ME + me: More resources & more me
Click globe for opening
The above globe links to the opening announcement of the conference and here is a link to the
A New Era in ME/CFS Research
from which you can learn that professors and doctors Peterson, Klimas, Jason, Chia, Cheney, Kerr and Mikovits will all be there, chaired by professor Hooper. The above link gives a good overview and pictures of all the persons mentioned. I wish I could be there but lack both the money and the health.
I promised a new link and here it is:
This contains a long list of links to files written by professor Hooper and his associates, such as Margaret Williams that runs from 1998 (at the bottom) to 2010 (at the top). I think I have read most of the more scientific and longer ones at some point the last half year or so, and I generally have skipped or at best skimmed what involved quarrels (which I anyway find very hard to judge, having never met any of those involved face to face; knowing effectively little of them; and not being familiar with British law and British circumstances).
The article with the Further Articles is on the MEAction UK site, about which I have read varying opinions, as I have about other ME-sites, since there is a considerable amount of various disagreements between the various groups and organisations concerned with ME, the spokesmen and associates of which try (or say they try) to do something for patients with ME, while sometimes there are also considerable quarrels between these groups or members of them.
My recent experiences on the Phoenix Forums, where it seems more and more as if a kind of human Gresham's law for people is at work: the bad and the stupid getting rid of the good and intelligent that is also usually very easy, since the former group is rather a lot larger, in almost any human group. (*) Indeed, I have seen this happen many times, and it is the common process in most things political and most things having to do with religion and economics too, so it is not amazing it should happen among patients with ME.
Happily - speaking for myself - and unlike the fast majority of patients with ME, I have a large site that is well-read for reasons having nothing to do with ME, though a lot with me and philosophy, especially, and happily for the past 32 years with ME I have been able to take care of myself mostly without any help whatsoever and have not been afflicted with such severe ME as to have to stay in bed all day and not able to get shoppings, for if that had happened I would have died, given my unique situation in Amsterdam.
Hence, still speaking for myself, it seems better I keep my human integrity and dignity, and do for myself what I am good at, much rather than let myself be abused on public forums by anonymous griefers, lamers, trolls and human, intellectual and moral impostures of various kinds.
Also, and specifically about the Phoenix Forums, I do not want to be more than minimally involved in a group with such bad leadership and such definite biases and personal animosities that I do not understand, having also little knowledge of the US interests and patients groups around ME, and even less knowledge of what it is like to live there, with ME especially (since I have lived briefly and almost 40 years ago in England - or rather: in an England that has disappeared mostly).
P.S. I did today add notes to
ME - Resources,
and I also checked the links, which should now
At present, the last edit of ME - Resources is of today, and the version is settled on 0.99. When version 1.0 arrives, there will be a zip-file, which may be tomorrow.
A final note on my comments in
ME - Resources: They are personal, they are sarcastic, they are
Those who object to my - sometimes intensely - personal
tone, sarcasm, satire or what not as 'inappropriate', 'incorrect' or what
not should realize that my personal estimate of those who say so is that
they personally lack the self-respect, the talent and the knowledge to
write like me, and I simply have no truck with them, whether they have ME
or not, and that anyway I am not one dishonest
As to ME/CFS (that I prefer to call ME):
1. Ten reasons why ME/CFS is a real disease by a professor
of medicine of Harvard.
Supplements on ME
P.P.S. As you will probably have seen, the ME - Resources needs more notes to the files than are there, and I also plan to include considerably more resources. If my readers have patience and I get a little health, it may RSN too...
O, and if by chance a link or two don't work (I don't know): Again be patient (or mail me) and it will be sorted out, for ME - Resources is a Work In Progress.
And it keeps being trouble some to make tables behave as they should in Firefox using my Frontpage for editing...to be improved later, hopefully, like so much in life.
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