February 19, 2011


ME: PACE-Trials and human degeneracy


Repeat of my opening with pictures + quotes of yesterday, because I like the quotes and Hazlitt's picture:


If mankind had wished for what is right, they might have had it long ago. The theory is plain enough; but they are prone to mischief, "to every good work reprobate."  William Hazlitt

The most important thing when ill is to never lose heart. Vladimir Lenin

Man is a toad-eating animal. The admiration of power in others is as common to man as the love of it in himself: the one makes him a tyrant, the other a slave. William Hazlitt.

As to my liking the quotes and pictures....

Here's a little more on the Hazlitt quotes, that explain a lot, by implication, including much if not all about Lenin's failings and failures:

If mankind had wished for what is right, they might have had it long ago. The theory is plain enough; but they are prone to mischief, "to every good work reprobate."   
   (William Hazlitt)

I think this is quite true, and illustrate the reasons for "plain enough" and "prone to mischief" by four more favourite quotes of mine, one by Hazlitt:

Enjoy and give pleasure, without doing harm to yourself or to anyone else - that, I think, is the whole of morality.

I see the better and approve of it, and follow the worse.

"Stupidity and egoism are the roots of all vice."

"Vice is man's nature: virtue is a habit - or a mask."
   (Hazlitt, Characteristics)

And I quoted:

Man is a toad-eating animal. The admiration of power in others is as common to man as the love of it in himself: the one makes him a tyrant, the other a slave.
    William Hazlitt.

That's one more reason to explain the statements of Hazlitt's first quote, incidentally from his "On The Pleasure of Hating":

Not only is ordinary man weak, stupid, ignorant, egoistic and hypocritical - he is totalitarian, and the easy dupe, the willing executioner, the soldier, the informer and the enthusiastic audience for those in power, in religion, in politics, and elsewhere, for most of these vices are based on human innate shortcomings, if caused by personal weakness, egoism, duplicity, love of ease or pay etc.

Two excellent books about the subjects here briefly and by quotes touched upon are Jung Chan's "Wild Swans" (very informative about totalitarianism, and how this works in practice, not only in China, for again the underlying causes are human-all-too-human) and Christopher Browning's "Ordinary men".

The only solution I see, if mankind gets as far, is in On a fundamental problem in ethics and morals - and those who protest probably do not know much of human history, which is, in Gibbon's words (adapted from Bayle, it seems):

"History is little else but the register of the crimes, follies and misfortunes of mankind"

There is more, and there have been some extra-ordinary men and women who made much of that more, but it is, amidst the many lakes and rivers of needlessly spilled blood, centuries upon centuries of slavery, the oceans of popular cultural shite for the masses, the ordinary men's proclivities for bread and circuses, where fellow men are thrown ad bestia to enjoy the audience, for totalitarianism, persecution and cruelty in the name of the highest ideals, and for being duped, deceived, used and abused as toys by the worst, a small part of large amounts of human suffering, caused by egoistic desires, ignorance, and stupidity.

Having come this far, to what's in my title, that concern the socalled PACE-trials, that got reported in The Guardian with this title, subtitle and opening four paragraphs - and I have adjusted the size of title, while you'll find the original under the link:

Study finds therapy and exercise best for ME

Chronic fatigue syndrome study finds more people recover if they are helped to try to do more than they think they can

The biggest-ever study of treatments for ME, also known as chronic fatigue syndrome, has found that more people recover if they are helped to try to do more than they think they can rather than adapting to a life of limited activity.

The findings of the study, published in the Lancet, are clear, but attracted immediate controversy. One of the biggest patient groups, Action for ME, said it was surprised and disappointed, while others denounced the trial in its entirety.

The strongest opposition comes from patient groups who believe there is a conspiracy by the psychiatric establishment to brand ME/CFS "all in the mind" a mental illness that will respond to psychological therapies. They insist it is a physical disease, which probably has a viral cause. The claim last year from US researchers that a viral trigger had been found caused enormous excitement, and many refuse to believe the subsequent studies that concluded lab contamination was to blame.

Doctors involved in the new trial say they are looking only at treating the symptoms, not the cause. Their aim, they say, is to help the many people they see who are unable to go shopping, see friends or do ordinary active things.

I have ME for the 33rd year, without any help but dole. I am an M.A. in psychology with a brilliant degree in it, and a B.A. in philosophy. My ex-wife and I fell ill in the third month of the first year of our studies...

... for more see e.g. ME in Amsterdam if you read Dutch, or almost all of Nederlog 2010 if you read English, and indeed also see ME -Documentation and ME - Resources.

