May 4, 2011


me+ME: Varia about the site, ME/CFS, Holland and Auschwitz


In Germany they came first for the Communists, and I didn't speak up because I wasn't a Communist. Then they came for the Jews, and I didn't speak up because I wasn't a Jew. Then they came for the Trade Unionists, and I didn't speak up because I wasn't a trade unionist. Then they came for the Catholics, and I didn't speak up because I was a Protestant. Then they came for me, and by that time no one was left to speak up for.
  -- Niemoeller.

Yesterday's file about medical sadism wasn't downloaded much, and I agree it is not for the faint-hearted. Then again, I wrote and uploaded it because I think it is the bitter truth and it is relevant if one wants to understand what happened and happens to persons with ME/CFS, and indeed also what happened and happens in the world, for the subjects of sadism and malice explain rather a lot quite well, as explanations go, that cannot be explained as well, or at all, by other assumptions.

Anyway... if you want to read or think about less unpleasant things, I quite understand and mostly agree and today I have only some remarks on various topics, though I will have to say some that touches on sadism and is important for persons with ME/CFS living in the US.


1. About the site
2. ME/CFS and receiving benefits in the United States
3. Dutch National Commemoration of WW II
4. What there is to commemorate

1. About the site

These are just a few brief remarks for those who care about the site (yes, there are some except me):

Yesterday's file got today a few minor corrections and clarifications, and a few more links I had forgotten. Also, I rectified a problem with the file of May 1, that I uploaded in the first instance without the proper name (according to the schema I use). It is here - and is the first file on medical sadism with that title on the site - and now is correctly named.

Also, the folks who miss the assembly reference on my site, and have arrived here: The explanation why I removed it is here, and included a link to a set of files by somebody else who gives a similar reference, on a site that, unlike mine, is only about assembly.

2. ME/CFS and receiving benefits in the United States

There is a useful commercial US site about ME/CFS and health supplements called ProHealth, that also has a forum (that I rarely visited and am not a member of) and that also has at least one mailing list that I do receive, and that sometimes has interesting and useful information about ME/CFS or supplements related to it.

It also tries to sell you supplements, but - so far as I can see - it does this in a nice way, while the firm is owned and run by a man with ME/CFS, which are three reasons I have no problem with it, though I never used it to buy supplements, which I can get easier in Holland.

Today I received the following

that seems to me of considerable importance for any US citizen with ME/CFS and some form of disability allowance, and which starts as follows:

The great news is, you are having a good day. You got out of bed and went outside for the first time in weeks. The bad news is, you were having a good day and went outside and walked right into the field of a video camera being used by an investigator working for the disability insurance company. 

From the moment that you file a disability claim, information gathering begins, from reviewing medical records and interviewing your neighbors to videotaping your activities. They are gathering evidence in an effort to deny your claim.

and which ends thus

• A disability insurance claim immediately opens the possibility of surveillance and investigation.

• If your claim involves being unable to travel to get to work, you may be videotaped if an investigator sees you driving or traveling.

• If you call the insurance company from a phone not located in your home, Caller ID records can be used to prove that you are able to travel.

• Think like an adversary. BE CYNICAL and on the defense.

Your neighbors may be interviewed, family members may be called with seemingly innocent questions.

Claimants must be mindful of their activities while in the claims process and while benefits are being paid.   

In summary, disability insurance companies will use investigation techniques that present no-win situations, so it is important to know what to expect.

Being prepared for the investigation that is likely to follow filing a claim for a potentially disabling but ‘invisible’ condition like Chronic Fatigue Syndrome (ME/CFS) or Fibromyalgia can be helpful.

For me, that is totally unethical, should be legally forbidden (secret videotaping), and those who do it hereby receive my gratis psychological diagnosis: Only sadists like to do these things.

So... if you live in the US and have ME/CFS and depend for your survival or for the maintenance of what remains of your health on disability benefits, you have been warned and should read the above link to be informed about the risks you run.

3. Dutch National Commemoration of WW II

Today is the Dutch National Commemoration of WW II, that I never attend, for reasons I explained in Dutch some years ago:

It's mostly A National Show Of Hypocrisy, but then again many commemorations are, and there are also some who genuinely care, and not just show off and show themselves to further their career and protect their social status.

