"The mild and the
long-suffering may suffer forever in this world.
As long as the patient will suffer,
the cruel will kick."
-- Sidney Smith
"The only thing necessary for the triumph of evil is for good
men to do nothing."
| "A person may
cause evil to others not only by his actions but by his
inaction, and in either case he is justly accountable to them
for the injury."
John Stuart Mill,
The piece I wrote yesterday was a bit much for
me, so today I am quite tired. Here are two more items related to ME.
1. Another good article about ME
1. Another good article about ME
The Times published another good article
about ME. The link is here:
This is about Sophia Tirza's suffering, that her mother, who is both a brave
and an intelligent woman has documented here, alas so far with little
media-response, although the site is well done and the evidence very well
and fully presented:
The reason Mrs. Wilson does get media-attention now is probably the
Kay Gilderdale case, that I briefly wrote about in
Two other good English articles about
This is a pretty awful story about medical incompetence, medical malpractice
and medical cruelty, just as in the case of Sophia Tirza and her mother,
and it will show any reader with some brains and some heart why I write as I
write about what I have chosen to call medical
sadism(*), which is the best and most precise
term I can think of for my subject.
And in this context, here is first a quote I gave before, that was written
in reaction to this article about the mother of Lynn Gilderdale:
Here is the quote, so that you can savour the meaning of the phrase "MEdical
The whole story [of Kay and Lynn Gilderdale - MM] screams Munchausen's by proxy or a similar
delusional state between mother and daughter. Most medical
professionals will have seen enough to realise and pick up the clues
running right through the article above.
ME is not a disease, it is a state of mind. Like the 98% of people who
have been proven NOT to have a food allergy or sensitivity at all.
Cue the outraged nutters defending the undiagnosable and therefore
- Ex NHS Surgeon, Middlesex UK, 28/1/2010 09:27
I wrote about this on January 28, but today I
can quote from
The Times that is in the first link above:
The fierce debate over ME has been highlighted once again by the case of Kay
Gilderdale, who admitted assisting her daughter, Lynn, to kill herself after
suffering from ME for 17 years. When she walked free from Lewes Crown Court
on Monday, having been cleared of murder, Mrs Wilson was among those
cheering her from the public gallery.
“I had to be there,” said Mrs Wilson yesterday. “It was such an
important case. And the verdict was a vote for common sense in a
trial that highlighted what people suffering ME and their carers
have to face.”
Her daughter, Sophia Mirza, was a talented and popular arts
graduate living with her mother in Brighton in 1999 when she
contracted ME at the age of 25. She became confined to her bedroom
and, just as Miss Gilderdale had, needed round-the-clock care.
In 2003 she was visited by a psychiatrist, even though Miss Mirza
complained only of physical discomfort. The psychiatrist told her
that she was making up her symptoms and if she continued to pretend
to be ill he would section her under the Mental Health Act. Mrs
Wilson said: “I knew my daughter. There was no way she was mentally
ill or pretending.”
For more see also
Sophia and me, which is a well made site. One difference with Lynn
Gilderdale's case - so far, and see below - that sheds a bright and
painful light on the text I reviewed yesterday is this:
At the inquest the next year a neuropathologist told the court that Miss
Mirza’s spinal cord was inflamed and three quarters of her sensory cells had
abnormalities. It was, the court heard, a clear physical manifestation of
ME. The coroner ruled that she had died from “acute renal failures as a
result of chronic fatigue syndrome”.
For sure there are signs ME is a real disease, and indeed a killer disease
in some cases!
It so happens that Lynn Gilderdale has given her body to science, and the
results on her spine are pending for the moment.
There is (much) more that is wrong around ME, and also some that is strange,
in a political way.
Here is an article by the designer of Phoenix Forums, Cort Johnson. It is
about evident financial corruption at the US Center for Disease Control,
that managed to spend $ 2 million dollars of very scarce research
money for ME "to develop a protocol and a ‘statement of work’":
This has a very strong smell of financial corruption, and indeed the person
most responsible, it would seem, Dr. William Reeves, has been demoted
Finally, a brief remark about what is politically strange about ME:
The CDC is an American governnent organization, clearly incompetent and
probably corrupt as regards ME. Hilary Johnson's book "The Osler" and
her website Osler's
Web provide a lot more information about this.
In England, there are and have been also governnent organizations concerned
with ME, where there also have happened various strange things, both as
regards the decisions reached and the arguments on which they were based -
and the really strange thing is that the documents in the case have been
declared a state secret until the year... 2071, when the vast
majority of those who are living now will be dead.
Those who want to know more should consider the
on which there are a number of Englishmen (and Scots and Irish) patients
with links, comments and guesses.
One can make a lot of this, which I shall not do because I am not British
and there is really very little firm relevant knowledge. But one may well
wonder what manner of secrets relating to a disease (or - as the psychiatric
advisors of the English government insist - a delusion due to "dysfunctional
beliefs") are so awful that they must be kept a stare secret for 61
years? When those who are now 10 years old will be 71? (**)
P.S. I had hoped today also to write a little
in Dutch about other subjects than ME, but will have to forego this.
(*) Here are some references to
what I wrote concerning MEdical sadism (mostly in Dutch) - and the
reader should keep in mind that I do have an M.Sc. in psychology and
a B.A. in philosophy, and have ME now, according to medical
specialists, since January 1, 1979:
(**) I shall not indulge in speculation, but
it seems a fair assumption that matters that must remain secret for
such a long time must be either very important or else very damning
to someone who at present is very well-placed.