25, 2014
me+M.E.: Encryption, Suzy Chapman, "dry eyes", M.E.
   "They who can give up essential 
   liberty to obtain a little temporary
   safety, deserve neither liberty
   nor safety."
   -- Benjamin Franklin [1]
   "All governments lie and nothing
   they say should be believed.
   -- I.F. Stone.
   "Power tends to corrupt, and   
   absolute power corrupts
   absolutely. Great men are        
   almost always bad men."
   -- Lord Acton

Prev- crisis -Next

1. House Committee Puts NSA on Notice Over Encryption

2. Suzy Chapman writes again
3. Two years of "dry eyes"
4. About my M.E.

About ME/CFS


This is the Nederlog of May 25.

It is not an ordinary
crisis issue, and it isn't simply because I could find only one item - among the usual 40+ sites that I check everyday, to be sure - that belongs to the crisis.

That one crisis item follows below, as the first item (and no, I agree it isn't very spectacular either).

But this gives me space to write about other things. I have three updates: One on Suzy Chapman, one on my eyes and one on my ME.

In case this is not of interest to you (and it seems most who read me are not interested in M.E., which is quite OK with me) you'll have to wait till tomorrow, when there very probably will be another crisis report. (And I have left the intro to the crisis reports standing.)

1. House Committee Puts NSA on Notice Over Encryption Standards

The first - and only crisis - item today is an article by Justin Elliott that I found on Truthdig but originally appeared on ProPublica:
This starts as follows:

An amendment adopted by a House committee would, if enacted, take a step toward removing the National Security Agency from the business of meddling with encryption standards that protect security on the Internet.

As we reported with the Guardian and the New York Times last year, the NSA has for years engaged in a multi-front war on encryption, in many cases cracking the technology that is used to protect the confidentiality of intercepted communications. Part of the NSA’s efforts centered on the development of encryption standards by the National Institute of Standards and Technology, which sets standards that are adopted by government and industry.

Documents provided by Edward Snowden suggest that the NSA inserted a backdoor into one popular encryption standard, prompting NIST to launch an ongoing review of all its existing standards.

The amendment adopted this week by the House Committee on Science, Space, and Technology would remove an existing requirement in the law that NIST consult with the NSA on encryption standards.

Note that all this does is remove the requirement, and that NIST does not have a large staff of cryptography experts.

There is more under the last dotted link, and it is something, but it is not much.

2. Suzy Chapman writes again

I wrote on February 12 of this year that Suzy Chapman had announced that from April 1 there would be no more updates on her sites. I also explained that I had double feelings about it:

I could very well explain it, at least with reference to my own similar decision (of 2010, to be sure, that was strengthened by the XMRV-collapse), but I also thought it a pity that about the only really intelligent and clear and informed writer about M.E. and M.E.-related things had stopped writing.

Well... since then she several times updated Dx Revision Watch, and seems back since yesterday, I suppose because she found that without her there is no one who really knows about the - indeed quite complicated - ICD-changes, while the work she has done was highly regarded by many medical and psychological professionals.

To be sure: I am guessing here, and also merely reporting what I found.

What do I think about it? She knows a whole lot more about the ICD than I do; her site was very well liked by professionals (while the ordinary anonymous ME-patient found it too complicated, which also meant that quite a few of these anonymous folks were - anonymously, of course - against it, also without the least of politeness or understanding, but then such considerations will not limit an ordinary anonymous Facebook-hero); and I liked her sites as welll; while complete consistency is mostly for dead men and women only.

So she is quite welcome, and indeed does a job that is difficult and is not done at all or not done as well by others.

But it will not change my decision to keep far from meeting ordinary anonymous M.E.-patients: I have totally had it with the anonymous mostly evil-minded and always stupid and ignorant brain dead. (I am sorry: the differences simply are too large. There are some people with M.E. that I like, but I simply do not want to figure in a context where the large majority is stupid, ignorant, completely anonymous and grossly impolite to anyone less stupid or less ignorant than they are, and who are so simply because they are totally anonymous.)

3. Two years of "dry eyes"

As I explained in the introduction, the last two items were the only crisis items that I could find today, and the rest of this Nederlog is mostly about personal things.

