April 5, 2011


ME: Some good news: NIH sponsored ME/CFS workshop


   "The very reasoning which sets out to destroy the ideas of objective truth and absolute value imposes political correctness as absolutely binding, and cultural relativism as objectively true."
   -- Roger Scruton (*)

Yesterday I wrote the first part on John Searle's

which also caused today's quote, since it is relevant to the debate, and logically quite correct, and also a point that I was somewhat amazed and disquieted to find that hardly any Dutchman who discussed pomo was capable of seeing or - if they did - of sensibly discussing it: The forces of prejudice and propaganda at work, in such intellects as are pomo Dutch academic intellects.

But this is presently not my subject, which is that this Thursday starts a two days scientific conference - and I quote: "Sponsored by The Office of Research on Women's Health,
National Institutes of Health (NIH)
In collaboration with The Trans-NIH ME/CFS Research Working Group" with the title, also quoted and linked

This is good news because it has many speakers with a high reputation, either as biomedical scientist or as patients' advocate, or both: The list of speaker includes the following - and I only list those I know of:

  • Anthony L. Komaroff, M.D., Harvard Medical School
    Leonard A. Jason, Ph.D., DePaul University
    Harvey J. Alter, M.D., Department of Transfusion Medicine, Clinical Center, NIH
    John Chia, M.D.
    , EVMED Research
    Judy A. Mikovits, Ph.D., Whittemore Peterson Institute
    John M. Coffin, Ph.D., National Cancer Institute, NIH
    Francis S. Collins, M.D., Ph.D., Director, National Institutes of Health (NIH) 
    Kathleen C. Light, Ph.D., University of Utah
    Nancy Klimas, M.D., University of Miami, Miller School of Medicine
    Fred Friedberg, Ph.D., State University of New York, Stony Brook
    Lucinda Bateman, M.D., Fatigue Consultation Clinic, Salt Lake City
    K. Kimberly McCleary, CFIDS Association of America
    Kenneth J. Friedman, Ph.D., Castleton State College
    Patricia Fero, M.E.P.D., Wisconsin ME/CFS Association, Inc.
    Mary M. Schweitzer, Ph.D., MCEAS, University of Pennsylvania

This is quite hopeful because it contains the best biomedical researchers of ME/CFS; because it contains patients' representatives like Pat Fero and Mary Schweitzer, who have ME themselves, because it is supported by the NIH with its director Francis Collins present and a speaker, and because it has an agenda that mercifully excludes the psychobabblers and indeed also uses what I consider presently the best term to refer to the disease (or group of similar diseases): ME/CFS. For background see my ME - Resources.


(*) Because I have had extensive experiences with being judged guilty by association, I remark that while, like Hazlitt, I admire Burke, I am not a conservative, as is Scruton . In terms of well-known but vague distinctions and terminology, I suppose that politically I am a classical liberal: See Mill's "On Liberty", with my extensive comments. See also my Bureaucracy Plan and my  Democracy Plan, both of which probably would have had Mill's approval, and which have the advantage of addressing real and fundamental problems without an utopian agenda.

P.S. Corrections, if any are necessary, have to be made later.

As to ME/CFS (that I prefer to call ME):

1. Anthony Komaroff

Ten discoveries about the biology of CFS (pdf)

3. Hillary Johnson

The Why

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf)
5. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

6. William Clifford The Ethics of Belief
7. Paul Lutus

Is Psychology a Science?

8. Malcolm Hooper Magical Medicine (pdf)

Short descriptions:

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:
   "it is wrong always, everywhere, and for anyone, to believe anything upon insufficient evidence".
7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.

    "Ah me! alas, pain, pain ever, forever!

No change, no pause, no hope! Yet I endure.
I ask the Earth, have not the mountains felt?
I ask yon Heaven, the all-beholding Sun,
Has it not seen? The Sea, in storm or calm,
Heaven's ever-changing Shadow, spread below,
Have its deaf waves not heard my agony?
Ah me! alas, pain, pain ever, forever!
     - (Shelley, "Prometheus Unbound") 

    "It was from this time that I developed my way of judging the Chinese by dividing them into two kinds: one humane and one not. "
     - (Jung Chang)


See also: ME -Documentation and ME - Resources

Maarten Maartensz (M.A. psy, B.A. phi)

        home - index - top - mail