May 12, 2013
me+ME:  International ME/FM-Awareness Day
1. International ME-Awareness Day
About ME/CFS


Still paying back my walk of over two weeks ago, so I am still not feeling very well. (But it may be improving some.)

Today it is the International ME-Awareness Day, and indeed the same holds - I discovered this year - for FM (Fibromyalgia). Since my first diagnosis, in 1989, is one for both - "M.E./F.M." my GP wrote, as by that time "CFS" was unknown -  by the doctor who took the most interest in me, I have included the "FM" in the title.

I do not believe this makes much of a difference, firstly, because FM is as badly known in the medical world as is ME, and secondly because, except for the few medical doctors who have seriously paid attention to either disease, there is very little interest in either disease.

Today I reproduce part of what I wrote on May 12 last year, that again was taken from what I wrote on May 12, 2010.

There are a few minimalistic changes:

1. International ME-Awareness Day

"It was from this time that I developed my way of judging the Chinese by dividing them into two kinds: one humane and one not.
   (Jung Chang) (^)

May 12, 2013: Today being the annual International ME-Awareness Day I reproduce a file of exactly three years ago, and I do this again because persons with ME/CFS in Europe and the US, and perhaps elsewhere, seriously risk being diagnosed as insane for thinking they have a serious neurological disease, and being driven to death by having their dole terminated and being forced to work.

This will be quite easily done in the US and also in Europe now, from May 18, 2013 onwards, (1) because then the new DSM-5 gets instituted, and (2) because most European states deny their citizens the right to bear arms, which means that these citizens are in effect the willing or unwiling slaves of any authoritarian government that is willing to drive the ill to their deaths in order to have the healthy pay less taxes or at least to help the bank managers to their bail outs and bonuses.

Since I have been called "a fascist" so many time by the leftist fascists from my generation who secured their own university-careers by labelling anyone "fascist" or "terrorist" who opposed them, and then destroying all higher education and the Dutch universities, let me point out that my criticisms of Dutch institutions and Dutch leftist fascists and narko-nazis from the Dutch  Labour Party have been publicly on line since over 10 years now, and are well known to all I criticize: I may well be murdered, but I cannot be convicted by any court that uses the Dutch law as these are written (but betrayed by all politicians, judges, and district attorneys for the benefit of the Dutch drugs mafia and the interests of Dutch political leaders).

Therefore everything I have said in the Note below can be taken as true. Then again, if things continue as they have been doing in Holland and Europe, I must reckon with the serious possibility of being the third successive generation to be locked up in a concentration-camp, either because of my opinions or because of my ill health.

The rest of this text is almost the same from precisely 3 years ago, but with the excision of Dutch materials in the present text.

ME and Human Rights

Here follow for later reference (and also in connection with the previous entry) the English version of the Universal Declaration of Human Rights:

And see the Note for the importance of this, for me and for many other Dutchmen, with ME and also without ME.

English version

The Universal Declaration of Human Rights

On December 10, 1948 the General Assembly of the United Nations adopted and proclaimed the Universal Declaration of Human Rights the full text of which appears in the following pages. Following this historic act the Assembly called upon all Member countries to publicize the text of the Declaration and "to cause it to be disseminated, displayed, read and expounded principally in schools and other educational institutions, without distinction based on the political status of countries or territories.


Whereas recognition of the inherent dignity and of the equal and inalienable rights of all members of the human family is the foundation of freedom, justice and peace in the world,

Whereas disregard and contempt for human rights have resulted in barbarous acts which have outraged the conscience of mankind, and the advent of a world in which human beings shall enjoy freedom of speech and belief and freedom from fear and want has been proclaimed as the highest aspiration of the common people,

Whereas it is essential, if man is not to be compelled to have recourse, as a last resort, to rebellion against tyranny and oppression, that human rights should be protected by the rule of law,

Whereas it is essential to promote the development of friendly relations between nations,

Whereas the peoples of the United Nations have in the Charter reaffirmed their faith in fundamental human rights, in the dignity and worth of the human person and in the equal rights of men and women and have determined to promote social progress and better standards of life in larger freedom,

