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Nederlog
  Apr 1, 2012                  
     

me+ME: New computer + my mB12 protocol


My new computer now has been mostly installed, and seems to work as it should. Also, I got part of the files of the old one to the new one, including those for my website, so this is the first Nederlog I write on the new one.

Sections

1. The new computer
2. My mB12 protocol

1. The new computer

My new computer, that I'll call 64 because it is a 64 bitter, unlike the previous one that I shall call 32 because it is a 32 bitter, is completely new, unlike the previous one, that I bought second hand after the one before that, also 32 bits, got hacked in May of 2009, when I had little money and little health, and had to make do as best as I could with what little I had.

In fact, I got the money for it - very little or nothing at all for the bastards that rule Amsterdam and the University of Amsterdam, who probably get these things, or considerably better, from the tax money, for that's how things are arranged in Holland, drugsmafia paradise of Europe created and run (in Amsterdam) by Dutch Labour (Dutch: Partij van de Arbeiders voor Bouterse) - by very careful saving from the $ 10 a day I have to live on.

In fact, I had the money for over a year now, but I simply lacked the health to get it done, because I have to do all I do by myself, without any help, I suppose because I write and speak the truth as illustrated in my previous paragraph.

Anyway... I got it done, and here it is, and what is it like?

It is 64 bits, runs Windows 7, and the most striking thing about it is the screen, which is huge: Effectively twice the screen of the 32, and much sharper and considerably faster.

In fact, I think it is about the size of the "desktop" that belonged to the desk I got at school when 4.

I do have to get used to it - this is my ninth day with it - but it certainly is impressive and pleasant, and also helps in getting things done, for it is very convenient to be programming in one window and have the documentation in another besides it, both as large as each was on the 32, that only allowed viewing one of the two at that size. And the resolution is considerably better also.

The computer itself is faster, has 8 times as much memory as the 32, and a harddisk 15 times as much, so Moore's Law still applies - and the last Wikipedia link also shows a picture of the first computer I used daily, from 1987 onwards, an Osborne Portable Computer built in 1982 (though that got soon replaced by an IBM PC-clone, for me).

To set out my own experience with computers in a list, with the years referring to my experiences and only a few highlights listed:

        • 1972: Some little experience with a mainframe. (Hand in punch cards;
          wait several days for the printed output).
        • 1980: Apple II with Apple Basic, that a friend had bought, and indeed
          could do little else than run its variant of Basic, and save data to an
          audio cassette. It was quite impressive: One could really program on
          this one.
        • 1987: Osborne 1. From the link I see it probably was an early model,
          since it came with WordStar and with SuperCalc, which were both
          quite impressive, but I do not recall dBase II on it, though I have
          used that (and/or dBase III Plus) on a PC from 1988 onwards:
        • 1988: IBM PC-clone, to be followed by some 6 or 7 more PC's of
          various brands, of which the new 64 is the latest. Note that all of
          this was text-based rather than graphical:
        • 1996: A PC capable of running Windows 95, that also allowed me
          to start my site. Windows 95 was quite sensational in terms of
          pixel-based rather than character-based screens, but also quite
          prone to crash: Blue screen of death. It still exists in Windows, but
          until in
        • 1999: I got Windows 98 I saw it several times daily. This was better
          but still crashed several times a week.
        • 2002: I got a new computer with Windows XP (soon updated to Pro)
          that for me was the first stable Windows, and also the first Windows
          with decent graphical images
          (sufficient for Youtube, say).
          This or the next one got eventually  hacked in 2009, after which I got
          a replacement, and now
        • 2012: This new 64 bitter with Windows 7.

It follows I used Windows XP for about ten years. It's the only OS by Microsoft that I found decent to good, because it mostly worked, hardly ever crashed, and had fairly good graphics.

If I judge computing in terms of non-crashes, speed, and resolution this is again a considerable step forward compared to Windows XP, and certainly the effectively double high resolution screen is a considerable step forward.

