3. Five links to crisis items I selected, without
4. Three fine items by George Carlin
This is a Nederlog of Sunday, February 26, 2017. 
Summary: This is the fourth
file in the new series About ME/CFS. It continues yesterday's Some
updates about Oystein Fluge and Ron Davis which you are strongly adviced to read
because it gives my main reasons to insist that my ex and myself (the only two persons I know with ME/CFS) are
really ill since over 38 years.
In these 38 years I at least (my ex and I split up in 1984) was
never helped and very intentionally hurt very much
by both the University of Amsterdam and the City of
Amsterdam (that owns most of the University) that never
accepted my real illness and had me threatened five times with murder
between 1988 and 1992 by the illegal drugsdealers the City protected
even after they had been arrested with 2 kiloos of heroin and 1 kilo of
cocaine in 1991.
Before that, from 1981 till 1984, my ex and I
were tortured with three years of insufficient sleep in a studentflat
by an insane madman who threatened to murder me; who attacked me
physically; and whose alcoholic non-studying friend had parties till
deep in the night directly above us four times in the week. Nobody did anything against the madman, and the Amsterdam City police told me and the madman literally (in Dutch):
"We will come only if the dead bodies are lying on the floors, for all Amsterdammers are shitheads."
(These policemen were not from Amsterdam.) This destroyed my studies and my health and broke up the relation with my ex.
These three + four years of total discrimination taught me that the illegal
dealings in illegal drugs have been organized by Amsterdam mayors,
lawyers and fascist terrorists because they made an enormous amount of
money that way - which I think without valid proof, but which I do maintain on the basis of 4 years of completely allowed terrorism against me by illegal drugsdealers I dared to protest against.
The University of Amsterdam of illegally removed me from doing the M.A. in
philosophy because I was not a Marxist (!!!) and because I had criticized
the education I got, which it turned out I was not allowed to.
Again, both the City and the University were from 1948 till
2013 in the hands of the Social Democrats (the PvdA in Dutch) that
very much rather organized 20 billions of euros of turnover each year in illegal
drugs since 1988; and much rather denied me the right of taking an M.A.
than provide good education between 1971 and 1995 (and also not since,
but by then I had escaped with an excellent M.A. in psychology).
In this Nederlog I briefly reflect on the fact that I seem to be one of
the first who has concluded that the biochemical facts - that chart major
differences in quite a few amino acids that play an important role
in the metabolic pathways that produce energy.
As to the updating
The Danish site is OK again; the Dutch site is - still - stuck
for me on February
22. Where it stuck for others I have no idea: It may be December
2015. (They do want immediate payment if you are a
week behind. They have been destroying my site now for over
On being early
I realized that I am quite
early in my diagnosing that Oystein
Fluge - who has been working in ME/CFS since 2004, and who is a
doctor of medicine, like most of his sixteen collaborators - is correct
in saying that his group found many biochemical differences
between 200 patients with ME/CFS and 102 healthy controls.
I do think this proves that I am really ill, simply because I
am ill for more than 38 years now, and have received three
diagnoses by medical people (the first in 1989) that I do have
ME/FM (and besides, I also satisfy the Canada Criterions).
In fact, I think I am in several ways earlier than I was in
2009/2010 when the news about XMRV reached me in October of 2009,
but I only got to be a member of Phoenix Rising in January
2010, that was then stopped for about a month because of computer
problems, and started again in late February, until May of 2010,
because I then removed myself and everything I had written
for Phoenix Rising, because there were far too many totally
anonymous trolls there, and far too many average people who very
much disliked people who are more intellligent than they are, and who
persecuted quite a few of them for being more intelligent than they
This is a bit of a problem, but not a serious one: I just need
to have some patience.
Incidentally, I did find another thread on Phoenix
Rising, that started in December of last year:
item of this thread is quite good and recommended. Here is a picture
and an excerpt:
That was the picture. Here is an excerpt:
More than 200 patients have been
included in our studies after thorough medical assessment according to
internationally accepted («Canadian») criteria. These patients are
subject to systematical and standardized follow-up in the studies, and
regularly donate blood samples to a research biobank. Based on the
material collected in the biobank, the research group has conducted a
comprehensive and detailed mapping of the metabolism in 200 patients
and 100 healthy controls. The project was supervised by the authors
(Karl Johan Tronstad, Řystein Fluge and Olav Mella), and conducted in
collaboration with Bevital AS and Per M. Ueland.
As a result of these metabolic analyses,
we detected specific biochemical changes in the blood of ME/CFS
patients. These findings have now been published in the Journal of Clinical Investigation
The analyses of blood samples from the
ME/CFS patients showed that the levels of certain amino acids were
reduced compared to healthy control subjects. The pattern of amino acid
changes gave us important information about the symptom mechanisms, and
in particular about the patients’ energy metabolism.
May explain energy deficiency
That was the excerpt. The thread is currently 35 pages long, and I will not read it because
Under normal circumstances, human cells
utilize carbohydrates, fats (lipids) and proteins (amino acids) as
sources of energy, through catabolic processes in the mitochondria, the
“powerhouses” of the cell. However, when we engage in intense physical
exercise, there is a shortage of oxygen delivered to the muscle
mitochondria (anaerobic exercise), at which point glucose is converted
to lactic acid. Since lactate accumulates and there is lower energy
yield, the body will say “stop” after a short time. The enzyme pyruvate
dehydrogenase (PDH) plays an important role in the regulation of these
processes, as it contributes to coordinating the utilization of
carbohydrates, amino acids and lipids (fats) as energy sources. The new
study suggests that the PDH enzyme is inhibited in ME/CFS patients,
which may explain both energy shortage and increased lactate production
in these patients.
