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Nederlog
Aug 15, 2011           
Professor Hooper responds to the BBC



I had promised myself two weeks of holiday with Nederlog, but the economic crisis interfered. And professor Wessely and his acolytes got wild on accusations that death threats have been made to professor Wessely, without any real evidence given to those claims by professor Wessely, which is his usual modus operandi: Claim things, and imply or assert they are true because he is, he says, a medical specialist, and of course means well, like all medical doctors invariably do.

Here is professor Hooper's response to a BBC programme. The title links to my source on Phoenix Rising:


Professor Hooper's response to BBC Radio 5 ME programme

This is being sent on behalf of Professor Hooper. Permission to repost.

Dear Victoria

I rang 5 Live, on Friday July 29th, to join in the debate on ME following the item on Radio 4 that was followed-up on 5 Live. (http://www.bbc.co.uk/iplayer/console/b012nlcv)

I briefly stated my concerns, qualifications, etc; 5 Live phoned back after about 5 minutes but almost immediately I was put on hold with the programme running in the background but no communication from anyone on the programme. After almost 30 minutes I finally had to put the phone down to attend to visitors whom I had kept on hold for your programme. The lack of any contact from anyone on the programme team I found extremely disappointing not to say discourteous.

The programme concentrated on the sensational claims that death threats and warnings had been issued against some psychiatrists who carried out research into CFS but no objective evidence was presented, only the impression of one participant, paediatrician Dr Esther Crawley.

These alleged threats and warnings actions were described as the abuse of scientists.

However, nothing was mentioned about the abuse of patients by these psychiatrists and others who promulgate the view that CFS/ME is a mental and behavioural disorder in defiance of the WHO classification of the illness, for example, sick patients sectioned under the mental health act and confined to locked wards,
children and young people forcibly separated from their parents, and parents accused of Munchausen's-Syndrome by Proxy.

The evidence is in the public domain, http://www.sophiaandme.org.uk/ with full medical records for Sophia Mirza, http://www.sophiaandme.org.uk/documents%20index.html . Ean Proctor’s story describes positively medieval actions that have more in keeping with the Inquisition than modern medicine (see “Skewed” by Martin Walker ISBN0-9519646 and “Denigration by Design” by Margaret Williams who also describes the case of Child X and Wessely’s role in the story, http://www.meactionuk.org.uk/Denigrationbydesign.pdf See also “Voices from the Shadows”, a recently issued trailer for a DVD that tells the story of very sick ME patients.

The vested interest of many psychiatrists dealing with ME/CFS who are deeply involved with the insurance industry was exposed in the Gibson Parliamentarian’s report that asked for an investigation of these links. Nothing has been done to investigate this unsatisfactory situation. Consequently, the false diagnosis of ME/CFS as a mental illness has resulted in sick patients being denied financial support and benefits, a matter of great concern following the introduction of new benefits legislation.

The recently published International Classification of ME, July 2011, was ignored. One member of the international team was Dr Nigel Speight, a paediatrician specialising in ME who has been involved in many cases where compulsion and abuse by doctors required legal intervention.

The cardinal feature of ME, post-exertional malaise (post-exertional neuroimmune exhaustion), was not mentioned by anyone in either programme, rather the word fatigue was used misleadingly to describe ME. The numerous and well documented clinical signs (neurological, cardiovascular, endcrinological and immunological) were not mentioned. Nor were the deaths arising from ME, especially that of Brynmor John MP who collapsed and died following prescribed/advised physical exercise.

There was no mention of the effective treatments of ME reported in the biomedical literature (some 5000 papers) that have been repeatedly ignored by Professor Wessely and his followers.

If the adverse, even vilifying, attack on people with ME is to be broadcast as fact and the science of the illness ignored, the BBC should at least properly research any programme before it is put out. In the interests of natural justice and transparency, so beloved of our politicians and organisations such as the GMC and NICE, then the whole story must be told.

We have recently called for the retraction of the PACE trial study published in the Lancet and await a response to our detailed criticism of this paper that is a travesty of science, a tragedy for patients, and is tantamount to fraud. Good science is being denied/ignored in order to promulgate the unsustainable psychiatric view of ME.

Please accept this letter as one of complaint for a very biased and uninformed programme and please act accordingly to put the facts of this complex, chronic and debilitating illness in the public domain in a programme worthy of the BBC.

Malcolm Hooper
[..]
for more information/writings see www.meactionuk.org.uk
 

I quite agree, but then indeed there is much wrong with the way medicine is practised in the UK, especially but not only with regards to ME/CFS.

Then again, I cannot rationally explain the lack of rationality and reason in the treatment of ME/CFS, and the toleration of the fraudulent pseudo-science of wacky shrinks like Wessely, except on the hypotheses that

  • the medical authorities in the UK - the professional organizations, and the institutions that should control the rationality of what medical scientists propose in the wayn of 'evidence based medical science' do not know the methodology and philosophy of science they should know - see:

    On natural philosophy, philosophy of science, and psychiatry
    More on Freud and psychiatry -

    that a real scientist like professor Hooper does know, but currently is and has not been taught to medical people, and/or
     
  • the medical authorities in the UK do not care for rational scientific discussion, but seek to settle things by authority and bureaucratic manipulations, and do not care for the consequences of pseudo-science and psychiatric flim-flam to really ill people, on the pattern of "If Wessely turns out to be mistaken and the hundreds of thousands of patients ill with ME have Sophia Mirza's and Lynn Gilderdale's type of disease" - and meanwhile tens or hundreds of thousands have miserably died from lack of help and lack of economical support: you're crazy, professor Wessely, White and Sharpe say so: "Arbeit macht frei!" or die, for these are hard times, and Our Economy needs support, and shrinks have never been shown wrong - "too bad: that's the way medical science progresses: over the corpses of its ill-treated patients - we wash our hands in innocence."

