January 5, 2011


ME: Four good articles on XMRV=contamination?

Back to ME:

I wrote at the end of last year some angry posts about the intentional lies of the British medical professors Greg Towers and Tony Pinching, who ought to be removed from medical science as frauds or incompetents, who lie and lie and lie and lie again ... and require one to treat their manner lying and posturing politely and morally, as if public lying is not public lying if a British professor does the lying, smiling like a villain, and with sanctimonious hypocritical verbal postures and cheapo verbal  "solidarity" as if they care for the patients they lie:

Well... here are four other reactions, all by well-informed persons, all rational and polite:

1. Exhausted by Illness, and Doubts

This is by David Tuller, and it is a good and balanced article in The New York Times. The one criticism I have is that the NYT has a rather wavering and quite unpleasant policy on making articles available: I have been able to get this, and today can't without signing in at the NYT - which I find impolite and useless.

The same may apply to 

2. The Lingering Mystery of Chronic Fatigue Syndrome

This is a brief article by Toby Bilanow, in some attachment to the New York Times, that is  graced by a picture of Andrea Whittemore, and that links to the first article... but while this second article is available without forced registration, the first is today not, also not from the second.

As for me, and just as in the case of Facebook and other sites: I will not register as yet another sucker to be sold for money to data miners. I much rather do not read stuff than engage in scams to be permitted to do so: Either I register with fake data, lie and nobody is served, or I register with true data, and yield privacy for no good reason.

Also, while I can sympathise, up to a point, for asking money for today's news, just as one pays for today's paper, I have no sympathy for asking money or users' data for yesterday's paper.

3. Retroviral integration and the XMRV provirus

Professor Racaniello's article starts thus:

A strong argument that the novel human retrovirus XMRV is not a laboratory contaminant is the the finding that viral DNA is integrated in chromosomal DNA of prostate tumors.

and then proceeds to explain briefly why this is a strong argument. And see the next item:

4. XMRV: A Human Retrovirus with Unknown Pathogenic Potential, Not a Lab Contaminant

This is by Annette Whittemore, dated January 1, 2011, and in pdf (not long), which starts thus:

The recent proclamation that XMRV is not the cause of CFS, came from an individual who did laboratory experiments to show how PCR experiments can become contaminated. These results have nothing to do with the reality of a disease or the methods used by those who have detected XMRV in the blood and tissue of patients found to be infected.

and explains clearly why, with among other thing this statement in bold lettering:

Most significantly, the recent Retrovirology publications failed to address the most important pieces of scientific evidence of human infection in the previous XMRV studies, including the fact that XMRV positive patients produce human antibodies to gamma retroviruses, XMRV integrates into human tissues, and infectious virus has been cultured from the blood of hundreds of patients with a diagnosis of Chronic Fatigue Syndrome and M.E. Humans do not make antibody responses to mouse DNA sequences from contaminated lab experiments. The Retrovirology studies only point out that XMRV research cannot be done in a mouse laboratory without extreme caution and should not rely solely on PCR methods.

There is more on the topic on the net (of course) but I linked these to keep track and because they make sense.

And a bit later on January 5:

This Nederlog being about XMRV:

5. Reference list on published papers about XMRV / MLV / other relevant retroviruses

Published today: 18 pages of pdf compiled by Eva Stormorken, from Norway: Titles, authors, urls and page numbers in many cases. Very helpful!

P.S. I don't mean any criticism with "here are four other reactions, all by well-informed persons, all rational and polite" - but I do mean that I feel free to translate my pain into verbal sarcasm, satire and personal criticism, for in the end what the corrupt American, British and Dutch doctors did (and some Danish and German - two countries I am less well informed about) was betray science, medicine, their patients and their patients' human, legal and moral rights, while blackening their human integrity and defaming their character.

This does not only merit rational criticism and neutral language. And I take it very personally, for I personally suffer the pain and discrimination - and the latter would not have happened without the lies specific groups of pseudoscientific doctors, for the most part psychiatrists and psychotherapists, and the former might have been cured if more money had gone to real biomedical research into ME rather than, as it happened to pseudoscientific fraudulence about CFS.

As to ME/CFS (that I prefer to call ME):

1. Anthony Komaroff

Ten discoveries about the biology of CFS (pdf)

3. Hillary Johnson

The Why

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf)
5. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

6. William Clifford The Ethics of Belief
7. Paul Lutus

Is Psychology a Science?

8. Malcolm Hooper Magical Medicine (pdf)

Short descriptions:

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:
   "it is wrong always, everywhere, and for anyone, to believe anything upon
     insufficient evidence
7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.

    "Ah me! alas, pain, pain ever, forever!

No change, no pause, no hope! Yet I endure.
I ask the Earth, have not the mountains felt?
I ask yon Heaven, the all-beholding Sun,
Has it not seen? The Sea, in storm or calm,
Heaven's ever-changing Shadow, spread below,
Have its deaf waves not heard my agony?
Ah me! alas, pain, pain ever, forever!
     - (Shelley, "Prometheus Unbound") 

    "It was from this time that I developed my way of judging the Chinese by dividing them into two kinds: one humane and one not. "
     - (Jung Chang)


See also: ME -Documentation and ME - Resources

Maarten Maartensz

        home - index - top - mail