So to turn to the quoted piece in The Guardian:

Once again I am told by a journalist, in this case Sarah Bosely, reported to be far from objective and unbiased about ME, with a particular regard for professor Simon Wessely, in the end on the authority of psychiatric frauds and pseudoscientists like Wessely and White, the latter the editor of the PACE-study, that I am myself, like my ex-wife, and like millions of others with similar complaints and the diagnosis ME/Fibromyalgia, which I have since 1988, so I must be somebody who is, but direct implication, scarcely sane, and presumably too lazy, too weak willed or too malingering to behave like an appropriately healthy citizen: I must have "a dysfunctional belief system", and must have "thought myself ill". Thus professor Wessely. (**)

For this reason - after the first ten years with an undiagnosed disease, mostly spend studying or in bed - having a neurological disease according to medical doctors who know or knew me well, I am denied a whole host of human and civic rights, and treated, regarded and spoken about in the media and by bureaucrats effectively as if I am an Untermensch, a subhuman.

Apparently I am not fully human, and have not been these 33 years, for I do not get the human rights, the help, the assistance, the support of "my Dutch community": What I get is discrimination, slander, defamation, denigration by bureaucrats, brought about by frauds, pseudoscientists and moral degenerates - for that's how I see it, with Jung Chang:

It was from this time [for me: having ME in Amsterdam and reading what Reeves, Jones, Wessely, White, Bleijenberg and Van der Meer had wrought from sick sadism, moral degeneracy and betrayals of the science and practice of medicine] that I developed my way of judging [human beings] (*) by dividing them into two kinds: one humane, one not.

In my case this also has to to with my experiences with ME in Amsterdam and at the University of Amsterdam, in fact governed by bureaucrats from the Labour Party and by students from the Communist Party when I studied there, in "a democratized university", where nearly all professors collaborated, if they were not already members of these parties, and had thereby become eligible for the professorate, while I protested postmodernism and politicized science, and was thrown, ill with ME, from the university and prevented taking an MA in philosophy, namely for publicly saying and writing things in defense of science and civilization like this: 39 Questions about the qualities of education and government in the Netherlands (I was called "a fascist" and "a terrorist", and removed); for published opinions like this: Spiegeloog-columns (now mostly translated into English).

For my fundamental take on this and indeed on ME and what is in ME in Amsterdam see Three documents: My father's story + my story + my Human Rights.

But I agree with Jung Chang, whence indeed - and I wrote that before I read her: it's a coincidence of ideas and values, in reaction of extensive experiences of ordinary men's inhumanity to men - my On a fundamental problem in ethics and morals aka "Mencius on human qualities", namely because I was inspired by Mencius, in fact (and humanity has nothing to do with being Chinese or not, indeed).

Now there are, as said, the PACE-trials, as they were called, edited by the psychiatric fraud and pseudoscientist White (who probably also is willing to insist he can cure homosexuality and  stomach ulcers with his Fraudian witchcraft called CBT, just as Freud and other psychiatrists claimed about psychoanalysis, which was their CBT), and for the moment will not write about it myself, except for a brief diagnosis that follows, but quote two others who commented on it.

I put the main point in bold red in the hope it may set some journalist on the way to rational thinking about ME:

The whole PACE-rot is what one gets if one "researches" all "fatigued" individuals as if they suffer from the same disease, conveniently labelled Chronic Fatigue Syndrome, in wilfull denial of the WHO, that calls it ME since 1969, and insists it is a neurological disease, and then applies the results to a subgroup with a serious neurological disease.

This is pure fraudulence, pure pseudoscience, and it has been done and is being done on purpose. See: On natural philosophy, philosophy of science, and psychiatry, in particular the end: Psychiatry is pseudoscience since its inception, and the reason is that there just is not the requisite knowledge of the brain to support almost any of it.

Note that the point in red bold letters is very simple, and should be evident to journalists, yes even to psychiatrists:

There are quite a few people who are fatigued, for quite a while also, and for all manner of possible reasons; there are quite a few people who have ME as stated by the WHO, as a neurological disease, since 1969, and as defined and described by the Canadse Criterions in 2003; and the one group is not at all the same as the other group. Indeed, since 1991 the WHO has specified that ME is not a psychiatric disease.

To investigate people from the second group with ME as if they are part of the first group, with some fatigue, and to pretend that the findings about the second group apply to the first, is pseudoscience and is fallacious, and can only have been done on purpose by the psychiatric perpetrators of it - as much fraudulence has been put forward for money as if it were "science" by psychiatrics ever since psychiatry was admitted as a medical specialism, and frauds started cultivating it. (See e.g. my McCulloch vs. Wessely and Feynman vs Wessely.)

Here are two quite apt comments, the first by someone who was mistreated with CBT and GET in the PACE-trial - and GET = Gradual Exercise Therapy = forced labour in the name of 'evidence based medicine'.

In both cases, I give the link to the original in the first line of the quotation. The first is from The Guardian's website; the second from Phoenix Rising and was sent to The Guardian:

I took part in this study, and was randomised to the GET group, and I'd be very sceptical about its results.