Whereas Member States have pledged themselves to achieve, in co-operation with the United Nations, the promotion of universal respect for and observance of human rights and fundamental freedoms,

Whereas a common understanding of these rights and freedoms is of the greatest importance for the full realization of this pledge,

Now, Therefore THE GENERAL ASSEMBLY proclaims THIS UNIVERSAL DECLARATION OF HUMAN RIGHTS as a common standard of achievement for all peoples and all nations, to the end that every individual and every organ of society, keeping this Declaration constantly in mind, shall strive by teaching and education to promote respect for these rights and freedoms and by progressive measures, national and international, to secure their universal and effective recognition and observance, both among the peoples of Member States themselves and among the peoples of territories under their jurisdiction.

Article 1.

  • All human beings are born free and equal in dignity and rights.They are endowed with reason and conscience and should act towards one another in a spirit of brotherhood.

Article 2.

  • Everyone is entitled to all the rights and freedoms set forth in this Declaration, without distinction of any kind, such as race, colour, sex, language, religion, political or other opinion, national or social origin, property, birth or other status. Furthermore, no distinction shall be made on the basis of the political, jurisdictional or international status of the country or territory to which a person belongs, whether it be independent, trust, non-self-governing or under any other limitation of sovereignty.

Article 3.

  • Everyone has the right to life, liberty and security of person.

Article 4.

  • No one shall be held in slavery or servitude; slavery and the slave trade shall be prohibited in all their forms.

Article 5.

  • No one shall be subjected to torture or to cruel, inhuman or degrading treatment or punishment.

Article 6.

  • Everyone has the right to recognition everywhere as a person before the law.

Article 7.

  • All are equal before the law and are entitled without any discrimination to equal protection of the law. All are entitled to equal protection against any discrimination in violation of this Declaration and against any incitement to such discrimination.

Article 8.

  • Everyone has the right to an effective remedy by the competent national tribunals for acts violating the fundamental rights granted him by the constitution or by law.

Article 9.

  • No one shall be subjected to arbitrary arrest, detention or exile.

Article 10.

  • Everyone is entitled in full equality to a fair and public hearing by an independent and impartial tribunal, in the determination of his rights and obligations and of any criminal charge against him.

Article 11.

  • (1) Everyone charged with a penal offence has the right to be presumed innocent until proved guilty according to law in a public trial at which he has had all the guarantees necessary for his defence.
  • (2) No one shall be held guilty of any penal offence on account of any act or omission which did not constitute a penal offence, under national or international law, at the time when it was committed. Nor shall a heavier penalty be imposed than the one that was applicable at the time the penal offence was committed.

Article 12.

  • No one shall be subjected to arbitrary interference with his privacy, family, home or correspondence, nor to attacks upon his honour and reputation. Everyone has the right to the protection of the law against such interference or attacks.

Article 13.

  • (1) Everyone has the right to freedom of movement and residence within the borders of each state.
  • (2) Everyone has the right to leave any country, including his own, and to return to his country.

Article 14.

  • (1) Everyone has the right to seek and to enjoy in other countries asylum from persecution.
  • (2) This right may not be invoked in the case of prosecutions genuinely arising from non-political crimes or from acts contrary to the purposes and principles of the United Nations.

Article 15.

  • (1) Everyone has the right to a nationality.
  • (2) No one shall be arbitrarily deprived of his nationality nor denied the right to change his nationality.

Article 16.

  • (1) Men and women of full age, without any limitation due to race, nationality or religion, have the right to marry and to found a family. They are entitled to equal rights as to marriage, during marriage and at its dissolution.
  • (2) Marriage shall be entered into only with the free and full consent of the intending spouses.
  • (3) The family is the natural and fundamental group unit of society and is entitled to protection by society and the State.

Article 17.

  • (1) Everyone has the right to own property alone as well as in association with others.
  • (2) No one shall be arbitrarily deprived of his property.

Article 18.

  • Everyone has the right to freedom of thought, conscience and religion; this right includes freedom to change his religion or belief, and freedom, either alone or in community with others and in public or private, to manifest his religion or belief in teaching, practice, worship and observance.

Article 19.

  • Everyone has the right to freedom of opinion and expression; this right includes freedom to hold opinions without interference and to seek, receive and impart information and ideas through any media and regardless of frontiers.

Article 20.

  • (1) Everyone has the right to freedom of peaceful assembly and association.
  • (2) No one may be compelled to belong to an association.

Article 21.

  • (1) Everyone has the right to take part in the government of his country, directly or through freely chosen representatives.
  • (2) Everyone has the right of equal access to public service in his country.
  • (3) The will of the people shall be the basis of the authority of government; this will shall be expressed in periodic and genuine elections which shall be by universal and equal suffrage and shall be held by secret vote or by equivalent free voting procedures.

Article 22.

  • Everyone, as a member of society, has the right to social security and is entitled to realization, through national effort and international co-operation and in accordance with the organization and resources of each State, of the economic, social and cultural rights indispensable for his dignity and the free development of his personality.

Article 23.

  • (1) Everyone has the right to work, to free choice of employment, to just and favourable conditions of work and to protection against unemployment.
  • (2) Everyone, without any discrimination, has the right to equal pay for equal work.
  • (3) Everyone who works has the right to just and favourable remuneration ensuring for himself and his family an existence worthy of human dignity, and supplemented, if necessary, by other means of social protection.
  • (4) Everyone has the right to form and to join trade unions for the protection of his interests.

Article 24.

  • Everyone has the right to rest and leisure, including reasonable limitation of working hours and periodic holidays with pay.

Article 25.

  • (1) Everyone has the right to a standard of living adequate for the health and well-being of himself and of his family, including food, clothing, housing and medical care and necessary social services, and the right to security in the event of unemployment, sickness, disability, widowhood, old age or other lack of livelihood in circumstances beyond his control.
  • (2) Motherhood and childhood are entitled to special care and assistance. All children, whether born in or out of wedlock, shall enjoy the same social protection.

Article 26.

  • (1) Everyone has the right to education. Education shall be free, at least in the elementary and fundamental stages. Elementary education shall be compulsory. Technical and professional education shall be made generally available and higher education shall be equally accessible to all on the basis of merit.
  • (2) Education shall be directed to the full development of the human personality and to the strengthening of respect for human rights and fundamental freedoms. It shall promote understanding, tolerance and friendship among all nations, racial or religious groups, and shall further the activities of the United Nations for the maintenance of peace.
  • (3) Parents have a prior right to choose the kind of education that shall be given to their children.

Article 27.

  • (1) Everyone has the right freely to participate in the cultural life of the community, to enjoy the arts and to share in scientific advancement and its benefits.
  • (2) Everyone has the right to the protection of the moral and material interests resulting from any scientific, literary or artistic production of which he is the author.

Article 28.

  • Everyone is entitled to a social and international order in which the rights and freedoms set forth in this Declaration can be fully realized.

Article 29.

  • (1) Everyone has duties to the community in which alone the free and full development of his personality is possible.
  • (2) In the exercise of his rights and freedoms, everyone shall be subject only to such limitations as are determined by law solely for the purpose of securing due recognition and respect for the rights and freedoms of others and of meeting the just requirements of morality, public order and the general welfare in a democratic society.
  • (3) These rights and freedoms may in no case be exercised contrary to the purposes and principles of the United Nations.

Article 30.

  • Nothing in this Declaration may be interpreted as implying for any State, group or person any right to engage in any activity or to perform any act aimed at the destruction of any of the rights and freedoms set forth herein.


I will argue later - but see ME in Amsterdam if you read Dutch - that most of the rights that I nominally have in Holland in terms of the above Declaration, that is part of the Dutch law, have been denied to me

(1) because I have ME since January 1, 1979 and
(2) because I have protested against the decline of education and civilization in Holland since I remigrated thereto in 1977 (from Norway) - in which I have been found to be quite right by the Parliamentary Commission Dijsselbloem of 2008 and
(3) because I have had the courage to protest against the being threatened with murder and violence and being gassed by the drugsdealers the mayor of Amsterdam Ed van Thijn had given permission to deal drugs from the house where I tried to survive with ME.

