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  May 11, 2012                  

me+ME:  Some nice things:  Methylation-protocol  +  Ubuntu Linux

  • Non ignara mali, miseris succurrere disco.
  • Superanda omnis fortuna ferendo est.
    -- Virgil

Here is some nice news for a change, as per the title:

I do not like to be angry or sad, though I have had plenty of cause for this in my life, indeed more so than the Dutchies I have to survive in the midst of, which I would not do if I were healthy - I mean live in the heaven for morons, mafiosi and degenerate politicians and bureaucrats.

Being ill I have no choice if I want to live, so I have been surviving with ME in Amsterdam and in Holland now for over 30 years nolens volens.

Lately, things have been improving for me:

1. Methylation-protocol

Checking it out I found I mentioned the protocol first in Nederlog almost a year ago:

and after that

and then here

The brief summary is that I embarked in June of 2011 on a variant of Freddd´s methylation protocol, after having found from December 2010 onwards that hydroxy cobalamin helped me sore, and then reading up on that to arrive at two protocols listed on Phoenix Rising.

The protocol I adopted in June 2011 helped considerably, but I had to stop twice with it, and here I should add that my policy with protocols for supplements, with which I have rather a lot of experience since 1984, is generally to stop all or most, and try to return to something like a known base-line, and then try to build up from that to see whether I can find what´s wrong.

I did so in this case as well, after first finding that more than 5 mg of mB12 seems to lead to too little sleep, and then finding that I had ran into the potassium problem: One needs supplementing potassium when following the protocol, as also explained in the two main threads on the B12 protocol on Phoenix Rising

This took me some months to sort out and in the middle of February I added  metafolate again (having stopped that in September) and almost immediately felt better.

Since then I have been gradually improving: I still have the symptoms of ME  (Canada criterions), and still am far from healthy, but I have some more energy and feel considerably better, which allowed me to realize something I had wanted to do since early 2010 and had saved the money for  by then: Buy a new 64 bits computer and install that, in good working order, and with my data from the old 32 bits computer

This I managed to do in the end of March (and simply could not have done the last 7 or more years) and went quite well, although there still are a few loose ends.

There is more on this in the next section, and I finish the present one by saying that I have been now for over 2 months been consistently better - less miserable, less exhausted - than the last 10 years, at least, which is very pleasant, and also have been able to do and been doing quite a lot more than I could do most of the time the last 10 years, these last two months.

I am far from cured, and still obviously ill, and the ME/CFS is much like it has been the last 25 years (that were considerably worse than the first 10 years with it, since I fell ill with Epstein-Barr on January 1, 1979, since when I have been ill), including ups and downs that are difficult to account for, but on average I have been improving slowly the last two months, in spite of doing a lot more each day, most days at least, than I could do on most days the last 10 years.

So this is one bit of quite nice news, at least for me. The brief summary is that

(1) the methylation protocol as outlined by Fred Davis and by Rick van Konynenburg (who have similar but not identical methylation protocols) does work for me, in the sense that it at least improves my condition;
(2) I found it needs a considerable amount of experimenting to surmount problems with lack sleep, lack of potassium, and balance of supplements, but then one can find a lot of relevant information on Phoenix Rising (above links) and on the internet;
(3) I found that in my case I do need for the best results mB12, potassium, metafolate, fish oil, and a good multi-vitamin: Leaving any of these out helps less. The same holds probably for vitamin D and zinc, and may be true of SAMe;
(4) I have no guarantees, certain-sure knowledge, or strong convictions about this, beyond what I wrote on the subject in Nederlog, except for this:
(5) of all the things I have tried since 1984 against my disease this is by far the most effective in helping me, and
(6) there is a fairly good biochemical explanation for it by Rick van Konynen burg Ph.D. mentioned and linked by me here:

And I certainly would have had no new computer without it - to the joys of which I turn now.

