December 22, 2014
me+ME: Update about supplements and condition

1. Update about supplements and condition

About ME/CFS


This is a Nederlog of December 22, 2014.

This is an update of November 26, and what follows is probably only interesting to people who have M.E. or an interest in orthomolecular medicine (<- Wikipedia, but this is at least a bit biased, in my - psychologist's - opinion, with 30 years of experience in taking supplements).

I do not know whether there will be another Nederlog today, because I have to do several things, but I will try.

1. Update about supplements and condition

Most of the previous protocol is unchanged, but I have three weeks ago upped the dosages of vitamin C and Potassium. Otherwise it is the same as was:

vitamin C: 6 grams:
I think - statistics support me - this makes sense for me. (6 pills)
Calcium+vitamin D+vitamin K:
I take 2 pills a day, which gives a little less than the daily recommended dose, but see the next:
Multi Total: 2 pills a day
This gives many supplements, but the vitamins only in very weak
doses (which is needed because of the rest of the protocol)
Potassium: 6 pills a day
This gives 1200 mg a day
Metafolin: 2 pills a day
This gives 1600 mcg a day
Vit B12 infusion: 1 pill a day
This gives 1 mg methylcobalamin a day OR
Vit mB12 5000 mcg: 1 or a 1/2 pill a day
The last two are alternated every day.
Vit aB12: 1 pill every other day
This gives 3000 mcg of dibencozide

That is it (and NB that "mcg" = "microgram"). I also note that the only supplements I now take in large amounts are vitamin C, metafolin and vitamin B12.

The summary of the present dosages is that it worked a bit better than before:
I did feel a bit more energetic. This is very probably mainly due to the added potassium.

I am still a bit better all this year than I have been since 1988 (!!) in terms of M.E. and now my eyes, that still are improving but not healed, have allowed me this month (1) to return to 1 pair of glasses (instead of 3: 1 for the street, 1 for the computer, 1 to read books, all of different strengths: this may sound nice, but is not at all handy) and (2) to lighten the background color in Firefox (now at #CCCCCFF, and a lighter non-white is not easily possible (it is the same background color as in the present text - and note I needed dark green or dark brown 2 1/2 years ago as background color, to avoid more pain).

Therefore, I will go on with the protocol for a month, and there will very probably be no news on my vitamin-taking until the end of January of the next year.

As far as I am concerned, this is all quite good news, and rather better than I feared in the - pretty horrid - second half of 2012, both as regards my eyes and my M.E.:

Both are better - that is: less bad - than they have been, and than I expected. Also, I am quite glad that I can give up fumbling about with three different kinds of glasses.

It did take a lot of patient trying, and I am rather certain that I still have to learn more about the fine - and personal - art of supplementing the right amount of potassium to the right amount of metafolin. I probably will increase my dose of
potassium again by 200 mg in January, and tell you about it, and I also will increase the dose of metafolin a bit, though probably not in January 2015.


About ME/CFS (that I prefer to call M.E.: The "/CFS" is added to facilitate search machines) which is a disease I have since 1.1.1979:
1. Anthony Komaroff

Ten discoveries about the biology of CFS(pdf)

3. Hillary Johnson

The Why  (currently not available)

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf - version 2003)
5. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf - version 2011)
6. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

7. William Clifford The Ethics of Belief
8. Malcolm Hooper Magical Medicine (pdf)
Maarten Maartensz
Resources about ME/CFS
(more resources, by many)

       home - index - summaries - mail