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Nov 27, 2011               

me+ME: Varia - crisis, sickness, ERV

There was no Nederlog yesterday, because I got sick and depressed from what I read on and from ME-forums and blogs, and because I always must make do with little energy and cope with pain. Here are some remarks on several subjects

1. Crisis and craptalking morons as leading politicians
2. Sickening and depressing shit
3. An argument for ERV

1. Crisis and craptalking morons as leading politicians

This could have been an item of its own, in the crisis series, but for the moment I leave it here.

As I've said before in Nederlog, I don't have a TV since 1970, and indeed have seen very little TV since then, simply because almost every time I saw TV I found it very stupid. (Yes, I know this is not invariably so. Even so, it's not made for me, and most of it is plainly directed at persons of very average education and brainpower. If I thought it worth the trouble, I'd have TV: It's not that I have a moral or religious argument against it, although I do believe it tends to be stupefying. It's simply that I find it stupid and boring for the most part.)

Anyway... I have now since about 2 years fairly fast internet that enables my watching Youtube, and that means I know a little more about the daily cultural, artistic and political fare most Westerners consume by the bucketful, each day, for several hours, as if human life exists to evolve a better type of couch potato, and so I learned some more, especially about the US.

Indeed, as I have mentioned, I like George Carlin, Bill Maher, Jon Stewart and The Young Turks, and I have seen and heard quite a few US politicians, which is an experience that doesn't contribute to my faith in mankind, or indeed womankind, and leaves me rather worried about the still ongoing economical crisis.

I suppose I am one of the many who has been rather or sorely disappointed by president Obama, indeed also as a speaker and debater, for there are far better ones, but then I still think that, unlike his predecessor, he is a well educated and intelligent man, who may mean well.

However... if you want to totally loose any faith in mankind, womankind or the US, all you need  - provided you're not the sort of moron the following folks built their careers on - is a few doses of GOP candidates should suffice: There was Sarah Palin, indeed a class 5 moron, to quote Bill Maher, completely ignorant as regards elementary geography or knowledge of international politics or her own US constitution, but then she seems a bright light compared to Rick Perry (can't learn lists of more than two items); Herman Cain (seems not to know anything, not even that China has atomic weapons since the 1960ies, except how to force dependents to give him sex, if the US news can be believed); and - check it out: 22 seconds! - Michelle Bachmann, a Christian religious nut who also declaims, as if the Bible and God prescribe it, literally: "If anyone will not work, neither should he eat".

She is a goat, clearly, or so the dear Lord told her himself, but then she probably only pretended having read the Bible. As the Lord says to Michelle:

"Depart from me, ye cursed, into everlasting fire, prepared for the devil and his angels: for I was ahungered, and ye gave me no meat: I was thirsty, and ye gave me no drink:"

Proof of Ms Bachmann's very goaty qualities, at least according to The Book Of Books (King James version, Matthew 25:)

The Judgment of the Nations 31  When the Son of man shall come in his glory, and all the holy angels with him,then shall he sit upon the throne of his glory: 
32  and before him shall be gathered all nations: and he shall separate them one from another, as a shepherd divideth his sheep from the goats:
33  and he shall set the sheep on his right hand, but the goats on the left.
34  Then shall the King say unto them on his right hand, Come, ye blessed of my Father, inherit the kingdom prepared for you from the foundation of the world:
35  for I was ahungered, and ye gave me meat: I was thirsty, and ye gave me drink: I was a stranger, and ye took me in:
36  naked, and ye clothed me: I was sick, and ye visited me: I was in prison, and ye came unto me.
37  Then shall the righteous answer him, saying, Lord, when saw we thee ahungered, and fed thee? or thirsty, and gave thee drink?
38  When saw we thee a stranger, and took thee in? or naked, and clothed thee?
39  Or when saw we thee sick, or in prison, and came unto thee?
40  And the King shall answer and say unto them, Verily I say unto you, Inasmuch as ye have done it unto one of the least of these my brethren, ye have done it unto me.
41  Then shall he say also unto them on the left hand, Depart from me, ye cursed, into everlasting fire, prepared for the devil and his angels:
42  for I was ahungered, and ye gave me no meat: I was thirsty, and ye gave me no drink:
43  I was a stranger, and ye took me not in: naked, and ye clothed me not: sick, and in prison, and ye visited me not.
44  Then shall they also answer him, saying, Lord, when saw we thee ahungered, or athirst, or a stranger, or naked, or sick, or in prison, and did not minister unto thee?
45  Then shall he answer them, saying, Verily I say unto you, Inasmuch as ye did it not to one of the least of these, ye did it not to me.
46  And these shall go away into everlasting punishment: but the righteous into life eternal.