I suppose I will write more about working with Windows 7 on a large screen, but for the moment I have only 8 days of experience, so I can't really say much that is of use to others, except that it is definitely an improvement, and so far quite pleasant and quite impressive, and that I am not sorry I made the change.

Then again, I also intend - health permitting - to get Linux going on this one, and indeed hope to switch to that, if at all feasible, because it is safer, open source and free, and I am much in favour of these things.

2. My mB12 protocol

I think by far the most probable explanation for the facts that I could get the new computer installed and that I have been passably well (not the same as: "well" or "healthy") the last month is that I finally arrived at a fairly good mB12 protocol for me. And here "for me" is the main term, for what works will depend on you, and is not the same for all across the board.

I have mentioned my protocol several times in Nederlog since July 2011, when I first started. The last link goes to the longest file, including a table, which I will review below.

Since that review will be geared to Dutch prices, here is, to start with a link to a file on Flimecfs

This also has a table, with prices, and provides suppliers and Fredd's proposed start-up with the protocol, for persons with ME/CFS. Here are two additional links,l the first with very many entries, running since July 2009, both on Phoenix Rising:

I have myself run into three kinds of problems, that also have struck others trying the protocol - which is fairly nice, in the sense that it is at least confirming evidence that others have similar reactions or problems - namely these:

1. Lack of sleep with 10,000 mcg mB12

This I got quite soon after increasing the dose from 5000 mcg to the double, and it also quickly subsided when going back to 5000 mcg.

2. Increasing misery with too little potassium

This I got next, and got sorted out after increasing potassium.

3. Problems with metafolate and/or folate

The metafolate I quite early diagnosed as apparently the main culprit in making my brain feel very foggy, as this disappeared when I used less or none, so for several months, during which I was experimenting around the potassium problem, I took none, and started experimenting with taking it by the end of February last, when it emerged it seemed to give more energy. My guess is that the unpleasant effects mostly depended on the folic acid, that is added to many supplements, and not easy to avoid. The workaround is to take multi-vitamins and b-vitamins that both include folic acid only on alternate days or every third day, and on that day leave out the metafolate, and take only one of either B-complex or multi-vitamins. So far this seems to work well.

So here is my basic table of what I take daily and what it costs, where I should note that in the column ""pills per day" fractions are entered because I take several multi-vitamins only on alternate or third days, as explained under point 3. above, and I should also note that I do take some more - notably B6 - that's not listed and is not taken regularly either. The prices are rounded off and as they are in Amsterdam: The costs in the US are probably lower. Also, the Totals is recalculated to average per day:

Supplement
 
Supplier
 
Contents p/p Totals
 
Pills p/d
Price p/p
Cost
p/d
Unit price
Nr
 
methylcobalamin
aka mB12
Jarrow
 
mB12 5 mg (5000 mcg)
5,000 mcg    1
 
0,60
 
0,60
35,00
 
60
 
Dibencozide
aka aB12
Country
Life
 
aB12 3000 mcg
 
1500 mcg    0.5
 
0,30
 
0,15
 
24,00
 
60
 

 

 
folic acid 500 mcg 200 mcg
 

 

 

 

 
metafolin
aka folate
Solgar 800 mcg 1600 mcg
 
  2 0,28 0,56  28,00 100
B-Right b-complex Jarrow  
 
  0.25
0,28 0,07  28,00 100

 

 
B1 25 mg
 
12.5 mg
 

 

 

 

 

 

 

 
B2 25 mg
 
12.5 mg
 

 

 

 

 

 

 

 
B3 25 mg
 
12.5 mg
 

 

 

 

 

 

 

 
B5 100 mg
 
50 mg
 

 

 

 

 

 

 

 
Panthetine 25 mg
 
12.5 mg
 

 

 

 

 

 

 

 
B6 pyridoxine HCl 25 mg
 
12.5 mg
 

 

 

 

 

 

 

 
B6 pyridoxal 5-phosphate 10 mg
 
5 mg
 

 

