Back to ME:
CVSCentrum "under construction"
2. More ME news
CVSCentrum "in reconstruction"
There is or was a CVSCentrum in Amsterdam with this link:
If you click the link you find that it is presently "under construction".
There is a thread on the subject on Phoenix Rising
The crux of the matter is that dr. Vermeulen has been suspended as
medical doctor on January 12, prior to pending removal from the list of
medical doctors who are allowed to practice medicine in the Netherlands.
Having read the judgment of the court, I can add that I think it is most
unlikely he will be reinstituted as medical doctor. And having phoned his
practice today I can add that I have asked them to renew their site
asap to tell patients depended on them where and how they can get
their prescriptions fulfilled.
There is considerably more I could say about this, and maybe will,
although then probably in Dutch, that I will not say now. Instead, here
is the Dutch announcement from from the ME/CFS vereniging - and the typo
in Vermeulen's name - "v" should be "V" - is not mine, while there is a
brief English note for those who see dr. Myhill's name mentioned:
Schorsing arts R.C.W. vermeulen
Ons bereikte het bericht dat dr. Ruud Vermeulen van het
Amsterdam met ingang van 12 januari 2011 is
en het beroep van arts niet langer mag uitvoeren.
Dit tuchtrechtelijk besluit is genomen naar aanleiding van een
individuele klacht; er is geen direct verband met de aard van
het werk van Vermeulen voor ME/CVS-patiŽnten.
niet bekend wat dit betekent voor de toekomst van het CVS/ME
Centrum of voor de door
ErkenME medegefinancierde deelname van Vermeulen aan een
biomedisch project van de Erasmus Universiteit Rotterdam.
De uitspraak is gedaan door het Regionaal Tuchtcollege te
Amsterdam. Er is nog hoger beroep mogelijk.
In het Verenigd Koninkrijk heeft dr.
Sarah Myhill de haar
opgelegde schorsing onlangs met succes aangevochten.
I should make on remark in view of dr. Myhill being mentioned - and
see e.g. my
good news: Congratulations to Dr. Myhill!
- with the suggestion that dr. Vermeulen may appeal, and succeed in
No, that is misleading: it is not that manner of case, at all; it
is due to one complaint by one patient, whose allegations dr. Vermeulen
does not deny; it is not directly related to ME/CFS at all; and it seems
most unlikely to me he will appeal, or has a chance of winning such an
If and when there is a need that I write more on this, I will, but as I
said: Very probably in Dutch.
2. More ME news
Here are a few more links of stuff that came to pass recently related to
ME and that I found interesting, and that may interest others:
- Australian cfssufferer battles on with health bureaucracy
cfssufferer blog before, namely here:
Aussie quashes Wessely
and he did it again, and again lately with the CDC's Stephen Monroe,
and deserves very high marks for logic, a scientific attitude,
politeness, and sheer persistence and will power.
Also, he has severe ME and tried a lot:
As it happens, most did not help him much or at all, but his descriptions
are fair, balanced and informed, and the treatments have helped some.
- 5 Office
This is a video link from late last year - December 12, by
muddipuppy - and concerns the visiting doctors' offices that
patients with ME often have to do, and the "medical science and
treatments" they meet with.
It is very well in line with what I wrote yesterday: Bagwan in Nijmegen + APA makes mockery out of
medicine and morality and may dispose to some mild
melancholia, but then it is true and fair: What patients with ME may
expect from most doctors is psychobabble, manipulation, and little
And also... it would be very pleasant, besides being quite moral, if
honestly admit they don't know in cases they should and could know
they don't know - though I known this is an irrealistic wish of
mine, that seems beyond most, if not all medical doctors I have met:
"It ain't what a man don't know that makes him a fool,
but what he
does know that ain't so."
This is an interesting, brave and brief piece by an English Ph.D. with a
sister with ME. Here is the first paragraph:
- What hinders good research? Ego. Period. Simon Wessely is a
good example. He has a belief - that Chronic Fatigue Syndrome is
a neuropsychiatric condition. So why would he want to try and
replicate the XMRV findings then - Ego. To reinforce his beliefs.
How do you do this - answer: pervert the results. How do you
pervert scientific findings - answer: break the rules that in
order for a scientific study to be valid, you have to copy
exactly. So he obtained negative results, further reinforcing his
beliefs that CFS is not infectious.
I fear myself that is quite correct, and indeed argued along these lines
in March last year:
On the postmodern falsifications in Wessely &
But I appreciate that an English biological man has the guts to say so - and
add that indeed that is for patients one of the great hopes: That the
English medical doctors who are not fraudulent, of which there
certainly are far more than are fraudulent, may succeed in cleaning up
their own medical peers.
I am quite convinced there is all the scientific evidence, moral evidence
and judicial evidence to do so - if only ten British medical doctors with
some status find out they really do have a spine. It will be
difficult, I admit, because most men and women rather speak with
the crowd around the emperor, assuring his mad and naked person that he
is most beautifully dressed, essentially because they are afraid of his
power, secret service or police force.
And professor Wessely is a powerful and bad man.
But yes: In the end - as in the beginning, for me - the best hope for
patients with ME is in real science and real scientists. The real
understanding must come from real science, and the very necessary clean
up of corrupt medicine and corrupt medical men is best done by medical
and other qualified scientists, such as biologists, chemists, and
physicisys, who have had enough, and are willing to risk doing
the right thing, instead of the conformist or paying thing.
If I sound a tad cynical, it is because I have 'evidence based scientific
reasons' for it.
P.S. As I indicated, the present text is mostly documentary, and I
may return to some of it later.
Corrections have to wait till later.
-- Jan 19, 2011: I mistakenly attributed an M.D. to a Ph.D. and was
kindly corrected by a reader. Repaired.