Last year there was a rather serious incident: Some insane person started screaming; lots of people panicked (though not Queen Beatrix, who behaved admirably); and tens of people got wounded in the panick, many because they got caught with their feet in the metal barriers that were surrected for crowd control - but got toppled easily in the panick, and then caught many.

The Good Dutch News that reached me yesterday was that ... this year the gaps in the barriers have been made wider.

4. What there is to commemorate

As I just said, and explained earlier in Dutch, most of the commemoration is little else than a national exercise in Dutch Pride, which is not very appropriate with regards to WW II, as six times as many Dutchmen went into the S.S. as into the Resistance, and more than 1% of the population was arrested and gassed, for reason of being of an inappropriate race and because the others mostly collaborated.

Then again, not everybody collaborated, and not everybody was exterminated, and in case you didn't see it, here is a reference that won't make you feel better - it shouldn't - but quite well explained what there is to commemorate

also because these days in Holland some 25% of the lesser gifted tend to agree with the artificially platina blond Führer Wilders of the PVV aka "The Party for Freedom", whereas it in fact it is neither a party but a group, or gang, with that Leader, nor for "Freedom" but, as The Leader said repeatedly, "to put foreigners, especially muslims, in camps, so as to be able to put them on transport".

Incidentally, the vast majority of my academic baby-boomer generation - who made their university careers by pretending they were marxist revolutionairies and I was "a fascist" because I committed the public crime of saying that I was not a marxist (having marxist parents and grandparents who belonged to the very few Dutchmen who were in the real Dutch resistance) and that I considered Peirce (<-Wikipedia) a greater philosopher than Marx (<-Wikipedia) - are these days (having arrived, and a lot to loose) nearly to a man very bravely VERY silent about Mr Wilders, who loves comparing muslims to fascists but hates it if others do the same to him, and who has followers who are not beyond harassment and violence, and lawyers who specialize, most profitably, in defending mafia grandees and him.

"So it goes...", in Holland. (*)

(*) "So it goes..." is a Kurt Vonnegut quote, from Slaughterhouse Five (<-Wikipedia) which is - among other things - about the Bombing of Dresden in World War II (and Vonnegut's book is science fictional, rather than historically accurate).

Ah yes... since I am almost the only to protest the decline in education and the universities in Holland, and almost the only to protest the way drugs are 'tolerated' illegaly in Holland, to the vast benefit of corrupt mayors, bureaucrats, policemen and the mafia (I say, since 1969: legalize, legalize, legalize - IF you want to protect the civilian population rather than the drugs mafia: It is NOT legal, THEREFORE very profitable and dangerous, thanks to the last 41 years of Dutch governments and parliaments), I must conclude my differences from the rest of the Dutch are mostly genetical - but then I have been called "a fascist" for saying I thought intelligence is so as well, in the University of Amsterdam, by those who made a career in it.

"So it goes...", in Holland.

P.S. Corrections, if any are necessary, have to be made later.

As to ME/CFS (that I prefer to call ME):

1. Anthony Komaroff

Ten discoveries about the biology of CFS (pdf)

3. Hillary Johnson

The Why

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf)
5. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

6. William Clifford The Ethics of Belief
7. Paul Lutus

Is Psychology a Science?

8. Malcolm Hooper Magical Medicine (pdf)

Short descriptions:

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:
   "it is wrong always, everywhere, and for anyone, to believe anything upon insufficient evidence".
7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.

    "Ah me! alas, pain, pain ever, forever!

No change, no pause, no hope! Yet I endure.
I ask the Earth, have not the mountains felt?
I ask yon Heaven, the all-beholding Sun,
Has it not seen? The Sea, in storm or calm,
Heaven's ever-changing Shadow, spread below,
Have its deaf waves not heard my agony?
Ah me! alas, pain, pain ever, forever!
     - (Shelley, "Prometheus Unbound") 

    "It was from this time that I developed my way of judging the Chinese by dividing them into two kinds: one humane and one not. "
     - (Jung Chang)


See also: ME -Documentation and ME - Resources

Maarten Maartensz (M.A. psy, B.A. phi)

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