|"Gregory (Scotland Yard detective): "Is there
any other point
to which you would wish to draw my attention?"
Holmes: "To the curious incident of the dog in the night-time."
Gregory: "The dog did nothing in the night-time."
Holmes: "That was the curious incident."
-- A.C. Doyle, "Silver
1. "The curious incident of the dog at
2. A prevalence of
In a way, this continues
of three days ago, namely to
stress to make two points one of which I mentioned, and another of
which I then forgot.
Both are mostly intended for serious medical researchers who may read
this, since they seem to me important clues that may point to something
that medical specialists might understand.
1. "The curious incident of the dog at
ways, what hit my ex-wife and me in January 1979 was "classical Myalgic
Encephalomyelitis", which I write the way I did because at the time
this was admitted as a real disease, and the sick and sadistic psychiatric lie
 that it is "Chronic Fatigue Syndrome"
had not yet been invented: It started as a serious bout of Epstein-Barr (aka
Pfeiffer's Disease, mononucleosis, or kissing disease) for both of us,
and it also seemed as if it never fully went away for both of us.
As I explained - briefly and partially - in my
I do believe it is
considerably more likely that the symptoms of ME/CFS have several
explanations rather than a single one.
In any case, both my ex and I belong to the groups (1) whose symptoms
fit the Canada
Criterions, and (2) who started the disease with chronic Epstein-Barr and my main reasons to insist on this
is that it seems relevant
What I call "The
curious incident of the dog at night-time" was described in A bit more about my mB12
protocol in these terms:
And I added this in a note:
The most striking thing
balance, because it is wholly unlike
my experiences since I fell ill with ME/CFS in January 1979, is that I
have not gotten
worse ME/CFS since May-June 2012, in spite of having consistently slept
far too little since then because of sore eyes (that have improved some
since November 2012, but still are troublesome).
That my ME/CFS symptoms did
not get a lot worse with too little sleep,
as has been the case ever since 1979, I can only explain rationally by
the intervening factor of - especially - a large amount of
supplementary B12, since March 2012, or earlier, though not earlier
As I said, (1) I
did not take any
supplements from August till November, but (2) my B12 levels in my
blood during that period also were abnormally high, if not as high as
the first time they were measured, in June. Since (3) I did not sleep
well or enough at all from August till November and (4) I did not
collapse with worse ME/CFS, it would seem the main relevant factor for
this to me rather amazing outcome, is the B12 I took, when I did, which
was 5000 mcg mB12 and 3000 mcg aB12 from March till July 20120, mostly
but not always daily.
My point is simply this: I
have nearly 35 years of experience with this disease, and two
very consistent empirical findings, very often repeated,
also long before either my ex or myself knew about ME at all, which
only happened in 1989, after 10 years, the existence of which disease,
incidentally, was also consistently missed by tens of medical doctors
who were properly paid by us during these 10 years, were that (1)
we had - as we expressed it often - "to pay back after the fact for any
exertion we made" , of which there were many,
for we both fell ill in the first year of out university study (thereby
showing we had no social or psychological reason to malinger, stressed
by the fact that we also, eventually, both got a M.A. degree in
psychology, after many exertions), and that (2) an almost
certain condition to make our symptoms worse was not enough sleep,
which indeed made my M.E. much more serious from 1988-1991 onwards,
when I suffered from years of far too little sleep, because of
neighboring cafés and drugs-shops that the municipal police allowed to
make great amounts of noise till between 2 and 3 o'clock at night.
This really is the first time - of several periods this
happened to me since falling ill on 1.1.1979 - that what are evidently
periods of sleeping far too little  were not followed by a serious
increase in my symptoms, such as more exhaustion, more pain, and less
So this is quite striking: Not to have more
ME/CFS-problems after having a long period without sufficient sleep,
which has been the case for me ever since 1.1.1979, quite consistently
Also, I have had quite a lot of these periods for several different
reasons, one important subset of which is that once I slept less with
ME/CFS, I usually get more pain in - especially - the muscles of my
arms and legs, which has been a constant symptom for me from the start
of the disease, that also led to my having received the alternative
diagnosis of F.M., and the extra pain makes me sleep less, thus setting
up a vicious circle that is hard to break out of. 
So I really know
what this is like, and what this covaries and interdepends with,
and the only thing that can conceivably explain this
quite striking fact in a rational fashion is that the one thing that
differed, while everything else was the same as it has been for at
least 10 years, was that I had taken a lot of B12, that also
was evidently present in very large supply in my blood, both in June
2012, and in October 2012.
