Category in Treatment & Therapy section proposed
Re-posted from Nuts & Bolts (in this thread point B. below
Quote Originally Posted by Koan View Post
I want Samuel back! I worry that others may be missing.
Yes, I send him a personal mail last Monday and he didn't reply and I
haven't seen him on the forum, with which he has difficulties because
of his eyesight. So I worry a bit, since he could have mailed me by
standard mail i.e. without the forum, but he didn't.
Indeed, I have two general ideas for this forum, of which the first, at
least, probably appeals to you, Koan:
A. Tracing/Tracking forum members
Many live alone with little help and little money; on the forum most
are anonymous and if they are without computer they are out of reach;
and most on this forum are really ill.
So... I propose a Tracing/Tracking section, the purpose of which is
mainly that people on the forum can keep track of each other, if they
like. Of course, this should depend on private mail-addresses (or more)
people on the forum privately exchange because they like each other and
trust each other (Samuel has mine, and I have one for Samuel at a
It should not be mandatory and not be public, and it is best if it
could be arranged by area/county/country. Also, it really should be
based on private initiative and private mail in order to protect
Whether it will make a positive difference for some forummember in
trouble I don't know (it worked for Koan), but it seems to me to be a
good thing to organize, also because I guess that on the moment most
members are only known by alias to each other by means of the forum.
(So if either the alias disappears or the forum disappears everybody is
on his or her own again, apart from such contacts as have been made
privately via the forum.)
B. Psychotherapy etc.
Esther12 on another thread wrote about inviting psychologists and
medical doctors who are of the Wessely school or believe ME is in the
mind to step forward on the forum; Orla started a nice thread on
Psychiatry some time ago, and yesterday, I think, an interesting thread
on utter lunacy from Liverpool shrinks; there is - what this
psychologist strikes as - a mongrel grown from Scientology, Orwell and
Maoistic brainwashing that is called the Lightning Process, etc. ad
Well... being a (sort of, mathematical in my case) psychologist (of
sorts, but with the best possible M.Sc. in it) I thought: The members
on this forum surely can roll their own!
There are some legitimate sides to psychotherapy (I am not selling it,
rest assured!), that by my lights are mostly enlightened common sense,
rational self-help, and the avoidance of wishful thinking, anxiety and
supersition (including superstition about what psychotherapy can really
do for you - which is not much if you are really ill) and a good list
of references to helpful links and bookd; there are illegitimate and
dangerous sides to it that deserve to be listed too (see the thread on
the Lightning Process esp. ME Agenda's excellent posts); and in fact
there is a lot on these forums, by many members, that simply is very
good psychological thinking, counselling, advice etc. usually also
based on the contributors own experiences with ME and how this is often
reacted to by those who don't have it.
Finally, it is also useful to outline how one can defend oneself
against psychotherapeutic manipulation and trickery, which incidentally
mostly is based on ignorance of the patient about what psychologists
and psychiatrists really know and can do (which is preciously little,
usually, this psychologist can assure you).
Maybe A and B can be combined e.g. - are you there, o my beloved High
Priestess Kim? - into one new Category in the Treatment and Therapy
section, called The Phoenix Process of Psychotherapy of the Church of
False Illness Beliefs (tm). (I haven't asked Kim, but she and Dr. Yes
are clear candidates for moderating/organizing this Open Source
Bio-medic Psychotherapy a la mode of the Church of FIBs. If they want
to and can, of course.)
As base-text for the Honest, Empirical, Factbased, Open Source, Free
Phoenix Process of Psychotherapy of the Church of False Illness Beliefs
(tm) I propose dr. Eleanor Stein's "Clinical Guidelines for
Psychiatrists", and - for the more persevering, the material that I
I am sketching, and both ideas need some working out and mulling over,
and some organization, but both seem to me to be what this forum is
about, and which is - easily - within its capacities: There are more
than 1500 members, and many regular posters are smarter than the vast
majority of my professors of psychology. And also they have survived
years of discrimination and trouble, about which they know much more
than a normal psychologists can know, and which gives them a special
insight into what life is like.
I hand it over to you Koan, for some working over, for I am super-pem'd
at the moment.
P.S. I will post this too in the thread Esther12 started. And nothing I
wrote is meant dogmatically - it just seems to me two good things to
try to do ourselves: Keep track of our members and provide our own
brand of psychotherapy and teachings (if necessary in various flavours
also, if blessed with a Nihil Obstat and Imprimatur of our Pastor, our
High Priestess, and/or resident philosopher, and after discussion on
Please keep in mind also that the intellectual power and knowledge
inherent in the forum as it is now is certainly better and more than is
present in the handful of Wesselys, Reeves & Jones's, Whites or
whatever their names are, who are all intellectual n-th raters and
moral zeroes (or large negatives). What makes them powerful is not
their intellect or humanity, but merely the power and influence of
their positions that were gained by dishonest careerism.
The reposting ate the bolds and italics in the original in the Nuts
& Bolts section. Too PEM'd to put them in. See the original if you
want the original text's full glory.