October 29, 2010


ME + me: Site + Multatuli news + good Dutch piece on ME and CBT/GET

I continue being not well, and otherwise also as before, so I cannot do much.

1. Site and Multatuli news
2. A good Dutch piece about ME and psychology

1. Site and Multatuli news

The site has been a little updated

I think the last is a real contribution to both Dutch literature and the study of the person who is generally regarded, and justifiedly so, the greatest Dutch writer, but like all my Dutch texts, they are ignored, because it is I who wrote them:

But it's done and I have done it, and I also think it is well done.

2. An good Dutch piece about ME and psychology

Someone sent me a link to a good and informed Dutch text about ME and psychology:

It is from the following site for professionals in the trade:

I won't translate it, except for the summary:

"Chronic Fatigue Syndrome (ME/CFS) may be an infectious disease, that's caused by a retrovirus (XMRV). Psychologists who treat patients with ME/CFS with cognitive behavorial therapy must prepare for a new reality."

If you read Dutch, it is well worth reading, and may be worth to tell your doctor or your  therapist about, also since - for me at least, who is a Dutch psychologist with 32 years ME and no help and much discrimination because I was "ill of a disease without a medical explanation, in Holland, in the 20th and 21st Century", not the Middle Ages, outside medicine and psychology, that is - these "treatments" have grave moral, medical, and legal consequences: I have had far too much discrimination and pain to forgive any of it, the more so since so much of it was obviously motivated by malice, indifference, and lies:

   "We never hurt each other but by error or by malice"   (Dr. Johnson)

But more on this subject of "ME/CFS, the law and Human rights" later - but yesterday's Nederlog Fine skeptical diagnosis of LP + info on bogus therapies is quite relevant, also in my notes and footnotes.

P.S. This is were it stands at the moment, and I still have to make some corrections in earlier files of this month.

Incidentally... here are five remarks that may interest regular readers of Nederlog:

  • Every Nederlog when it is written is uploaded originally in two versions, all the same except for filenames: One is called by the date on which it is published followed by a letter; its copy is called NL.htm and is the Nederlog for that day. If you want to download Nederlogs, it is generally most convenient to download by the named date, which you get to, for any day, by the index.
  • Because I write Nederlogs usually hastily, without spellchecker, and in some pain, usually feeling rather miserable, it often happens that later versions are more correct than earlier versions, in which there may be spelling mistakes and sometimes missing words, and other mistakes. If you want my text as they were intended to be (mostly) the version of the next day often is somewhat corrected.
  • Such corrections of typos I generally do not explicitly list, and may also be made in earlier Nederlogs, if I see a need for them and have the energy to make the correction. Changes in the content of what I wrote, if made, generally are explicitly listed at the end of the Nederlog the change is made in.
  • The Nederlogs of previous years are hardly ever changed in text, though they may pass through format-changes or general updates. Normally, and nearly always, the text of a Nederlog is as I wrote it that day, possibly with some minor corrections of typos made the next day.
  • Anybody who believes I made mistakes can e-mail me, and I generally will correct factual mistakes.

P.P.S. It may be I have to stop Nederlog for a while. The reason is that I am physically not well at all. I don't know yet, but if there is no Nederlog, now you know the reason.


As to ME/CFS (that I prefer to call ME):

1. Anthony Komaroff

Ten discoveries about the biology of CFS (pdf)

3. Hillary Johnson

The Why

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf)
5. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

6. William Clifford The Ethics of Belief
7. Paul Lutus

Is Psychology a Science?

8. Malcolm Hooper Magical Medicine (pdf)

Short descriptions:

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:
   "it is wrong always, everywhere, and for anyone, to believe anything upon
     insufficient evidence
7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.

    "Ah me! alas, pain, pain ever, forever!

No change, no pause, no hope! Yet I endure.
I ask the Earth, have not the mountains felt?
I ask yon Heaven, the all-beholding Sun,
Has it not seen? The Sea, in storm or calm,
Heaven's ever-changing Shadow, spread below,
Have its deaf waves not heard my agony?
Ah me! alas, pain, pain ever, forever!
     - (Shelley, "Prometheus Unbound") 

    "It was from this time that I developed my way of judging the Chinese by dividing them into two kinds: one humane and one not. "
     - (Jung Chang)


See also: ME -Documentation and ME - Resources

Maarten Maartensz

        home - index - top - mail