My initial blood tests showed some signs of infection and inflammation so I was sent for another set which apparently didn't, so I could be accepted into the trial. The assessment/criteria forms which had to be filled out at the before and during the trial, did not mention symptoms after exertion or delayed onset fatigue, there was very little attention paid to pain and cognitive/mental issues were very blurred.

At the start of the trial, I had to wear an accelerometor thing for a week, presumably to measure activity levels. But at the end of the trial, this wasn't repeated. The fitness tests measured the number of steps I could do in a set amount of time, but paid no attention to the fact that I usually couldn't walk for 2 days after these assessments.

The 'handbook' I was given contained an incredibly flawed model, which GET is based on, which basically goes 'felt a bit ill - led to resting too much - led to deconditioning - led to the ME/CFS symptoms'. This completely ignores the fact that the vast majority of people don't rest early on and carry on pushing themselves despite severe pain and fatigue.

I would suggest that the criteria were so vague and the assessment so poor that a majority of the people who recovered using GET never had ME/CFS in the first place.

That seems quite likely - and this is by one Cigana on Phoenix Rising, with the first line the title and the link to the original.

In brief - the central political issue in ME/CFS

Dear Ms Boseley,

After reading your article today entitled "Study finds therapy and exercise best for ME", I would like to take this opportunity to inform you in the briefest possible way why ME/CFS sufferers continue to be saddened by such articles (though I am sure that this was not your intention).

The way in which UK psychiatrists define ME/CFS includes more than one illness. This is like grouping brain cancer and anxiety disorder into a single illness termed "Chronic Anxiety Syndrome". One could then "prove" that psychological therapy is helpful for some people with this condition. Charities representing those with anxiety would agree. What you could not prove is that it is helpful for those with brain cancer. Charities representing those people would be rightly angry that they are denied biomedical treatment.

The small number of UK psychiatrists behind the PACE trial continue to build their careers and consultancy contracts upon a falsehood. Meanwhile, researchers in the US have uncovered the genetic and pathogenic facts behind those that suffer from the true neurological disease.

It would take only a modest amount of investigative journalism to expose this corruption and begin saving lives. I desperately hope you will consider initiating this, and would be very glad to help you do so.

Best wishes,

Quite so. This is a good letter and it selects and names the main point.

And the PACE-trials are fraudulent pseudoscience from beginning till end, even if by chance they might contain somewhere a morsel of "truth".


(*) Jung Chan's text has "Chinese".

(**) For the benefit of Ms Bosely: I find this offensive, Miss, and I think someone like you ought to mention the evidence you can find in the links below, and that if you don't do this, it is because you think you can get away with that. Thank you kindly, Miss, for your politeness and humanity, but professor Wessely, whom you seem to admite and believe, is simply a human degenerate - in my opinion, as a psychologist and philosopher, now over two decades discriminated, slandered, defamed, offended, on purpose, on the force of his fraudulence, in spite of my having a brilliant M.A. in psychology. I do hope you can grasp what is said above in red, for it is as simple as that.

P.S. Corrections must wait till later.
-- Feb 20, 2011: Some typos corrected, and a note and a few lines relating to my own situation deleted.

And incidentally, as regards the PACE-trials:

It becomes important for Englishmen with ME, at least, to come to an agreed upon document they can sign to protest being submitted, subjected, abused or defamed by psychiatric pseudoscientists, and also an agreed upon legal document that insist that any damage done to them in the name of the teachings of pseudoscientists is to be paid by the government. (If the government wants to force ill people, with brain-cancer or ME, into a program of CBT+GET "to teach them to cope with their somatoformic illusions that they are ill", let them sign a document that entitled those forced into this, or their surving family members, to large sums of money for having been made subject to physical abuse.)

So far this year I have kept up with Recent Changes: Summaries of relevant changes on the site.

As to ME/CFS (that I prefer to call ME):

1. Anthony Komaroff

Ten discoveries about the biology of CFS (pdf)

3. Hillary Johnson

The Why

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf)
5. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

6. William Clifford The Ethics of Belief
7. Paul Lutus

Is Psychology a Science?

8. Malcolm Hooper Magical Medicine (pdf)

Short descriptions:

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:
   "it is wrong always, everywhere, and for anyone, to believe anything upon
     insufficient evidence
7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.

    "Ah me! alas, pain, pain ever, forever!

No change, no pause, no hope! Yet I endure.
I ask the Earth, have not the mountains felt?
I ask yon Heaven, the all-beholding Sun,
Has it not seen? The Sea, in storm or calm,
Heaven's ever-changing Shadow, spread below,
Have its deaf waves not heard my agony?
Ah me! alas, pain, pain ever, forever!
     - (Shelley, "Prometheus Unbound") 

    "It was from this time that I developed my way of judging the Chinese by dividing them into two kinds: one humane and one not. "
     - (Jung Chang)


See also: ME -Documentation and ME - Resources

Maarten Maartensz (M.A. psy, B.A. phi)

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