Oct 3, 2011
me+ME: Exit dr. Mikovits?
There was interesting news this morning in my mailbox, and it probably is not good news for patients with ME, or least not for that subset of them who invested hope or money in the WPI and in dr. Mikovits.
It's a bit difficult to say, though, since at this point in time the news comes from only one source, which is dr. Jamie Jones's blog. Here is a link to the relevant blog, dated October 2:
Here are three bits from the beginning of that blog:
Note these are in the order they are in the original, but I have excised some text, as indicated by ellipses.
Also, it's none to clearly stated, while dr. Jones is a party to what she calls "a divorce at the WPI", and is personal friends with dr. Mikovits.
She also is - in case you missed that - a medical doctor who has ME/CFS, as does her daughter, who decided to use anti-retroviral medicines, in the hope this would help, and who claimed some successes with that.
Finally, at the moment dr. Deckoff-Jones is the only source for this "divorce at the WPI", and seems to act on her own.
Now let me consider the three parts I selected.
(1) The first seems to say Mrs. Annette Whittemore has stopped the research at WPI, and seems to be dismissing dr. Mikovits - or at least that seems a fair interpretation of what the first part says.
Others agree - and there are two threads about it on Phoenix Rising, of which this seems the main one:
And meanwhile it says in that thread that the WPI's Facebook pages (that I never visited, since I dislike Facebook) have been closed "for updates/changes".
I suppose there is more behind it but one relevant consideration is that it is, at least since the recent article in Science, by Cohen and Enserink, far from easy for the WPI to attract funding for research.
(2) The second is part of my reason for interpreting the first as I did, and is unfortunately metaphorical, in that it talks of "divorce".
But it is clear in stating that dr. Mikovits stopped doing research, and I suppose the term "divorce" is used because personal relations went sour.
(3) The third sounds noble, but it would seem to me that much of the "pain and confusion" patients suffer from at the moment is mostly their own doing: They chose to believe something that probably is not so. That they chose to do so is quite understandable on a human level, but that does not make it a rational choice.
As to dr. Deckoff-Jones's
That seems to me not quite what follows from dr. Mikovits' statement about the results of the Blood Work Group she helped producing:
That is not worded as being about the tests used and sold by the VIP Dx, but seems to be worded as being about the tools used by the WPI, from which - it seems - the tests offered by the VIP Dx were derived.
Anyway... this probably will get clearer in the coming days.
One possible outcome that I hope will be avoided is that dr. Lipkin's research can't go through as planned, as I understood it, if the WPI keeps its research labs closed.
It would be nice to know what really happened, if only to squelch speculations.
Meanwhile, let me note this is from 15.20 local Dutch time, and I put in the time because I may get some more information today, that then will end up in this file later today.
Interesting times we live in - and locally the stockindex also radically fell...
Update at 21.25 local time: Update, from Amy Dockser Marcus at the Wall Street Journal:
Here is the first paragraph:
And here the ostensible reason:
As my terms "ostensible reason" and Ms. Dockser Marcus own last paragraph - not reproduced here - show, there may be more to it, and there may also be a disagreement about funding: Whether the WPI retains the government's funding for research, or whether dr. Mikovits takes it with her.
P.S. Corrections, if any are necessary, have to be made later.
As to ME/CFS (that I prefer to call ME):
Short descriptions of the above:
1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:
7. A space-
and computer-scientist takes a look at psychology.
See also: ME -Documentation and ME - Resources
The last has many files, all on my site to keep them accessible.
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