Hi Hope123,

Quote Originally Posted by Hope123 View Post
1. This is an older 2009 Norwegian article on ME/CFS and GET that surveyed 800+ people and found that 79% had problems with GET. Tomk and I are trying to get a translation of the article from someone who can translate it from Norwegian to English. If not the full article at least the tables. (A last resort would be online translators.)

http://www.tidsskriftet.no/index.php?seks_id=1845496

Tidsskr Nor Laegeforen. 2009 Jun 11;129(12):1214-6.
[Patients' experience with treatment of chronic fatigue syndrome]

[Article in Norwegian]

Bjørkum T, Wang CE, Waterloo K.

BACKGROUND: Chronic fatigue syndrome is a highly debated condition. Little is known about causes and treatment. Patients" experience is important in this context. MATERIAL AND METHODS:828 persons with chronic fatigue syndrome (ICD-10 code: G93.3) were included in the study. They were recruited through two Norwegian patient organizations (ME-association and MENiN). The participants filled in a questionnaire on their experience with various approaches to alleviate their condition. RESULTS: Pacing was evaluated as useful by 96% of the participants, rest by 97%, and 96% of the participants considered complete shielding and quietness to be useful. 57% of the participants who had received help to identify and challenge negative thought patterns regarded this useful. 79% of the participants with experience from graded training regarded this to worsen their health status. Overall, the results were similar, irrelevant of the severity of the condition. INTERPRETATION:Most participants in this study evaluated pacing, rest and complete shielding and quietness to be useful. The experience of the participants indicate that cognitive behaviour therapy can be useful for some patients, but that graded training may cause deterioration of the condition in many patients. The results must, however, be interpreted with care, as the participants are not a representative sample, and we do not know the specific content of the approaches.

PMID: 19521443 [PubMed - indexed for MEDLINE]

2. I would like to get my hands on the full-text of this article if anyone has it.

Postinfectious and chronic fatigue syndromes: clinical experience from a tertiary-referral centre in Norway.

Naess H, Sundal E, Myhr KM, Nyland HI.

In Vivo. 2010 Mar-Apr;24(2):185-8.PMID: 20363992

As it happens, I speak and read Norwegian, having lived there for nearly 3 years.

Perhaps a better start than I am in this respect though is this:

The Norwegian ME association
http://www.me-forening.no/

They are sure to know English and where to find it if it is publicly available.

Best wishes,

Maarten.

ETA: Meanwhile - hi TomK I also got a nice statistical reference for you... (will come by EM) - I've taken a look and I can translate it, though I make no promisses as to how quickly I'll be able to do it, and I have to find my Norwegian Dictionary (to be sure: it is not difficult for me).

As to "Norwegan": Actually, there are two articles in two Norwegians viz. Riksmaal and Nynorsk. You probably didn't know the Norwegians have (at least) two Norwegian languages didn't you? Well, they do, but that too is no serious problem.

Only I am fairly PEM'd.