And indeed I am also amazed by the kind and style and content of the rot that moral freaks and intellectual frauds like Wessely can get away with major bullshit while it all is evidently - to anyone who knows real science - intellectual rot, evidently moral rot, and evidently only in the interest of the psychiatric quacks who spread their shit,


-- From Dr. Speedy's Blog: Click image

with applause from ignoramus journalists:

and also amazed by the ease a man with as ludicrous a pseudo-science as Wessely and co propose as "evidence based medical science",  indeed in a firmly postmodernistic style of lying and posturing

can find support from journalists who should know they do not know anything relevant in the way of science or medicine, and also know nothing relevant about ME/CFS ruining their own lives, health, chances, careers, and social standing, but prefer to spread the very discriminating and denigrating lies of Wessely and his mates:

Then again, as I have been saying and writing for some 35 years now

the primary, secondary and university levels of education have been going down very much since the babyboom-generation took power in the universities and political parties, all with the effect that I am the only Dutchman ever to have been removed as a student - already then with ME! - from a faculty of philosophy of a Dutch university for protesting the low level of education, there and in schools, since over 45 years

(which is why, in the end, I got a - brilliant - M.A. in psychology, rather than philosophy, or also that) after which both the University of Amsterdam and the City government of Amsterdam made it impossible to get the little money required to help me with my physical illness: I had protested their publicly acclaimed wisdom and policies, and was not found worthy for a humane treatment, but very worthy of much abuse.

Even so: please be it noted that a Dutch Parliamentary Report in 2008 has shown I was right! But then, there were no excuses, no replies, no rewards, nothing for me but more discrimination and slander, while some degenerate from Dutch Labour got the praise, probably mostly for succeeding in obscuring Dutch Labour were the most responsible for the rot that destroyed the Dutch universities and school system, both of which did very well, internationally and comparatively, from 1865-1965.

But the rot is everywhere, alas

and it is there mostly on purpose: It makes money for some, it makes careers for some, and most who do not know of the disease stand by, do nothing, and don't much care, just as most reacted in the 1930-ies in Germany:

In Germany they came first for the Communists, and I didn't speak up because I wasn't a Communist. Then they came for the Jews, and I didn't speak up because I wasn't a Jew. Then they came for the Trade Unionists, and I didn't speak up because I wasn't a trade unionist. Then they came for the Catholics, and I didn't speak up because I was a Protestant. Then they came for me, and by that time no one was left to speak up for.
 -- Rev. Martin Niemoeller

In the Brave New World in which I live it is to be feared that soon the ill will be rounded up to do penance for being ill, on command of the madmen who have taken over the APA and the asylums, in the Holy Name of the Holy Bible called DSM-5:

(A)ccording to Erewhonian law, offenders are treated as if they were ill whilst ill people are looked upon as criminals.
   -- Samuel Butler

That is the Soviet-style world postmodern psychiatry wants and tries to realize

to help those in power, to help themselves to patients' incomes, or to satisfy their sick enjoyment of personal power in the name of medical science, but in fact based on massive pseudo-scientific fraudulence and quackery.

Soon everyone who is not rich who will have an unexplained or partially explained illness will be considered insane rather than ill, although those denigrating and discrimating this way will insist - smiling like villains - that psychiatric illnesses are illnesses too, and that if you are unfit to work, you are unfit for social help or income, and fit for brainwashing and forced labour to cure you from your delusions:



P.S. Corrections, if any are necessary, have to be made later
-- Aug 17, 2011: Made some corrections.


As to ME/CFS (that I prefer to call ME):


1.  Anthony Komaroff Ten discoveries about the biology of CFS (pdf)
2.  Malcolm Hooper THE MENTAL HEALTH MOVEMENT: 
PERSECUTION OF PATIENTS?
3.  Hillary Johnson The Why
4.  Consensus of M.D.s Canadian Consensus Government Report on ME (pdf)
5.   Eleanor Stein Clinical Guidelines for Psychiatrists (pdf)
6.  William Clifford The Ethics of Belief
7.  Paul Lutus

Is Psychology a Science?

8.  Malcolm Hooper Magical Medicine (pdf)
9.
 Maarten Maartensz
ME in Amsterdam - surviving in Amsterdam with ME (Dutch)
10.
 Maarten Maartensz Myalgic Encephalomyelitis

Short descriptions of the above:                

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:

7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.
9. I tell my story of surviving (so far) in Amsterdam with ME.
10. The directory on my site about ME.



See also: ME -Documentation and ME - Resources
The last has many files, all on my site to keep them accessible.
 


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