First an update on my eyes, that started to be painful over two years ago, and in May-June of 2012 collapsed quite painfully, which made the use of an ordinary unadjusted computer, which has many white pages, completely impossible, and made my life a lot more difficult: I did not sleep sufficiently for 1 1/2 years (see also the next item) simply because of continuous pain in my eyes, that felt like abrasions I had to see through, and that also upset my mental functioning somewhat, because of lack of sleep and because of continuous pain in my eyes, for that also effected my visual imagination, which is uncommonly strong in my case.

That is, I have mental films in my head about virtually anything (real and imaginary): moving colored pictures, although with little or no sound, going back at least to 1954 in case of my memories, and no one I have talked with has as good a visual imagination as I have, though I read reports about others who were similarly gifted - e.g. see William James's "The Principles of Psychology": This is a link to chapter 18, in which you'll find a Mr X, who was rather like me.

Also, in my case I can visualize anything I please, in full color and (apparent) detail [2], but it turned out this capacity was considerably hindered by painful eyes: I still could do it, but not by far as well. It is difficult to say what is the precise cause, for I also slept too little for a long time, but it seemed the pain in my eyes - which are a part of my brain - was the main cause.

The first half year was really awful, and I much doubted I would ever have useful eyes again, also because it was difficult to read anything. However, after some 4 months of dripping every hour or every two hours with "Tears Naturale" (as it is called, a bit strangely: it is mostly water, and of course not natural tears) it stopped growing worse, which it had done from June 2012 onward until October 2012, and since then it has, albeit very slowly if also quite consistently, been growing less.

From September 2013 onwards, I also sleep again normally, albeit it with sleeping pills (which had not helped a lot for more than a year: too much pain).

At present, I still have to drip every two hours and I still have pain most of the time, and I also still need an adjusted computer, but after two years of regular dripping I now occassionally forget to drip, and indeed also my visual imagination is getting better, though that too is still not were it was until 2012.

I do not know how this will continue, but I seem to be returning now from the last two quite low years, and indeed I have better, or less worse, eyes than I had the last two years - which I can assure you is a good feeling: less pain and a less hampered visual imagination, and normal sleep since 8 months.

4. About my M.E.

Then there is my M.E. that started on 1.1.1979 and is currently in its 36th year, still without being accepted by the Amsterdam bureaucracy, I suppose because I protested to the enormous illegal drugsdealing that is protected by the Amsterdam mayors, aldermen, council-members, police, district attorneys, judges and bureaucrats. (And yes Americans and other foreigners: All the very many "coffee-shops" that you buy your marijuana in in Amsterdam and the rest of Holland are quite illegal - except that the mayor has kindly agreed to their existence, I think for a percentage of the turnover.)

I do not know against what percentage, and I do not know who gets a percentage, but since it is over 25 years ago that I was gassed by the drugsdealers + my then landlord, and since there has been a turnover of at least 250 Billion dollars the last 25 years - that is: $ - merely in soft drugs, and judged by the figures of the only parliamentary report done about it, the Van Traa report (<- on the site, in Dutch, with my Dutch notes that make the report a lot more readable) of 1996, and since the real number, when hard drugs are included may be twice as high over the last 25 years, and since 5% of $ still is $ 12.500.000.000 (that is: 12 1/2 billion dollars) in 25 years it seems as if you must be a Dutch mayor, alderman, council-member, policeman, district attorney, judge or bureaucrat to insist that "No, no, no: it is impossible that we - poor, honest, we! - also get a percentage of these incredible totally untaxed riches! Trust us, we politicians etc. are honest men and women!"

Then again: No Dutchman writes about it (or in the very few cases this happens, only lies: the last time I saw that the NRC wrote about it they claimed so and so many kiloos were being sold - without saying what this costs, and without referring once to the real numbers in the Van Traa report: totally dishonest and completely misleading, but also typically Dutch) and no Dutchman is willing to lift a finger for me or against any corrupt Amsterdam mayor or judge or district attorney, so it will continue and continue and continue, if only to assure that the
Dutch mayors, aldermen, council-members, police, district attorneys, judges and bureaucrats will keep whatever percentages they get, and it will never be legalized until the rest of Europe legalizes - at least - soft drugs, that currently are the most profitable and largest Dutch export, and have been so for many years, thanks to (ex-)mayor Ed van Thijn and the great and untaxed profits.