 

 

 

 

 

 
B12 methylcobalamin 100 mcg
 

  50 mcg

 

 

 

 

 

 

 
Folic acid folate 400 mcg
 
200 mcg
 

 

 

 

 

 

 

 
Biotin 300 mcg
 
150 mcg
 

 

 

 

 

 

 

 
PABA Choline Inositol
 

 

 

 

 

 

 
Potassium
aka Kalium
AOV
 
200 mg
 
1200 mg
 
   6
 
0,16
 
 0,96
 
 16,00
 
100
 
Omega 3 Fish oils Toppharm
 
Fish oils 1000 mg
 
3000 mg
 
   3
 
0,10
 
 0,30
 
 15,00
 
180
 
VM 75
Solgar
Multivitamin with many ingredients
including zinc,
magnesium, vit D, folic acid


0.25 0,36
0,09
36,00
100
TOTAL PER DAY            2,75
   

That is considerably less money than when I started, and I have been doing quite well on it - comparatively to how I did before, to be sure, and not compared to healthy folks - the last month, during which I did considerably more than any month the last few years, at least, also without relapses.

A few remarks on the protocol

I am and have been listing the above because I have what has been diagnosed as ME/FM/CFS by several medical specialists and GPs, which in my case (and that of my ex-wife, similarly afflicted), started with Epstein- Barr in the first days of 1979, and namely because it seems to help me.

In case you probably have ME/CFS (which you should take up with medical doctors: If you have something else that shares symptoms with ME/CFS it may be dangerous and may be helped, and needs to be found) you might try this, but if you do the very least you should do is read most of the links I provided.

If you try it, I make no promises, for you may not have what I have, and I found myself that the B12-protocol needs some experimenting and some balancing. Then again, none of these supplements is dangerous, but you should be aware that with the protocol several have run into low potassium, which is not healthy, so you should be aware of that.

Also, it helps if you experiment; if you keep records of what you take each day and how you feel; and if you know some real science (especially to help you read background literature, and interpret your doctors' sayings, that in my experience have been rarely informed and often dishonest, but then I am a psychologist with good basic scientific knowledge and a scientific outlook).

Two final remarks.

First, if you try it as outlined, and reached the doses I take, while it does nothing for you for 2 or 3 months, it probably does not work for you - or at least that is what I would conclude if I were you. (I have been taking supplements since 1984, but the present protocol is more effective than anything I tried, and most I tried did nothing except cost money, so far as I could tell.)

Second, I do not know whether it cures anything. It may, but it may also alleviate some unpleasant consequences of a cause it leaves unchanged. In fact, probably nobody knows, because nobody knows the cause or causes of ME/CFS, and there is much to be learned about the body and about supplements.



P.S.
Corrections, if any are necessary, have to be made later.
-- Apr 3, 2012: Corrected some typos and some entries in the table of
the protocol (no major differences).
 

 

As to ME/CFS (that I prefer to call ME):
1.  Anthony Komaroff Ten discoveries about the biology of CFS (pdf)
2.  Malcolm Hooper THE MENTAL HEALTH MOVEMENT: 
PERSECUTION OF PATIENTS?
3.  Hillary Johnson The Why
4.  Consensus of M.D.s Canadian Consensus Government Report on ME (pdf)
5.  Eleanor Stein Clinical Guidelines for Psychiatrists (pdf)
6.  William Clifford The Ethics of Belief
7.  Paul Lutus

Is Psychology a Science?

8.  Malcolm Hooper Magical Medicine (pdf)
9.
 Maarten Maartensz
ME in Amsterdam - surviving in Amsterdam with ME (Dutch)
10.
 Maarten Maartensz Myalgic Encephalomyelitis

Short descriptions of the above:                

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understa, but nds ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:

7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.
9. I tell my story of surviving (so far) in Amsterdam/ with ME.
10. The directory on my site about ME.



See also: ME -Documentation and ME - Resources
The last has many files, all on my site to keep them accessible.
 


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