory, obscene, abusive, libelous or slanderous, or otherwise violates any law" is left totally in the dark, for all I could find on the site (which is large and a bit ...disquieting to this European, in the way Oprah and Glenn Beck are, without suggesting that this comes to the same - well... if "Everything is relative" ..., but in that way which makes e.g. this European grimace in some amazement) is that the site is owned, operated and made and
After which all is clear, revealed, transparent and obviously evidently most reasonable and well intentioned.
From which it follows logically that my citing these words here and on this place probably is one or more of the things that "People Like You" will consider to fall under one or more of the categories "defamatory, obscene, abusive, libelous or slanderous, or otherwise violates any law", all at the behest of "People Like You", otherwise totally anonymous (so far as I could see).
and you'll find them by way of the link as you'll find the enlighening - again rather typically American - anonymous legalese attempt to draconize all here:
I suppose this is already illegal according to the lesser legalese light that crafted these legalese inanities, including this one as well:
From which it seems to me that your privacy and disease are going to be milked ad libitum (unrestrictedly, for the non-latinate), if the "People Like You" want to and you become part of their outfit with this sort of "legal" agreement to enter it.
And one should realize that
In brief... I felt not much invited, nor did I feel heartened, helped or supported by the "People Like You" who are busy - it would seem, they seem to think or say - helping me, albeit in their own way, and without asking my lawyer for his legalese opinion before doing so, when I could have told them to dismiss their legal eagle.
As it happens, the site is Professionally Crafted; looks well in a quite slick sort of way, and has a lot of material that is related to ME/CFS (or CFS or CFS/ME or CFIDS or...), though most of which seem to be videos of Talks By Specialists On ME/CFS (etc.) such as professor Nancy Klimas (although I couldn't say definitely she knows of this site, the owners being "People Like You" who, whatever their possible health may be, are not people like me, unfortunately. (*)
Or at least their legal eagle is not, and it is possible that part of what strikes me aversively is the typical American grandstanding typical Europeans - especially elderly aristocratic gentlemen like me - tend to look askance at and are rather amazed by, as if the whole world is reduced to Barnum and Bailey prose and attitudes, and everything is bigger, larger, more beautiful than life itself, even in the US.
As I said, the site is Designed By A Pro, most definitely, and for an American audience, that apparently is supposed to be eagerly waiting or fondly approving of being ogled by Professionally Photographed Significant Looking Females of the 70-80% beauty rating - that is: looking good enough to stand out, but not in the way of A Real Model or A Genuine Celeb - who are looking you in the eye on every page in A Reliable Manner reminiscent of Significant One-On-One Relationships, while sometimes showing cleavage anonymously.
And it may be that the anonymous "People Like You" (not like me - they'll probably will be proud to affirm - but then I stand out in a crowd anyway, through no fault or desire of my own also) do mean well and indeed do well, and that this is the way to bring information to average American women afflicted with ME, and is that what American women afflicted with ME most want is videos of lecturerers and counsellors - such as by professor Nancy Klimas, of whom one can partake of 13 minutes 27 seconds on "Sleep/Blood Pressure/Cognition Dysfunction" thus
View up to 3 times for only $7.95
Indeed, one can partake for slightly less than 42 dollars of some 75 minutes of professor Klimas lecturing on various ME/CFS-related topics, albeit it for
up to 3 times for only
a varying amount of dollars per lecture. And Professor Klimas also is on offer for FREE (writes the site, that I quote illegally, if I have understood their legal eagle) and with one lecture (but for that too - it seems - one must first surrender one's privacy to "People Like You").
In case this worries you a little or in case you are poor or indeed needed an ad dressed up as advice (or advice looking suspicuously much like an ad):
Well... maybe you are a bit amazed at this site, like I am, or perhaps you are younger and American and on Facebook and you just know this is the way to go (or so you believe confidently).
For me, it smells too much like Facebook, as does their portal, where like Facebook you may only enter after signing in (possibly by signing away all your right - I don't know, but legalese prose as cited makes me rather suspicuous, and is such as to cause me NOT to sign in at all, unless this legalese inanity is removed, or at least I know who the "People Like You" really are, including some reasons why a person like me should trust persons who tell me falsely they are "People Like You": NOT this reader, I tell ye verily, forsooth!
And what is true that this is a first for me, (or possibly a second, after the NICE Guidelines), and that I find it hard to judge, but not inviting.
But maybe it's just my being European, smart, civilized or computersavvy that makes the difference. Anyway, I can't tell because I will not enter any site with legalese prose like I have quoted, all made up by anonymous persons who tell me upfront the whopping falsehood that they are
People Like You
No way, for then it would have looked differently with different prose - and that is without me rejecting them either, for they may mean well and may be able to do good, for some, very probably less scientifically knowledgeable persons than I am, albeit that it all looks very much like typical American grandstanding that is rather silly also if it is quite well intended, as may be the case.
P.S. But the legalese must go - that is just awful.
As to ME/CFS (that I prefer to call ME):
1. Ten reasons why ME/CFS is a real disease by a professor
of medicine of Harvard.
Supplements on ME
P.P.S. ME - Resources needs is a Work In Progress that hasn't progressed today.
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