20, 2014
About M.E./CFS

About M.E./CFS


This is a Nederlog of Saturday, December 20.

In fact, this is a workfile, in the sense that it will be later updated (and very probably also copied to 2015). And it consists of the table that has been on the bottom of Nederlog for a long time, with currently one row added.

Here are the brief explanation and the contents:

1. About M.E./CFS

I do much dislike the name "chronic fatigue syndrome" ("CFS"): it is a psychiatric invention to deny those suffering from it any adequate medical help, or indeed any medical research, and tries to paint those who are so unfortunate as to have this disease as madmen, who should get no support, and only deserved to be pooh-poohed, and to receive CBT and do exercises under the guidance of psychiatrists, who nearly all are frauds (yes, at least as much as I am a psychologist and a philosopher) with regards to M.E. (and many other things).

Well... I have M.E. since 1.1.1979, when my ex and I both got it after an Epstein-Barr infection, in our first year of university-studies (a most idiotic place to choose to become quasi-ill); we are ill since then; we both got fine degrees as psychologists (mine better than almost everyone else, or indeed than everyone else, but yes: we were both a lot more intelligent than average students) - but I was not even considered ill since 1995 by the sick sadists who run the Amsterdam dole, and I still am not, although now I am half a year from my pension.

Also, I really want to leave the country in which I am forced to live: ill, discriminated, degenerated, persecuted, scolded and gassed since 1980. This may be possible when - minimally - pensioned, but it will depend a lot on my health.

But this was just by way of introduction.

Here are ten writers about M.E., and all of them are good:

1. Anthony Komaroff

Ten discoveries about the biology of CFS(pdf)

3. Hillary Johnson

The Why  (currently not available)

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf - version 2003)
5. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf - version 2011)
6. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

7. William Clifford The Ethics of Belief
8. Malcolm Hooper Magical Medicine (pdf)
Maarten Maartensz
Resources about ME/CFS
(more resources, by many)
10. Maarten Maartensz On the failures, sickness, greed and dishonesty of psychiatry
(Over a 100 essays, by a psychologist)

The present file will be considerably extended and copied to 2015, though it probably will not exceed 30-40 items, and that basically because M.E. is a real disease, but unfortunately is mostly unknown: There is no known cause (though
many start with
Epstein-Barr, like my ex and I did); there is no known therapy
(apart from supplements of magnesium, vitamin D, and sleeping pills); and
since there now are quite a few "patient communities" where most anything
goes, I will mainly list those contributions that are by medical men or by psycho-

But as I said, there does remain a fair amount to add, and that will happen in 2015, in an extended and rewritten copy of the present file.

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