2. Ubuntu Linux

I bought a completely new 64 bits computer 6 weeks ago, which came with Windows 7 Home Premium preinstalled, and no alternatives that the shop could or would offer.

The advantage of buying such a new computer is that it should easily work these days, what with Plug&Play and most things standardized, which is rather different from how it used to be in the 1980ies, when I started personal computing, as explained here,

that also articulates an idea I still hold, mentioned in the title, and indeed with a lot more justification since I got Linux working on my new computer.

This I got done yesterday: I installed Ubuntu Linux 12.04, which you can find out more about here:

I first installed this on an USB stick as explained here, a week ago

This was quite easy to do with this fine utility

I liked what I saw on the stick, and yesterday decided to use that to install it  on my hard disk, which was done in 20 or 30 minutes - since when I have mostly been on Ubuntu Linux (<- Wikipedia) where this Nederlog also is written, because Ubuntu Linux is very much better, more pleasant to use, faster, and much more safe than Windows 7 or Windows XP, or Windows anything:

          • it is free and open source, as computing should be
          • it comes with an enormous amount of excellent free and open source
            software that is for the most part as good as or better than what
            Windows offers - for pay, with secret source
          • it is very much more pleasant to work with than Windows 7 or Windows
            XP: Things make sense; the help is good; the desktop is much better
            than Windows 7´s desktop
          • it has very many extras that Windows doesn´t have
          • it is faster than Windows 7
          • it can use the data on the Windows partition, and indeed run at least
            some of the Windows software, namely on WINE
          • it is a LOT safer than Windows
          • it is a much better OS even apart from its being free and open source
          • it has many more features and possibilities than Windows has
          • it is decidedly easier and more pleasant to use than Windows, in any
            shape that I have used (Win 95, 98, XP and 7).

Here is - by the way - an interesting comparison of Windows 8 and Ubuntu 12.04 (with more links with similar conclusions):

So... I strongly recommend that, if your computer and health are up to it, to  try Ubuntu Linux: This is how computing should be, and wholly apart from that, it also is a lot more pleasant and powerful to use than is Windows  in any shape or form.

One last remark: I run Ubuntu as a 32 bits system on my 64 bits computer. There is a 64 bits Ubuntu edition, but since Ubuntu recommended to use the 32 bits edition (that´s likely to have been much better tested), I used that. It does not look quite as crisp as does Windows 7 on 64 bits but it looks bettter than Windows XP on my old 32 bits computer, on which I intend to do the same: Install Ubuntu Linux on it.

And since this 64 bitter is not much faster than the 32 bitter, although it does have a lot more memory, it is a safe assumption Ubuntu can be installed on any 32 bit system that runs Windows: All you need is sufficient disk space.

So this is another bit of really good news for me: While the Linuxes I tried 10-12n years ago didn´t work on the vanilla PCs I then had, it does work very well indeed on the vanilla PC I bought 6 weeks ago, which must be thanks to a lot of hard and fine work by a lot of really intelligent people.

Very nice! Highly recommended!

Corrections, if any are necessary, have to be made later.


As to ME/CFS (that I prefer to call ME):

1.  Anthony Komaroff Ten discoveries about the biology of CFS (pdf)
3.  Hillary Johnson Th Why
4.  Consensus of M.D.s Canadian Consensus Government Report on ME (pdf)
5.  Eleanor Stein Clinical Guidelines for Psychiatrists (pdf)
6.  William Clifford The Ethics of Belief
7.  Paul Lutus

Is Psychology a Science?

8.  Malcolm Hooper Magical Medicine (pdf)
 Maarten Maartensz
ME in Amsterdam - surviving in Amsterdam with ME (Dutch)
 Maarten Maartensz Myalgic Encephalomyelitis

Short descriptions of the above:                

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understa, but nds ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:

7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.
9. I tell my story of surviving (so far) in Amsterdam/ with ME.
10. The directory on my site about ME.

See also: ME -Documentation and ME - Resources
The last has many files, all on my site to keep them accessible.

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