This is about what the title says, and merely a brief note that
registers two strange disappearances.
Update Jan 19, 2013: It's back again. See endnote.
1. me+ME: Strange disappearances at X Rx Blog
I follow - like most, I
suppose - various blogs, papers, sites and people on the internet on a
more or less regular basis: I see what they have to say, and I may
write about it in Nederlog.
One blog I follow on
a more or less regular basis is Dr Jamie Deckoff-Jones's X Rx blog and
indeed sometimes I write about what I found there. The last time I did
so was late in December:
This explains why I
do not get happier from reading PR-prose emanating from Dr Jamie or Dr
Judy, and indeed why it looks like PR-prose to me. It got read quite a
lot. My text was Dr Jamie's and Dr Judy's own X Rx blog dated December
Today it disappeared
- text, comments: all gone, without a trace, and also without
the merest hint of an explanation.
What also disappeared
today was Dr Jamie's blog that came after the last one linked above,
and which appeared in January 2013.
I did not write about
it, though I found it quite strange that Dr Jamie, who experimented
with anti-retrovirals because she has ME/CFS and believed Dr Judy on
the subject of ME/CFS and XMRV, said that she had no data about
her experiments because... these data were on the notebook(s) that Dr
Judy claims the Whittemores have made disappear, and the Whittemores
claim that Dr Judy had made disappear.
What I found and find
quite strange is not that Dr Jamie may not want to discuss her
own health and her own experiments in public, but that she claimed that
she cannot do so, because she has no data.
That is quite strange
in itself: She received and made no copies for herself, who is a
medical doctor, who had set out on a doubtful, dangerous and hardly
ever investigated treatment for ME/CFS?!?!
That sounds plain
crazy to me: You are a medical doctor; you and your daughter are
engaging in a serious medical experiment; and you don't have copies of
your own data and those of your daughter?!
Next, what makes it
all the more strange is that she claimed these data are.... on one of
those disappeared notebook(s) that is what started the Whittemores
start proceedings against Dr Judy?! What a strange coincidence!
As to these
notebooks: See e.g. these two Nederlog files from November 2011
First, about the "documents
in the case", that may be quite relevant: At the time I wrote this
in november 2011 I provided the four links that follow below, that in
2011 linked to files which were then available on the WPI website -
whence they since are no longer available. But I have since then put
them on my site - I really do not like to be duped! - and also
linked that in Nederlog, but can't find where I did this, so here they
are again, for those who want to know about those mysterious lab books
- that were taken by Max Pfost on the day Dr Judy was fired, and that
made the WPI start court proceedings against Dr Judy, and that Dr Jamie
and Dr Judy claimed, in text that can be found in my Dr Jamie
and Dr Judy mean very well...,
contain all the secrets, including also the data about dr Jamie's
experiment with ARVs, that she herself does not have, she claimed in
another disappeared blog:
To Opposition To Motion For Preliminary Injunction
1: Affidavit of Max Pfost -
2: Affidavit of Max Pfost -
3: Affidavit of Amanda McKenzie
In any case... the
reason for this brief note is that today I found that at least two
recent X Rx blogs by Dr Jamie Deckoff-Jones have mysteriously
disappeared, without any trace and also without any explanation.
As I said, I don't
want to be duped, flimflammed, flummoxed, lied to or played by public
relations professionals or their manner of prose.
I do not mind people retracting things, but if they do, and it is
material that may be relevant to science or to court cases, I think
they should say why they first published it and then retract it.
And there may be a
later Nederlog today, on Diederik Stapel or on the DSM-5, but that
depends on my health.
Endnote Jan 19 2013: This morning,
unlike yesterday morning, the two posts on the X Rx blog that had
disappeared are back again, with another one, that I wasn't sure about.
I'll list them:
- Jan 10, 2013: Our experience with retrovirals
- Dec 29, 2012: "2013 will be a year of optimism, opportunity and hope"
- Dec 24, 2012: Back to basics
Well... that's better. I do not know whether they are the same, but
they look like what I recall or quoted, and the comments that were
there are there again. I even may write about the ones I did not write
about, but make no promises.