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  July 13, 2012                  
     
me+ME: About my mB12-protocol & Ubuntu

 

For there was never yet philosoper
That could endure the toothache patiently,
However they have writ the style of gods,
And made a push at chance and sufferance.

-- William Shakespeare

This Nederlog contains two brief bits about my mB12-protocol ("m" for "methyl") and  Ubuntu, both in the nature of updates:

       1. Slightly revised mB12-protocol + some remarks
         2. Ubuntu and partitions

But let me start with remarking why the quote of Shakespeare is there and why it is half true. I put it up because, as explained yesterday, I like quotes (aphorisms, witticisms, memorable sayings), and I always liked the first half of the quotation, being myself a phllosopher who also has had bad cases of toothache: Indeed, you do not know what life is like without having been made deeply miserable by it. But the second half, which I had forgotten, is more false than true, in view of the Stoics, Epicurists, Cynics and Buddhists, who all gave suffering a central role in their philosophies. To clarify it for the last I quote:

The Buddha's first sermon after his Enlightenment centered on the Four Noble Truths, which are the foundation of Buddhism. The truths are:

1. The truth of suffering (dukkha)
2. The truth of the cause of suffering (samudaya)
3. The truth of the end of suffering (nirhodha)
4. The truth of the path that frees us from suffering (magga)

Incidentally, this is quite a logical approach, and a sensible one too, in principle (and no, I am not a Buddhist): The main problems in life are pain and suffering, so the main questions about life are about their causes and ways to cure, alleviate, or avoid them.

And since I am at it, here is my own answer, also the summary of my philosophy in four words:

   Think rationally! Act reasonably! 
   (And do not pretend that is easy!)

1. Slightly revised mB12-protocol + some remarks

I have mentioned the mB12 protocol I follow since a year now since a year, and did this the last time here:

      
me+ME:  Qualification on mB12 protocol and M.E. Resources

This got rather a lot of views, somewhat to my amazement. So let me first explain why I put up that file. There are basically three reasons. Here they are.

First, having spend a lot of time the last 2 3/4 years on sites for patients with ME
- far too much, by the results - I have concluded that their average morality is surely not better than that of average men (*), while also, again as with ordinary men, there are some major rotters among them (or among the trolls who pretend to be patients), and I simply do not want to be persecuted with moral or legal claims by average fools or moral rotters.

Second, I am simply not a medical authority of any kind, and while I know some of medicine and some more of physics, chemistry and mathematics, that is not enough to counsel others what to do: I am ill since 34 years, and I can get no relief from medicine or medical men and women, and therefore need other ways to find some relief, if indeed there are such ways - and the mB12-protocol does relieve my symptoms.

Third, what I know a lot about are logic, probability and philosophy of science, and that teaches me that the mB12 protocol I am following is quite hypothetical, and there are many relevant factors that make it hard to judge, and that also may differ for different people - and this includes the fact that a considerable proportion of the people writing on sites for people with ME do not have what I have, so far as they write at all clearly (which they often don't), while I have the disease I have for 34 years now, and have had at least three different medical diagnoses that I have ME or FM (the last because one major part of my symptoms is pain: muscle aches, and the other major part exhaustion).

So I follow this protocol on the same sort of grounds as apply when I take an aspirin if I feel like I have the flue or a serious and annoying cold: I am not certain I have the flue; I am not certain taking an aspirin is causally effective against whatever ails me; I do not know why aspirin works, nor whether there is a better medicine or cure - all I know that more often than not, in my case and others with similar complaints, it seems to help some, or
sometimes even a lot; and whatever it really does or fails to do, if it doesn't really work as hoped, it also doesn't really harm, except financially. (**)

Having said all that, here is the protocol I presently follow, which doesn't differ much from the protocol I follow for four months now, that were a considerably better four months than I had since many years, and that seems to be what allowed me to get and install a new computer (problematic if you are in pain and exhausted all the time, and get no help); get Ubuntu and do rather a lot with that (same parenthetical remark); and indeed physically do more than I could before, for a long time.

Supplement
 
Supplier
 
Contents p/p Totals
 
Pills p/d
Price p/p
Cost
p/d
Unit price
Nr
 
methylcobalamin
aka mB12
Jarrow
 
mB12 5 mg (5000 mcg)
5,000 mcg    1
 
0,60
 
 0,60
35,00
 
60
 
Dibencozide
aka aB12
Country
Life
 
aB12 3000 mcg
 
3000 mcg    1
 
0,40
 
 0,40
 
24,00
 
60
 

 

 
folic acid 500 mcg 200 mcg
 

 

 

 

 
metafolin
aka folate
Solgar 800 mcg 2400 mcg
 
  3
0,28  0,84  28,00 100
Potassium
aka Kalium
AOV
 
200 mg
 
600 mg
 
   3
 
0,16
 
 0,48
 
 16,00
 
100
 
Omega 3 Fish oils Toppharm
 
Fish oils 1000 mg
 
2000 mg
 
   2
 
0,10
 
 0,20
 
 15,00
 
180
 
VM 75
Solgar
Multivitamin with many ingredients
including zinc,
magnesium, vit D, folic acid

   1 0,40
0,40
36,00
90
TOTAL PER DAY            2,92    

The links are to relevant lemmas in Wikipedia - and maybe I should say once again that I do not know whether this is causally relevant to whatever is the cause of ME/CFS or my ailment, and also do not know whether it cures anything: All I am confident of is that it lessens my symptoms - and of that I am confident because more than 120 days in which I felt better (not as bad as normally, but not healthy), where the only thing that could produce that outcome are the supplements I took summarized above (or nearly the same).