2. A prevalence of auto-immune diseases
I had Epstein-Barr from 1979 till 1989, according to doctors of
medicine that I saw, that is, if they did not say that they did not
know what ailed my ex or me (which I find quite acceptable) and
if they did not say that -
since they did not know it - "it must be psychosomatic" (which I find
quite unacceptable, the more so since I have read meanwhile a lot about ME/CFS and
In 1989 I was first medically diagnosed with Myalgic
Encephalomyelitis / Fibromyalgia, and since then twice more by
other medical doctors, who either knew me fairly well (which helps a
lot if you are judging a man's illness, and his honesty, personal
integrity and level of education and intelligence) or knew a lot about
In Holland, where I live, it has been fashionable, very probably for
financial reasons, since psychiatrists and clinical psychologists
desire patients, and health insurances and state organs desire grounds
to deny patients medical help and benefits, to treat patients with
ME/CFS as if they are insane, lying, malingering, or hysteric (usually
in euphemistic terms, but with the same legal effects: while you are
really ill, you are really denied any help with your illness).
The main reasons this is possible are that the psychiatrists and
clinical psychologists are scientifically incompetent or lie from
personal interest (any patient they can "cure" with the miracle cure
called "cognitive behavioral therapry" pays them between 100 and 200
dollars an hour); that they are sufficiently impertinent, immoral,
dishonested and not afraid of being found out or punished, to be able
to claim that what is not known to them or cannot be found in presently
existing medical handbooks with a certain-sure medical diagnosis "must
be a psychiatric (co-)morbidity" ; and that
there is no known medical explanation and cause of ME/CFS.
It follows - among other things - that ME/CFS might well be an auto-immune
disease, of which there are a lot, as the last link will show
you, most of which also have the property that there is no known medical explanation
or cause for these diseases (making people who suffer from these
diseases easy victims for
psychiatrists, as soon as the DSM-5 can be abused to that end).
It so happens that I have been diagnosed last year (2012) with at least
diseases, namely Dupuyteren's
Contracture and Sjoegren's
Syndrome, in my case especially manifested by keratoconjunctivitis
Both are auto-immune
diseases - of unknown
etiology, except that Sjoegren's
Syndrome is more common in people also diagnosed with ME/CFS than
in the general population.
And while this does not strike me as much as the finding reported in section 1 it is a noteworthy coincidence: I have now
at least two auto-immune
diseases, of which at least one is correlated with ME/CFS, that
itself may be an auto-immune disease.
I do not know what to make of this, nor what to make of the
finding that I have not collapsed with more serious ME/CFS
after not sleeping well for months (in September/October from 3 1/2
- 4 1/2 hours per night), as I have done many times, but then always without
having lots of B12 in my blood.
But it may help good medical researchers getting ideas, and that is why
I wrote this Nederlog about it.
 That is what I think it is, and - also having academic
degrees in psychology and philosophy - I certainly have the right to
say so: Whoever claimed, in whatever capacity, as many have done, that
my ex and myself, and - literally - millions of others with the same
symptoms as we had, are malingerers, liars, hysterics, parasites, or
insane, rather than explicitly reserving such qualifications to at most
a few per cent of millions, who live on minimal incomes while
being denied help end while being discriminated for having the bad luck
of having a disease with an unknown explanation and no known effective
treatiment, is a sick sadist in my
opinion, and namely because I cannot imagine another better motive for
saying such things - although I admit I may also be dealing with a
professional liar, bullshitter and deceiver who works as a PR-consultant,
as happens a lot these days, especially in psychiatry, who may
be less moved by sadism
than by greed, egoism and a psychopathic lack of conscience.
 Known in the ME/CFS literature as
"PEM" (Post-exertional malaise), something I only learned about in 2003.
I normally need around 8 hours of sleep each 24 hours, to function without extra problems of some
kind, and also did so before I
 Fibromyalgia, a
ME/CFS, also in its having no known explanation, and kept apart
from ME/CFS, if this happens at all, on the basis of muscular pains
that are a dominant symptom in fibromyalgia.
 Again a sick trick to try to assure
psychiatrists and clinical psychologists keep having paying patients.
(that I prefer
to call M.E.: The "/CFS" is added to facilitate search machines) which
is a disease I have since 1.1.1979: