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Oct 5, 2011           

me+ME: Patricia Carter explains everything!

Again continuing from yesterday, entitled "It's quite a MEss!", I could write more about the mess, and mention

- Annette Whittemore's statement
  here in a link to dr. Jamie Deckoff-Jones blog, because   
  the original is on Facebook, that I avoid
- dr. Michael Snyderman's ideas
  likewise on dr. Jamie Deckoff-Jones blog, with a statement
  he was helped by anti-retrovirals (he may be, but it still is
  anecdotical rather than conclusive evidence)

I could mention considerably more but instead I want to reproduce two solutions to it all, from two Leaders Of Our Community, namely Patricia Carter, who leads "Our Community" on the MECFS-forum, and Cort Johnson who leads "Our Community" on the Phoenix-forum.

Incidentally: Collectively, these two forums for people with ME have a little over 5000 members, most inactive, and probably with a few hundreds - certainly not only genuine patients, but in fact mostly aliases, for which reason one often can't say who really is what on those forums, which is most convenient for all manner of trolls - who write on one or both of them with some regularity, but this is just by way of some factual background. (Also, I am myself no believer in virtual "communities" made up by anonymous aliases, but that's just my opinion.)

1. Patricia Carter explains everything

First then, a statement that was yesterday given on the MECFS-forum that the owners Patricia Carter and "CFS_since_1998" have excluded me from since July 2010, and that I can't access myself, at least not from my own computer.

Here are the main reasons why I get to see this when I try to log in from my own computer:

What are the reasons for this? Well... I protested against an insane person spouting Wessely's pet delusions and aspersions of people with ME/CFS, served in an utterly crazy sauce of neo-nazism or something much like it, in July 2010, noting in the kindness of my psychologist's heart that the guy is probably mad:

Unsere ME-Fuehrerinnen und ME-Fuehrers

That was probably very bad of me, but then I also committed the major offense of protesting against a stupid and immoral plan of Patricia Carter to poison the bloodbanks:

On infecting and storming blood banks 
Bloody stupid hysteria + lying

There is more I could list, such as

Neurasthenia, media, blooddonors, trolls

but that's only to illustrate my own repeated "I told you so!" and to add some flourish to the following explanatory message from Patricia Carter aka Wildaisy, owner of the MECFS-forum I am banned from since the summer of 2010 - and there is a psychological remark by me following it, but you can first do your own thinking. This is from October 4, 2011:

  • Administrator
  • Hero Member
  • Posts: 4726
Re: Gerwyn scotches rumour re VIPdx/BWG
Reply #23 on: Today at 03:50:35 PM
Gerwyn is a coward who left the forum so he would not have to face up to his lies when the truth came out.  He has partnered with Annette Whittemore to steal Judy Mikovits' grants, which will end HGRV research.  Annette doesn't care one whit about patients. 


If Annette, with Gerwyn's help, is able to alienate patients from Judy Mikovits, it will make it much easier for her to steal Judy Mikovits' grants.  THIS IS HER GOAL.

DON'T YOU THINK THE VIP DX XMRV TEST WOULD STILL BE AVAILABLE IF IT WERE ANY GOOD?  You know they want the money.  Why would they stop selling the test unless they had to.  Use your own brain.  Think for yourself. 

FOR ANNETTE WHITTEMORE, THIS IS ABOUT MONEY.  FOR YOU AND ME, IT IS ABOUT SURVIVAL!  If Annette is able to steal Mikovits' grants, we can say goodbye to any hope of an effective treatment in our lifetimes.

Is this what you want?  Do you love Gerwyn enough to die for him?

I sure as hell don't.  I do my own thinking.  I hope you do too.
Last Edit: Today at 04:04:51 PM by Wildaisy

I suppose I am too low a form of life for Patricia to consider or answer, but since I am also a (n ill, non-practising) psychologist, of sorts, here is a tip for her, in the hope it reaches her before she loses all her marbles: Dearie, please see your GP! There are pills that will help you with this! Really! Trust me, if you can!

Anyway... that's a kind of solution offered by the leader of one forum.

2. Cort Johnson terminates an era

Here is another kind of solution offered by the leader of the other forum, Cort Johnson, dated today - and I provide the link:

Mikovits Era Ends - The WPI Makes the Right Move In Dismissing Chief Researcher: An Editorial

This is a lot more sensible, and seems fairly balanced.

I suppose there are some who may complain that dr. Mikovits gets the problems, looses her job, and will get and indeed is being stigmatized (see below), and that she meant well and worked hard, but I agree she was not the right woman for the job of Research Director of WPI - and that is quite apart from the precise merits or demerits of the paper in Science in 2009.

Then there are some who may - and do - complain that Mrs. Annette Whittemore is at fault, either because they agree with Wildaisy, or because they hold she should have acted differently than she did. Well, maybe - but there is am apt Dutch ironic proverb: "The best steering men are on the land" - hindsight tends to be 20/20.

Later the same day, from "Nature", October 5, 2011, more about dr. Mikovits:

P.S. Corrections, if any are necessary, have to be made later.


As to ME/CFS (that I prefer to call ME):

1.  Anthony Komaroff Ten discoveries about the biology of CFS (pdf)
3.  Hillary Johnson The Why
4.  Consensus of M.D.s Canadian Consensus Government Report on ME (pdf)
5.  Eleanor Stein Clinical Guidelines for Psychiatrists (pdf)
6.  William Clifford The Ethics of Belief
7.  Paul Lutus

Is Psychology a Science?

8.  Malcolm Hooper Magical Medicine (pdf)
 Maarten Maartensz
ME in Amsterdam - surviving in Amsterdam with ME (Dutch)
 Maarten Maartensz Myalgic Encephalomyelitis

Short descriptions of the above:                

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:

7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.
9. I tell my story of surviving (so far) in Amsterdam/ with ME.
10. The directory on my site about ME.

See also: ME -Documentation and ME - Resources
The last has many files, all on my site to keep them accessible.

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