Part of the reason for my discrimination in Amsterdam is very probably that I am the oldest son (and also the grandson) of Amsterdam heroes of the Dutch resistance to Nazism between 1940 and 1945, and that mayor Ed van Thijn knew both my parents, since my father was knighted in Amsterdam as the main organizer of the Dutch National Exhibition about World War II and Resistance, and my mother worked in 1944 as part of the resistance that protected Jews in hiding from the Nazis, in the vicinity where Ed van Thijn was hiding, age 8:

Rather than receive, answer or help me when it turned out in 1988 that I had been gassed and threatened with murder by the drugs dealers he protected, who also kept me from sleeping, Amsterdam mayor Ed van Thijn (and his successors Patijn and Cohen) decided to do all he (and they) could do to prevent that I got any help I am legally entitled to, clearly in the hope that I would suicide or otherwise die.

I was never answered, never received, never even talked to by phone by any mayor, any alderman, any elected Amsterdam councilmembers, or any leading bureaucrat of the city of Amsterdam, ever since I dared to protest against being threatened with murder by the drugsdealers the mayor, aldermen and elected Amsterdam council members protect, and have protected ever since.

Part of the reason is, no doubt, very few Dutchmen have the courage my parents and grandparents had, while the vast majority of Dutchmen, since ages, take all proper care to never offend such authorities as there are.

What I claim is that, in my case, at least the articles 1, 2, 3, 5, 6, 7, 8, 10, 12, 13, 14, 17, 18, 19, 21, 22, 23, 24, 25, 26, 27, 28 and 29 have been DELIBERATELY BROKEN in Amsterdam by the city-government and the University of Amsterdam, quite consciously so, on purpose, with the deliberate purpose to silence me before my complaints, that have for decades referred to the above articles, could come to court.

For the proofs of these allegations see ME in Amsterdam and in particular its Overzicht (Survey) and Konklusie and the summary for lawyers: Voer voor advocaten en filosofen.

The above Note was not changed from May 12, 2012 but for today, May 12, 2013 - 6 days before the opening of the DSM-5, that may make this manner of psychiatric proceeding quite normal - I draw your attention to Ms Suzy Chapman's website, that asks attention for the very sad fate of Ms Karina Hansen:

This relates the story of a person with severe ME, that started with mononucleosis, whose family  have not been able to see her for three months now, after she has been arrested on February 12, 2013, and has been locked up in Hammel Neurocenter.

There are quite a few very strange sides to this story - and I quote only some of them from the report that my last link gives:

"Karina’s parents and lawyer have yet to receive any official paperwork from any government body or clinician about the reason for her removal.

They have received no treatment plan or copies of Karina’s medical reports.

No charges have been made against Karina’s parents.

The case has never been heard by a court.

Karina’s parents do not know if or when they will be allowed to see their daughter or if or when she will be allowed to come home.

Her parents and her lawyer have obtained power of attorney for Karina, but this is being ignored."

And this has been the case now for three months, in which the parents did not get permission to see their daughter.

All I can say is that the above treatment of Karina Hansen breaks, to the best of my knowledge, at least the following of her human rights: 1, 2, 3, 4, 5, 6, 7, 8,  9, 10, 12, 21 (2), 22, 25, 28, and 29 (2).

About ME/CFS (that I prefer to call M.E.: The "/CFS" is added to facilitate search machines) which is a disease I have since 1.1.1979:
1. Anthony Komaroff

Ten discoveries about the biology of CFS(pdf)

3. Hillary Johnson

The Why  (currently not available)

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf - version 2003)
5. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf - version 2011)
6. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

7. William Clifford The Ethics of Belief
8. Malcolm Hooper Magical Medicine (pdf)
Maarten Maartensz
Resources about ME/CFS
(more resources, by many)

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