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  Apr 9, 2012                  

me+ME: Some good videos relating to ME and the DSM-5

This is another small Nederlog that in fact covers rather a lot of work, though in this case it was mostly pleasant.


1. Dr. Rich van Konynenburg's videos (from Sweden)
2. Dr. Thomasz Szasz videos (from England)

So indeed I have been watching a lot of videos lately, what with the new computer and a slightly less bad health.

1. Dr. Rich van Konynenburg's videos (from Sweden)

I have mentioned repeatedly that I have gotten a bit better on one of the two methylation-block protocols. In my case, this is Freddd's, which you can find out more about here, both links being threads on Phoenix Rising:

This is similar to Rich van Konynenburg's protocol and theory, except that Freddd and Rich disagree about gluthathione, of which considerably more in the links that follow.

First I should say that in my case the main reasons that I chose Freddd's rather than Rich's protocol are mostly chance and ignorance: I did want to experiment with supplements of B12; started with just hydroxycobalamin in December 2011 when I first read about the availability of sublinguals with high doses of these in Holland; found that mildly helpful; and then switched to Fredd's protocol that centers around methylcobalamin while avoiding gluthatione because there was a lot about Freddd's on Phoenix Rising that I had dipped into when it turned out that B12 helped some, and some of that squared with my own experiences (as indeed it did later).

But I have so far not seriously dipped into the theories behind either protocol, being most interested in something that helps, if only because (1) I need some help to get some more energy so as to read up on what may be giving me more energy and (2) I know enough of biochemistry to understand the basic ideas and also because (3) the fact that the actual biochemistry involved is quite complicated.

It turns out that dr. Rich van Konynenbyrg has been lecturing in the last months of 2011 in Sweden on his theory, and this has been put on video and made available on the internet, though not - that I saw - on Youtube.

Actually, it is a lot of video, namely some three hours spread over three videos, and I have so far only seen the first 80 minutes, that comprise the first video, but then that is quite interesting, and indeed is so far the best scientifically inspired theory about ME/CFS that I have seen or heard.

Here is the basic reference for the first video:

ME 1 Richard van Konynenburg

You get a long list of the things dr. Van Konynenburg's theory explains towards the end of this first lecture, including why more women than men get it, but unless you are a medical doctor or a biochemist, it makes sense to see all of it:

He is a good and clear lecturer and the video is also well done. I had no problem viewing it, but I also have a new computer, and it may help to know that the html in the last link offers a choice (out of three) in the right half of the screen that in any case contains the Swedish word "bildkvalitet": The higher this is, the better the image and also the slower the rate of transmission. I used the middle one - ca. 700 Kb per second - that gave a good enough image + sound.

The lecture is good and clear, and comes with a lot of slides, that are quite helpful, and that you do not need to try to write down or to remember, because there are two pdf-files made available from the same link, of which this is the first:


Actually, it is a lot of video, namely some three hours spread over three videos, and as I said I have so far only seen the first 80 minutes, but these were quite interesting and helpful, and sketched what I consider to be the so far most plausible theory about the aetiology of ME/CFS that I have read, heard or seen. (*)

More about this in a later Nederlog.

2. Dr. Thomasz Szasz videos (from England)

I mentioned dr. Szasz repeatedly in the context of psychiatry and ME, e.g. here:

DSM-5: Thomas Szasz's ideas about psychiatry

In case you're interested, here is a series of talks by dr. Szasz from 2007, when he was 87 and spoke in a centre of excellence in Birmingham, England.

Again, it is quite a lot of video, indeed not about ME/CFS either, but about dr. Szasz's ideas about "mental illness" and psychiatry. I found it quite interesting, except for the questions from the audience, that have the merit of being summarized in text, so that you can skip them (in case you happen to be gifted and impatient):

I should also say that while the videos seem to be good quality, I did not succeed in making the display of it larger than  the palm of my hand, which means that you must be really interested to watch all of this.

Indeed, if you have ME/CFS and are not much interested in either dr. Szasz or in psychiatry, this may not be very interesting for you. I have provided the links because it is effectively a lecture by dr. Szasz to an audience of British mental health-care professionals, for the most part, and because I got recently interested in his views about psychiatry, after having seen how much intentional harm psychiatrists have done to people with my disease, mostly to further their own incomes and professional standing, at the costs of the health of many ill persons. (**)

Then again, if you have ME/CFS and have enough energy, or if you are interested in ME/CFS, I think you should try to see the videos with dr. Van Konynenburg: It is a quite clear exposition of what looks like a very sensible and really scientific theory.

(*) This does not say very much - but at least it is proper science; it makes logical and scientific sense; it is clearly presented, with lots of evidence and references - specifically here:

Documents by Rich Van Konynenburg: Parts 1-7

- and unlike the pseudo-scientific rot Wessely, Sharpe and White produce it can be falsified by the experimental facts (rather than be withdrawn by a committee of APA-worthies, which is how "science"" is done the APA-way, as is politics in Maoist China), while it may be correct or mostly correct, and also comes with a sensible treatment plan.

(**) This is fraudulent, immoral and unmedical, for which reason I have come to the conclusion that it is legally, morally and medically  very desirable that a perverse pseudoscience like psychiatry should be removed from medicine and science, as soon as possible, in the interest of everybody who is not a psychiatrist: It is quackery of the worst and most immoral kind.

Corrections, if any are necessary, have to be made later.


As to ME/CFS (that I prefer to call ME):
1.  Anthony Komaroff Ten discoveries about the biology of CFS (pdf)
3.  Hillary Johnson The Why
4.  Consensus of M.D.s Canadian Consensus Government Report on ME (pdf)
5.  Eleanor Stein Clinical Guidelines for Psychiatrists (pdf)
6.  William Clifford The Ethics of Belief
7.  Paul Lutus

Is Psychology a Science?

8.  Malcolm Hooper Magical Medicine (pdf)
 Maarten Maartensz
ME in Amsterdam - surviving in Amsterdam with ME (Dutch)
 Maarten Maartensz Myalgic Encephalomyelitis

Short descriptions of the above:                

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understa, but nds ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:

7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.
9. I tell my story of surviving (so far) in Amsterdam/ with ME.
10. The directory on my site about ME.

See also: ME -Documentation and ME - Resources
The last has many files, all on my site to keep them accessible.

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