I rest my case (*) - but if this manner of people, I mean Bachmann, Palin, Cain, Perry, is judged fit by their party to go into the race for becoming the president of the United States ?!?!, some things have gone very wrong, especially if these folks get a sizable chunk of the popular vote, which alas they do.

2. Sickening and depressing shit

Here we have someone speak up against the torrents of bullshit spouted by the likes of V99, wholly anonymously of course, on dr. Deckoff-Jones's blog, where most don't oppose the bullshit, so I was relieved to see a few with some moral decency and humanity there, under the heading "Anonymous", but one even with a personal name

Anonymous said...

Okay. A patient without financial means wrote this: "@Andrea: Hope you enjoyed the tenofovir. Too bad the rest of us will never get any"

Two posters think this remark is that of a "professional victim" or a "bully."

Then Anonymous, 10:37, responds:

"Calling a patient who does not have the financial means to make that happen for him or her a "professional victim" or a bully" is despicable. It's the kind of stuff that most likely comes from the Whittemore camp ... It's ironic that they would try to turn the table and paint Andreas as the victim...it's lame and it's unforgivable."

I am not in the Whittemore camp. I do not know Andrea. I have had ME/CFS for 30 years and I live far below the poverty level. But I would never make a remark like that. I might be angry with Andrea's parents, and vent my anger at them. But even if it comes from a place of emotional and physical pain, guilt-tripping Andrea--trying to inflict another patient with stress and guilt--is indecent and malicious. You don't have to be "in" with the Whittemores to think so. It may be understandable but it's not right, it's not humane, and it shames us all as a community.


Right you are, Terrylin! It is indecent and malicious - and the same indecent and malicious person surely lacks the courage to sign his or her real name and address to his or her sick prose.

3. An argument for ERV

On a possibly more pleasant note:

I have repeatedly said that I like Abbie Smith's ERV-blog, which I hadn't seriously looked at until October of this year, simply because - unlike scores of patients with ME, apparently almost all without any scientific competence - I know I am not competent in virology, and tend to believe anyway that one should leave real scientists to do their own thing (which includes criticizing each other's stuff, but on the basis of relevant knowledge, rather than on some personal interest in a specific outcome, if done in a rational and scientific spirit).

Anyway, Ms Smith was virtually unknown to me until two months ago, since when I read part of her blog, which I like. Today I did something else I did not do before: I looked up a video of hers, in which she appears speaking, indeed lecturing the audience at

    The Oklahoma Free Thought Convention 2011 (Youtube, 41:47)

She is lecturing to a lay audience on virology and immunology, and she does it well. (And I am a free thought and free speech person, which is why I looked at this video, although it is not itself about free thought and free speech.)

And - she could easily be my daughter, age-wise, and my ex and I fell ill before she was born - since she is not only a smart but also an attractive young woman, I thought I'd mention that aspect of her, so that those in dire need of a female saint may compare Ms Smith's intellect and charms with those of St. Judy, the somewhat fallen saint of Our Community Of pwME, as the phrase is.

Maybe the comparison is not quite fair, but then most men, like most women, are not very smart, and are easily swayed by looks.

Also, it's an interesting talk - and, speaking of saintliness,  Ms. Smith also did not steal any lab books.

(*) I earlier quoted from Martin Gardner's - "The Whys of a Philosophical Scrivener", discussing the idea that people are to end up in "everlasting fire" as punishment, and so again, because I agree:

"If Jesus did indeed teach such a damnable doctrine, it is the strongest possible reason for not believing him to have been God in human flesh." (p. 301, Oxford Paperback, OUP, 1985)

Then again, Michelle Bachmann pretends to be a Christian and must be a goat if the Bible is to be relied upon.

Corrections, if any are necessary, have to be made later.
-- 30 nov 2011: Corrected some typos and unclarities and put in a link.


As to ME/CFS (that I prefer to call ME):

1.  Anthony Komaroff Ten discoveries about the biology of CFS (pdf)
3.  Hillary Johnson The Why
4.  Consensus of M.D.s Canadian Consensus Government Report on ME (pdf)
5.  Eleanor Stein Clinical Guidelines for Psychiatrists (pdf)
6.  William Clifford The Ethics of Belief
7.  Paul Lutus

Is Psychology a Science?

8.  Malcolm Hooper Magical Medicine (pdf)
 Maarten Maartensz
ME in Amsterdam - surviving in Amsterdam with ME (Dutch)
 Maarten Maartensz Myalgic Encephalomyelitis

Short descriptions of the above:                

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:

7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.
9. I tell my story of surviving (so far) in Amsterdam/ with ME.
10. The directory on my site about ME.

See also: ME -Documentation and ME - Resources
The last has many files, all on my site to keep them accessible.

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