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Jun 23, 2011           

me+ME: ME/CFS Memorial - another excellent video by LaurelB 
 

LaurelB is an American woman in her late thirties with severe ME. Although she has severe ME, she writes well, and has a fine blog:
She also made a several good video about ME Now she did it again, mostly about Lynn Gilderdale and Sophia Mirza (<- video interview with Sophia Mirza's mother) but indeed about very many more with serious or severe ME/CFS who died miserably, because they were really ill, but medical doctors and psychiatrists insisted they were not entitled to help, except sectioning, as in Sophia Mirza's case, because they were claimed to have made it all up, which was done because they had a medically unexplained disease, and psychiatrists, insurance companies, and state bureaucracies insisted, as the APA intends to do with the DSM-5, that those with medically unexplained diseases have... a psychiatrically explained disease.

They do this, not because this is a moral, humane, scientific or legal stance, but because it will save the state bureaucracies and insurance companies lots of money if genuinely ill people are denied help, and because their sense of morality and science are so sickly twisted that what saves money to insurances or governmental institutions, or makes money for psychiatrists, "therefore" is 'good evidence based science', in their opinion.
It is bullshit - and as professor Frankfurt said about bullshit and bullshitters - see  On Bullshit (<-Wikipedia):|
 
"When an honest man speaks, he says only what he believes to be true; and for the liar, it is correspondingly indispensable that he considers his statements to be false. For the bullshitter, however, all these bets are off: he is neither on the side of the true nor on the side of the false. His eye is not on the facts at all, as the eyes of the honest man and of the liar are, except insofar as they may be pertinent to his interest in getting away with what he says. He does not care whether the things he says describe reality correctly. He just picks them out, or makes them up, to suit his
purpose.
"
And "his purpose", on the part of those bullshitting professionally, as bureaucrats, insurance PR folks, or psychiatrists, is generally to make money or to obtain power, and by such posturings as will catch, manipulate and delude the public, regardless of truth, morality, science, law, human decency or empathy.

Indeed, it the case of ME/CFS it can be sold to the public, who in vast majority are neither ill nor know much about ME/CFS, and is done because
to insurances, governmental institutions, and psychiatrists are morally corrupt or totally indifferent to the horrors they cause in ill people's lives (and some indeed enjoy doing this too) that include treating them so horribly they are manipulated into suicide: This saves or makes money, so it must be good, on the level and in the minds of those who do it, because they make a good income by destroying other people's lives, chances, rights, incomes, reputations and human integrity, while those whose lives are totally destroyed usually are anonymous and seriously ill people, who are too ill or too poor to bring their case to court, or indeed to the public.

What may happen to anyone with severe ME, with or without help by others, because of this greed and dishonesty is outlined here:

P.S. Corrections, if any are necessary, have to be made later.



As to ME/CFS (that I prefer to call ME):


1.  Anthony Komarof Ten discoveries about the biology of CFS (pdf)
2.  Malcolm Hooper THE MENTAL HEALTH MOVEMENT: 
PERSECUTION OF PATIENTS?
3.  Hillary Johnson The Why
4.  Consensus of M.D.s Canadian Consensus Government Report on ME (pdf)
5.   Eleanor Stein Clinical Guidelines for Psychiatrists (pdf)
6.  William Clifford The Ethics of Belief
7.  Paul Lutus

Is Psychology a Science?

8.  Malcolm Hooper Magical Medicine (pdf)
9.
 Maarten Maartensz
ME in Amsterdam - surviving in Amsterdam with ME (Dutch)
10.
 Maarten Maartensz Myalgic Encephalomyelitis

Short descriptions of the above:                

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:

7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.
9. I tell my story of surviving (so far) in Amsterdam with ME.
10. The directory on my site about ME.



See also: ME -Documentation and ME - Resources
The last has many files, all on my site to keep them accessible.
 


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