ME - Problems
There are many
medical problems with ME, but the main one - supposing you survive
and do not commit suicide - is that you do not get any help whatsoever,
because there is no bio-chemical marker for the disease, and doctors
are prone to insist that "therefore" you are not ill, are malingering,
are lying, or suffer from "psychosomatic" complaints.
And the bureaucrats you'll
meet most probably will insist that you are not ill and must be
malingering, since not helping saves "the community" in health benefits
or dole money, and all that is at stake for them is merely your
life, which they don't lead, and your pain, which they don't
Indeed, in the country where I live - Holland
- any junk gets lots of help, varying from extra money for new teeth to
free methadon and heroin, all "to help them integrate into Dutch
society", and I get no help whatsoever, because junks have a problem
that has a bio-chemical marker (the drugs they shoot and sniff), and I
Does this sound somewhat bitter? It is
somewhat bitter, and I have ME/CFS for 37 years now, since January 1,
1979, and according to - stupid, non-medical, non-psychological - Dutch bureaucrats I am now 37 years a malingerer.
was only helped by my G.P., and was lucky enough to have had really
good G.P.s from 1986 till 1999, without whom I very probably would
not have survived.
For a little more see ME - Experience.
last update: Sep 10 2016