I am again reminded very much of 2010.
Here is a contribution by an anonymous degenerate troll that was answered by Ben Howell as follows:
Yes indeed - but I have had (once again) already enough from Phoenix Rising. Here is some more background to my opinions:
this is no landmark
this was to be expected.
it can straight go to the rubbish bin.
could they at least reveal what pathogens and parasites the
participants have been tested for (found with titres/not found)?
if we had at least this info from such rubbish-studies, we could be
this is needed. and really, its just something that belongs to a
for data analysis anyway. big data studies.
This is exactly what OMF and Prof. Davis
has been doing in his Severely Ill Big Data study.
I don't believe any pathogen has been found
yet, using custom, cutting edge devices. Not just based on titres which
are not always reliable.
What a lot of people seem to be missing is
that so far, from multiple studies, it seems to not necessarily matter
what the initiating trigger is, the resulting metabolic consequences
appear to be the same for patients. The heterogeneity resulting in a
homogenous end point. All of the studies so far (Naviaux, Hanson,
Armstrong and this one) are all pointing in the same direction.
We have never had that before, and never
with this quality level of research.
So yes, I do think it is landmark, just as
Naviaux's is. They may not offer the answer, but they offer an
unprecedented glimpse into the illness that we have never had before.
Forest for the trees.
It's not only about the end result. It's about recognition as well.
Large cohort. With the correct criteria. Very important. Makes an
impression. Getting more of the medical establishment on board.
And says a lot about the mechanism of the illness. Many good points. Many.
2. On some backgrounds
I did some diving
into the recent past history related to XMRV and Phoenix Rising.
are two items that still read quite well since I published them. The
first charts my differences from the stupid average and was published
on January 23, 2011:
I think that is still
quite fair and quite true. And this does also chart my own intellectual
when I discuss ME/CFS. I do not think there is anyone else there with
my background, although I agree not everyone who writes there is stupid
But then, many
are in my considerable experiences with Phoenix Rising in 2010. Here
are the posts I wrote then for them (and which I withdrew because I do
not want my name or my sites associated with a site like that):
As I said, I left
Phoenix Rising on May 23, after seeing how some very intelligent
persons who were NOT myself were persecuted by a large mob of
persons who complained that they - brainfogged, in pain, with little real education - could not follow the expositions of the
very intelligent persons and who suggested that, therefore, the
intelligent persons should leave Phoenix Rising.
Well, I did and I will never return. Here is why (from 2014/2015):
And here is why I will write more about M.E. now: There have been three independent tests that have held up:
The present index got compiled in 2014 and in 2015 for three reasons:
(1) my posts are still regularly searched, though I've removed them
from Phoenix Rising on May 23, 2010; (2) I think I did say quite a few things
worth saying that others did not say; and (3) I like to document my life,
and this is a - quite small - part of my life: 4 months of mails to Phoenix Rising,
all in all over 3 MB of text + html.
The index got compiled definitively only in January 2015 for the following reasons:
(i) my health was worse from 1991 till the end of 2013, since when it
improved some (though not very much), and (ii) I had an index like the present
one - but this took nearly 730 Kbs, mostly because I have to work with
KompoZer, that has many bugs (but is the best on Linux). The present index
by contrast contains all that the 730 Kbs contained, but does so in around 60 Kb.
But now I can do it and have done it - and this is also all I will do in
this directory. Also, I will not return to the topic of M.E. nor write for any
forum (and have not done so since July 2010) until there is a good scientific
explanation of M.E., that has been tested at least three times and has
held up: I have far too many interests to interact with anonymous folks without
brains or without scientific education, who think they can scold anyone because he
or she is more intelligent than they are and because they are totally anonymous.
1. Naviaux et al.'s study, reported by me in 2016
Also, these are all by fine or very fine medical persons or biochemical persons (and in fact there are more than three studies, but the above ones are the best).
2. Fluge et al.'s study, reported by me yesterday
3. Davis et al.'s research, reported by me yesterday
3. Five links to crisis
items I selected, without comments
These are 5 links I collected from today's
readings in 35 sites. I list them, but without any comments by
Three fine items by George
The fourth and last item today consists of
(a repeat of) three very fine segments from
shows by George Carlin in the 1990ies, and I especially recommend the
first bit, although all are very good:
And perhaps you'll find that very much
George Carlin tried to convey simply were facts and they are still
facts. But these facts are not conveyed by the mainstream
they are not, because they counter the propaganda the
seek to instill.
 Incidentally, this is
the second day of the February Strike of 1941, that led to the arrests of my father and grandfather
and their conviction as "political terrorists" to concentration
camp imprisonments by collaborating Dutch judges. If you read Dutch
see how one of the degenerate sadists of the Amsterdam dole
tormented me in 2008: First and second.
Also, my father was knighted briefly before he died in 1980 for
designing and making the Dutch National Exhibition on Resistance
and Fascism (it was a National Exhibition and I believe it
was called thus, but I forgot).
 I am sorry but this was the fact. I
will never be again a member of any site where people are
anonymous, because if they are anonymous many cannot and will not
inhibit the sadism they are born with, just as they cannot inhibit the
stupidity and the utter ignorance that generates their decisions.