January 18, 2011


me+ME: CVSCentrum "under construction" + more ME news


Back to ME:

1. CVSCentrum "under construction"
2. More ME news

1. CVSCentrum "in reconstruction"

There is or was a CVSCentrum in Amsterdam with this link:

If you click the link you find that it is presently "under construction". There is a thread on the subject on Phoenix Rising

The crux of the matter is that dr. Vermeulen has been suspended as medical doctor on January 12, prior to pending removal from the list of medical doctors who are allowed to practice medicine in the Netherlands.

Having read the judgment of the court, I can add that I think it is most unlikely he will be reinstituted as medical doctor. And having phoned his practice today I can add that I have asked them to renew their site asap to tell patients depended on them where and how they can get their prescriptions fulfilled.

There is considerably more I could say about this, and maybe will, although then probably in Dutch, that I will not say now. Instead, here is the Dutch announcement from from the ME/CFS vereniging - and the typo in Vermeulen's name - "v" should be "V" - is not mine, while there is a brief English note for those who see dr. Myhill's name mentioned:

Schorsing arts R.C.W. vermeulen

ME/CVS vereniging::18-01-2011
Ons bereikte het bericht dat dr. Ruud Vermeulen van het CVS/ME Centrum te Amsterdam met ingang van 12 januari 2011 is geschorst en het beroep van arts niet langer mag uitvoeren. Dit tuchtrechtelijk besluit is genomen naar aanleiding van een individuele klacht; er is geen direct verband met de aard van het werk van Vermeulen voor ME/CVS-patiŽnten.

Vooralsnog is niet bekend wat dit betekent voor de toekomst van het CVS/ME Centrum of voor de door ErkenME medegefinancierde deelname van Vermeulen aan een biomedisch project van de Erasmus Universiteit Rotterdam.

De uitspraak is gedaan door het Regionaal Tuchtcollege te Amsterdam. Er is nog hoger beroep mogelijk.

In het Verenigd Koninkrijk heeft dr. Sarah Myhill de haar opgelegde schorsing onlangs met succes aangevochten.

I should make on remark in view of dr. Myhill being mentioned - and see e.g. my ME: Some good news: Congratulations to Dr. Myhill! - with the suggestion that dr. Vermeulen may appeal, and succeed in that appeal.

No, that is misleading: it is not that manner of case, at all; it is due to one complaint by one patient, whose allegations dr. Vermeulen does not deny; it is not directly related to ME/CFS at all; and it seems most unlikely to me he will appeal, or has a chance of winning such an appeal.

If and when there is a need that I write more on this, I will, but as I said: Very probably in Dutch.

2. More ME news

Here are a few more links of stuff that came to pass recently related to ME and that I found interesting, and that may interest others:

  • Australian cfssufferer battles on with health bureaucracy

    I mentioned cfssufferer blog before, namely here: Aussie quashes Wessely and he did it again, and again lately with the CDC's Stephen Monroe, and deserves very high marks for logic, a scientific attitude, politeness, and sheer persistence and will power.

    Also, he has severe ME and tried a lot:

    10 of the Most Effective Treatments for CFS

    As it happens, most did not help him much or at all, but his descriptions are fair, balanced and informed, and the treatments have helped some.

  • 5 Office visits

    This is a video link from late last year - December 12, by muddipuppy - and concerns the visiting doctors' offices that patients with ME often have to do, and the "medical science and treatments" they meet with.

    It is very well in line with what I wrote yesterday: Bagwan in Nijmegen + APA makes mockery out of medicine and morality and may dispose to some mild melancholia, but then it is true and fair: What patients with ME may expect from most doctors is psychobabble, manipulation, and little relevant knowledge.

    And also... it would be very pleasant, besides being quite moral, if medical persons learned to honestly admit they don't know in cases they should and could know they don't know - though I known this is an irrealistic wish of mine, that seems beyond most, if not all medical doctors I have met:

                "It ain't what a man don't know that makes him a fool,
                 but what he does know that ain't so."
                         (Josh Billings)
  • British Negative Studies are Scientific Fraud

    This is an interesting, brave and brief piece by an English Ph.D. with a sister with ME. Here is the first paragraph:

    • What hinders good research?  Ego.  Period.  Simon Wessely is a good example.  He has a belief - that Chronic Fatigue Syndrome is a neuropsychiatric condition.  So why would he want to try and replicate the XMRV findings then - Ego. To reinforce his beliefs.  How do you do this - answer: pervert the results.  How do you pervert scientific findings - answer: break the rules that in order for a scientific study to be valid, you have to copy exactly.  So he obtained negative results, further reinforcing his beliefs that CFS is not infectious.

    I fear myself that is quite correct, and indeed argued along these lines in March last year: On the postmodern falsifications in Wessely & McClures BMJ-editorial.

    But I appreciate that an English biological man has the guts to say so - and add that indeed that is for patients one of the great hopes: That the English medical doctors who are not fraudulent, of which there certainly are far more than are fraudulent, may succeed in cleaning up their own medical peers.

    I am quite convinced there is all the scientific evidence, moral evidence and judicial evidence to do so - if only ten British medical doctors with some status find out they really do have a spine. It will be difficult, I admit, because most men and women rather speak with the crowd around the emperor, assuring his mad and naked person that he is most beautifully dressed, essentially because they are afraid of his power, secret service or police force.

    And professor Wessely is a powerful and bad man.

    But yes: In the end - as in the beginning, for me - the best hope for patients with ME is in real science and real scientists. The real understanding must come from real science, and the very necessary clean up of corrupt medicine and corrupt medical men is best done by medical and other qualified scientists, such as biologists, chemists, and physicisys, who have had enough, and are willing to risk doing the right thing, instead of the conformist or paying thing.

If I sound a tad cynical, it is because I have 'evidence based scientific reasons' for it.

P.S. As I indicated, the present text is mostly documentary, and I may return to some of it later.

Corrections have to wait till later.
-- Jan 19, 2011: I mistakenly attributed an M.D. to a Ph.D. and was kindly corrected by a reader. Repaired.

As to ME/CFS (that I prefer to call ME):

1. Anthony Komaroff

Ten discoveries about the biology of CFS (pdf)

3. Hillary Johnson

The Why

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf)
5. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

6. William Clifford The Ethics of Belief
7. Paul Lutus

Is Psychology a Science?

8. Malcolm Hooper Magical Medicine (pdf)

Short descriptions:

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:
   "it is wrong always, everywhere, and for anyone, to believe anything upon
     insufficient evidence
7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.

    "Ah me! alas, pain, pain ever, forever!

No change, no pause, no hope! Yet I endure.
I ask the Earth, have not the mountains felt?
I ask yon Heaven, the all-beholding Sun,
Has it not seen? The Sea, in storm or calm,
Heaven's ever-changing Shadow, spread below,
Have its deaf waves not heard my agony?
Ah me! alas, pain, pain ever, forever!
     - (Shelley, "Prometheus Unbound") 

    "It was from this time that I developed my way of judging the Chinese by dividing them into two kinds: one humane and one not. "
     - (Jung Chang)


See also: ME -Documentation and ME - Resources

Maarten Maartensz (M.A. psy, B.A. phi)

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