M.E.  - medical info

Recent - 2003-2005 - medical information about ME/CFS

September 10, 2016: What follows is from 2005. It will have to be updated, but this will happen later.

I am in the 27th year of having ME/CFS and I am a firm believer in science, rational thinking, mathematics and logic, and indeed spent a lot of time on these subjects. Also, I have an M.A. in psychology.

Unfortunately for me and everyone else who really has M.E. much of the medical, psychiatric and psychological reasoning and publications about ME/CFS these 25 years has been not very scientific nor very rational.

Fortunately for me and everyone else who really has M.E. there are good medical doctors, and now and then there are scientific publications about M.E. which are sensible.


Here is a recent - 2003 - publication with a few comments

A. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome:
    Clinical Working Case Definition, Diagnostic and Treatment Protocols

This is a pdf file of 222 Kb (so you need Adobe Acrobat to read it, which you can get for free on many places on the net if you don't have it). Also, it is partial: This was sent to me from England, with the notification that it is a publication from the Journal of Chronic Fatigue Syndrome, vol 11(1), 2003, and that those who want more than the 30 pages of the publication in this pdf-file have to pay money to the Haworth Press.

O well - my income in Holland is ... 400 Euro 13 cents a month, and I don't see how I could afford to pay this. But no doubt there are many medically qualified persons who have earned a lot of money doing or pretending to do something about M.E. who earn my total monthly income in one or two hours, and I suppose they can pay and subtract it from their taxes.

Apart from this and the fact this free handout stops at page 30 when the treatment protocol starts it is a good medical report.

What this report does not offer is a scientific explanation for ME/CFS: It describes the symptoms of M.E. and it counsels medical people how to treat patients with ME/CFS in a sensible humane and scientific manner.


The next item does offer a scientific explanation for ME/CFS:

B. Novel Chronic Fatigue Syndrome (CFS) Theory Finally Produces Detailed  Explanations for Many CFS Observations

This is indeed a new theory on ME/CFS by dr. Martin Pall, who is Professor of Biochemistry and Basic Medical Sciences at Washington State University.

This comes from ImmuneSupport.com, which is a privately owned American firm that sells orthomolecular medicine. It caters especially to people with ME/CFS and has useful regular information for patients with ME/CFS.

I do not know whether the theory is true and since it is very new it will need testing, discussion and experimenting, but it is good sensible science of the type I like, since I have been convinced for 20 years that the best hope for patients with ME is a good biochemical theory that accounts for the symptoms.


The third and last item is a link to the site of the CFSCentrumAmsterdam, namely to a file about their approach to trying to help patients with ME/CFS, which is a substance called l-carnitine:

C. Some information about carnitine

In August 2005 I was accepted as a patient at the CFSCentrumAmsterdam, and I have been taking carnitine ever since - i.e. some 3 months. It may help some, and it has not had any bad effects, both as far as I can see, and for the time being.

The reason to report it is that this is about the only presently credible medical therapy for ME/CFS. It also is experimental, and there are no guarantees of anything.

 

last update: Nov 7 2005