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June 15, 2013
Crisis: Grayson, DSM-5 and M.E.


   "Those who sacrifice liberty for  
     security deserve neither."
     -- Benjamin Franklin







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Sections

Introduction
1.  Alan Grayson explains it to Congress 
2.  How about the DSM-5? Take the ICD!  
3.  What is M.E.?
About ME/CFS

Introduction:

It still is the case that sleeping remains quite difficult for me. This also makes my life rather difficult, at the moment.

Anyway. Today it is weekend, and I do less, and shift - so to speak - the resolution somewhat: I'll concentrate on general expositions, that also are clear and sensible.

For the moment, I'll offer three: About Snowden's revelations; about the DSM-5; and about M.E. It is categorized in the
crisis-section because of the first section, that also will concern the most.

1. Alan Grayson explains it to Congress

First, here is Alan Grayson, who is a Democratic Congressman, who explains the Snowden revelations to Congress, and does so in a clear and understandable way, and in under 25 minutes:
If you've paid attention to what I wrote the last week, you will not learn very much, but even so it is well worth seeing, since it keeps things simple and clear, and it is a good speech.

Oddly - or perhaps not, in view of the NSA's recordings! - it has been seen only 3406 times as I am writing this.

2
. How about the DSM-5? Take the ICD!

Next, the DSM-5. I think I have explained it quite well, in my DSM-5 series, and  e.g. on July 16 last year and on May 28 2012, but few seem to care - or at least I am not told people care, or if I am, then it does not reach me [1].

So here is a link to another site that has the merit of explaining it all quite clearly:
Then about my question + answer that form the title of the section.

There is no need to buy the DSM-5 and there also is no need of any kind to follow it - after all, it is the very bad work of a very private organization most of whose members must be regarded as deceivers. Then again, what are you to do if you are a psychiatrist, psychologist or GP? If you need to know the appropriate codes for the diagnoses you make? In fact, there is considerably better than the DSM-5:
Not only is it better; not only is it the original source of the appropriate codes; not only is it by the World Health Organization: it also is quite free. If you press the last link and save it, you've got it. [2]

3. What is M.E.?

Finally. One of the many things I have not done the last year is to revise my
I am sorry, but I have tried, and I could not do it with the qualities of my eyes. Then again, it still is one of the best resources. Two other real good ones are here:
Note both are extensive sites, of which I give you only one page for each: If you are interested, you should see more on these sites.

Finally, the best explanation, in one file, is the following, which was not compiled by psychiatrists but by, and I quote:
An International Consensus Panel, consisting of clinicians, research investigators, teaching faculty, and an independent
educator, represent diverse backgrounds, medical specialities and geographical regions. Collectively, the members of the
panel have:
• diagnosed and/or treated more than 50 000 patients who have ME;
• more than 500 years of clinical experience;
• approximately 500 years of teaching experience;
• authored hundreds of peer-reviewed publications, as well as written chapters and medical books; and
• several members have co-authored previous criteria.
They compiled this:
This the latest and the best. [3]
---------------------------------
Notes

[1] I have merely on my least visited site almost 5 1/2 million hits, compiled by nearly 1 million visitors. I hardly get mail. I find this a bit odd.

[2] This is not to say I agree with it, for I think there are too many diagnoses in it, but even so: It is shorter, much better written, and has all the codes that matter, so there really is no need to shelve out $ 149 for the awfully bad DSM-5.

[3] I do think so, although I think PEM i.e. Post-Extertional Malaise is a better name than PENE i.e.
Post-Extertional Neuroimmune Exhaustion, because the former is empirically so, while the latter has a theoretical component. But it is a small criticism. Overall, this is the book patients with M.E. and their doctors need.

About ME/CFS (that I prefer to call M.E.: The "/CFS" is added to facilitate search machines) which is a disease I have since 1.1.1979:
1. Anthony Komaroff

Ten discoveries about the biology of CFS(pdf)

2. Malcolm Hooper THE MENTAL HEALTH MOVEMENT:  
PERSECUTION OF PATIENTS?
3. Hillary Johnson

The Why  (currently not available)

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf - version 2003)
5. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf - version 2011)
6. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

7. William Clifford The Ethics of Belief
8. Malcolm Hooper Magical Medicine (pdf)
9.
Maarten Maartensz
Resources about ME/CFS
(more resources, by many)


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