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Nederlog

February 25, 2015
me+ME: Update about supplements and condition - February
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1. Update about supplements and condition - February

About ME/CFS


Introduction:

This is a Nederlog of February 25, 2015.

This is an update of January 22, 2015, and what follows is probably only interesting to people who have M.E. or an interest in orthomolecular medicine (<- Wikipedia, but this is at least a bit biased, in my - psychologist's - opinion, with 30 years of experience in taking supplements).

There will be another Nederlog later today.

1. Update about supplements and condition - February

I have been taking the same as last month. Here it is [1]:


vitamin C: 4 grams:
I don't think 6 grams made a difference compared to 4 grams and I have gone back to 4 grams.
Calcium+vitamin D+vitamin K:
I still take 2 pills a day, which gives a little less than the daily recommended dose, but see the next:
VM-75: 1 pill a day
This gives many supplements, and the vitamins only in fairly strong doses (75 mg for most B-vitamins). I think I am doing better on this than on the Multui Total, that was very weak on
vitamins.
Potassium: 4 pills a day
This gives 800 mg a day (and is 2 pills less).
Metafolin: 2 pills a day
This gives 1600 mcg a day, and is as was.
Vit mB12 infusion: 1 pill a day
This gives 1 mg methylcobalamin a day OR
Vit mB12 5000 mcg: 1/2 pill a day.
The last two are alternated every day.
Vit aB12: 1 pill every other day
This gives 3000 mcg of dibencozide
Vit B6 (as P-5'-P): 1 pill a day
This gives 50 mg of B6, and I started this again because B6
definitely helped me in the past (notably in 1984-1988).



That is it (and NB that "mcg" = "microgram").

2014 was in terms of M.E. a good year for it was a bit better than the 20 years before it - not much better, but definitely a bit, and bits are also pleasant when you have my disease (for they make a larger difference than the mere slight increase in energy and slightly lesser pains).

The end of 2014 and the beginning of 2015 (first weeks of January) was a bit more troublesome, for I had sleeping problems again, but then these resolved.

Next, apart from M.E., though probably dependent on it, I have eyeproblems and some other autoimmune diseases (less serious), but then I am in my 37th year of M.E. and in my 3th year of these further problems.

But the eyeproblems are a lot less than they were in 2012 and 2013 (when my sleep was rather seriously disturbed for some 1 1/2 years, simply because of pain), while I am also back, since 2 1/2 months, to using 1 pair of glasses (as I have done since I was 10) instead of 3 (one for the street, one for the computer, one for reading). This is a considerable relief. I still have sometimes painful
eyes, that still need dripping, but the pain is really a lot less than it was in 2012 and 2013, and I also see better.

So... without any big changes, I will go on with the protocol for a month, and then there will be no news on my vitamin-taking until the end of March.

In case you want some more background, read note [1].

---------------------------------
Note

[1] Here are some general explanations and warnings:

I am taking this because I am in the 37th year of having M.E. I also, meanwhile long ago, and while ill, took one of the best M.A.'s in psychology that ever were awarded (and mostly on mathematics and logic) and I also hold an excellent B.A. in philosophy, and could and would have a fine, well-paid life as an academic had I been healthy, but I am ill since I was 28.

Also, I got extremely little help from most doctors, who don't know shit about the real health-problems I have (and my ex-wife had, for we both got M.E. in the beginning of 1979, in the first year of our studying at university), and who usually also don't want to know, for they believe they know how to explain anything they don't understand: "it's psychosomatic, you know".

I still do not understand how a self-respecting and intelligent medical person can say that to a person like me, who never had any reason to want to be ill, and every reason to want to be healthy, and who has the best possible degrees to make a lot of money if he had been healthy, and who knows that mumbling
"it is psychosomatic, you know" is just utter bullshit, but then most medical persons I have met in my life (a lot) were definitely considerably less intelligent than I am. (Which did not help me, at all: you are rarely liked for being very intelligent or very informed, and especially not by none-too-smart G.P.s)

In any case: I am certain that there is a great amount of medicine that is not known yet; I am certain that the causes of my disease are among the very many things medical science-as-is does not have a rational answer to; and - as a psychologist with an excellent M.A. - I have great disdain for anyone psycho-
analysing or psychiatrizing me, who has the impertinence to tell me "it's all in your mind" (37 years of physical pain? with two excellent academic degrees?! that I can't use because I am tired and in pain?!?!) and generally believe such people are either a lot more stupid than they themselves think they are or a lot more sadistic than they (probably) know.

Finally, the reasons I am taking the current protocol are two: I get no medical help (apart from sleeping pills, which I need), and so I am much helped by anything that gives me some more energy and that lessens my pains, and this
protocol does that.

I do not have sound biochemical reasons why it would, but I can find no medical person I trust who is interested in finding out. I am taking this because I can find no intelligent, interested and informed medical help; because I am ill, for 37 years now; and because this does help some, but I would not take it if I were not ill or if it would not help me.


About ME/CFS (that I prefer to call M.E.: The "/CFS" is added to facilitate search machines) which is a disease I have since 1.1.1979:
1. Anthony Komaroff

Ten discoveries about the biology of CFS(pdf)

2. Malcolm Hooper THE MENTAL HEALTH MOVEMENT:  
PERSECUTION OF PATIENTS?
3. Hillary Johnson

The Why  (currently not available)

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf - version 2003)
5. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf - version 2011)
6. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

7. William Clifford The Ethics of Belief
8. Malcolm Hooper Magical Medicine (pdf)
9.
Maarten Maartensz
Resources about ME/CFS
(more resources, by many)



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