Then again, to end the subject, while there is no reason to believe that the above supplements put your health, or what remains of it, in danger, I very probably would not use these supplements if I did not have ME and were healthy, as indeed I also do not take aspirins when I don't have a flue, a bad headache or a serious cold.

2. Ubuntu and partitions

The more I work with Ubuntu - and see e.g. Ubuntu-log started and/or Ubuntu-log: Introduction in case you wonder - the more I like it, but there also are some problems, which in my case have mostly to do with my considerable ignorance about Linux, and with the general lousiness of Windows, but which perpaps also needs some attention of the folks who make Ubuntu.

The problems are that I installed several Ubuntus on my harddisk, which it turns out to be - for all folks without years of experience with Linux - hard to remove, and that it seems as if Windows and Ubuntu compete for the boot section of the hard disk.

The brief of a possibly fairly long and boring story is that I completely lost my Windows 7 after Ubuntu for some reason had taken over the boot section; then reinstalled that, but then could not get the Ubuntu I used back, which I solved by reinstalling Ubuntu, after which I had several Ubuntus, not all fully functional, and a Windows 7 that again is difficult to start up.

In between these summarily sketched stages, I had periods with only partially functioning Ubuntus (the problem being that part of the hard disk and the drives were not accessible) and a partially functioning Windows, and indeed periods with just one of these two.

As is now, I have succeeded in removing some Ubuntu installations, but there still is at least one too many, though the one I work from now has a good amount of disk space, and it can access everything connected to the computer, and it just works.

It is also much more pleasant to work with than Windows, because things are much better integrated and work much better together and Linux just is more stable, more practical, and really a much better OS than Windows.

The problems I had are mostly my own doing: I want too much with too little relevant knowledge (yes, I am human) - for it is very likely that a Linux specialist could have solved my problems quite easily and quite fast.

Even so - having also looked at Ubuntu forums, that are very useful - there are many more folks with these problems, and maybe Canonical - the firm behind Ubuntu - should do something about partitioning and about many installations on the same hard disk, each of which partitions one's hard disk into ever more ever smaller parts. And maybe there should be put some code to enable grub (the program that takes care of installations) to get easier rid of partitions and not to take over the boot section for Windows (except on demand).

Then again, I could work through most of the problems I ran into and get a better install for Ubuntu than I had so far, because it is easy to find documentation (much better organized than Windows, and generally better written than Windows documentation) and because much of Ubuntu and of Linux is really fine - as in this case especially the Backup tool called déjà dup (aka Backup), that is really excellent, and partitioning software called GParted, also very fine.

Just Backup by itself is worth switching to Linux: If you do switch, get yourself an external harddisk with 200 GB or so, and use Backup: It will save you very many problems.

Another reason to want Linux is the updating and installing of programs and of Ubuntu, that is all very well-designed and a pleasure to see and use: Ubuntu comes with lots of updates that all get installed very smoothly, and installing a program you want - if it is in Ubuntu's copious collection - is generally a matter of choosing, clicking, perhaps giving a password, and it installs painless, automatically and well. (***)

It really is a lot nicer to work with Linux, at least if the Linux is Ubuntu: Very nice and very impressive!


(*) May I kindly remind the sadists, the assholes, and the noble Christians and other reliigious folks without self-respect, who try to demean others into social shows of  respecting them that the one thing I am in agreement with them is that man is a flawed, dangerous, often cruel animal, and that at most 1 in 10.000 human beings succeeds in living a life that conforms to their own publicly supported moral norms?

Also, as the Dutch saying is: "Lijden loutert niet" i.e. human suffering does not make human beings better. In fact, by far the most harm done and most suffering caused, is done and caused by unhappy people, who cause others harm and suffering to get even or to get better from themselves, by making another's life, chances, or finances poorer. (That's the secret behind nearly all religious and political acting of ordinary men: Trying to overcome their own unhappiness by making others unhappy.)

(**) Here enters another of those many personal factors I simply cannot judge for others: Apart from whatever causes ME, I have no known other diseases, and my heart, liver, lungs and kidneys seem to be reasonably OK for a man of my age: Were it otherwise, I would have some reasons to be careful with some supplements and some medicines.

(***) Ubuntu has a large collection of programs, that are nearly all free and open source, that should suffice for most anyone. Then again, it is possible you may not find what you want in Ubuntu's copious collection, but on or for another Linux. It has happened to me, and in these cases it turned out I could also easily install it, with installation software Ubuntu does supply, called Synaptic.



                                    
                                    P.S.    
Corrections, if any are necessary, have to be made later.


 

As to ME/CFS (that I prefer to call ME):

1.  Anthony Komaroff Ten discoveries about the biology of CFS (pdf)
2.  Malcolm Hooper THE MENTAL HEALTH MOVEMENT: 
PERSECUTION OF PATIENTS?
3.  Hillary Johnson The Why
4.  Consensus of M.D.s Canadian Consensus Government Report on ME (pdf)
5.  Eleanor Stein Clinical Guidelines for Psychiatrists (pdf)
6.  William Clifford The Ethics of Belief
7.  Paul Lutus

Is Psychology a Science?

8.  Malcolm Hooper Magical Medicine (pdf)
9.
 Maarten Maartensz
ME in Amsterdam - surviving in Amsterdam with ME (Dutch)
10.
 Maarten Maartensz Myalgic Encephalomyelitis

Short descriptions of the above:                

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understa, but nds ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:

7. A  space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.
9. I tell my story of surviving (so far) in Amsterdam/ with ME.
10. The directory on my site about ME.



See also: ME -Documentation and ME - Resources
The last has many files, all on my site to keep them accessible.

 


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