What does this have to do with my M.E.? Merely this:

Until Amsterdam mayor Ed van Thijn refused, for nearly four years, to even acknowledge receipt of hundreds of pages of documents and letters by me (handed to his own personal guard, so he certainly received them), I had ten years of what I must now insist was relatively minor M.E. and I also had good hopes (that may well have been false, but even so...) that I might get cured.

Since then, mayor Ed van Thijn has willingly and purposely totally destroyed my health [3], either for his own illegal drugsprofits or for the illegal drugs profits of the Amsterdam drugs mafia, or for both, that he and his successors have now protected for 25 years, and since 1991 my health has been consistently much worse than it was before, since I fell ill on 1.1.1979.

So from 1991-2012 - 21 years - I was far more ill than I was from 1.1.1979 till 1991. Between 2010 and 2012 I puzzled out - with considerable trouble: it's not easy - a version of Freddd's mB12-protocol [4] that helps me - which I had to break off in June 2012 because of the awful condition of my eyes, but that I have taken up again this year, also after - much to my amazement, and counter to everything I knew - not collapsing in 2013 with considerably worse M.E. because of lack of sleep, and again the protocol helps some: I certainly can do more than I could since 2012, and indeed also, it seems, since around 2000.

I do not know whether this will keep working, and also do not know whether I can keep buying metafolate (which is reported to become forbidden - an utterly crazy measure, but one that increases the powers of the totally corrupt psychiatrists), but for the moment I am doing reasonably well, and have been the last three or four months.

Anyway...more tomorrow, I suppose again on the crisis.

[1] Here it is necessary to insist, with Aristotle, that the governors do not rule, or at least, should not rule: The laws rule, and the government, if good, is part of its executive power. Here I quote Aristotle from my More on stupidity, the rule of law, and Glenn Greenwald:
It is more proper that law should govern than any one of the citizens: upon the same principle, if it is advantageous to place the supreme power in some particular persons, they should be appointed to be only guardians, and the servants of the laws.
(And I note the whole file I quote from is quite pertinent.)

[2] The bracketed "(apparent)" is due to the fact that there also is vagueness that is absent in things I see: I can imagine Greek or Roman ruins, with many columns, which seem quite well, but it is difficult or impossible to count all columns, for example.

As James explains, there are very large differences between people as regards to visual imagination, and it has very little or nothing to do with general intelligence although it seems that many highly intelligent persons do not have much of a visual imagination, which fits with the cases I asked.

Also, one of the women I lived with, who played the violin quite well and was very musical and highly intelligent had - it turned out - the opposite of what I have: Hardly any visual imagination, but the ability to repeat conversations of a long time ago, it seemed quite accurately, and to mentally retain and hear whole symphonies, which I cannot do.

[3] Also knowing full well that I am the son and grandson of two Amsterdam heroes of the resistance who were condemned, by collaborating Dutch judges, to the concentration-camp; that my mother worked for the resistance in Noord-
Brabant where Van Thijn was hidden as a Jewish kid; and that I was seriously ill: He is that type of subhuman degenerate, as indeed are his successors, but I confidently trust he and his successors are extremely rich, albeit the money will not be listed if they die.

[4] I give a link to Phoenix Rising, where I learned about it. There were considerably more materials by Freddd, but either they were removed or were moved to some other place, and I hardly visit Phoenix Rising these days, and don't feel like searching through it. In any case, the theory is much like that
of the late Rick van Konynenburg, while the protocol is a bit different (but Van Konynenburg's protocol also might have helped me). Happily, the papers of Van Konynenburg are still there:
Documents by Rich Van Konynenburg: Parts 1-7.
This is at least decent biochemistry. And it helped me more than anything I tried since 1991.

About ME/CFS (that I prefer to call M.E.: The "/CFS" is added to facilitate search machines) which is a disease I have since 1.1.1979:
1. Anthony Komaroff

Ten discoveries about the biology of CFS(pdf)

3. Hillary Johnson

The Why  (currently not available)

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf - version 2003)
5. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf - version 2011)
6. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

7. William Clifford The Ethics of Belief
8. Malcolm Hooper Magical Medicine (pdf)
Maarten Maartensz
Resources about ME/CFS
(more resources, by many)

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