June 28, 2010


ME + me : Shocking...Freaks!


    "The mild and the long-suffering may suffer forever in this world. As long as the patient will suffer, the cruel will kick."
     -- Sidney Smith

I am still not well at all and also still sad, and it still is very warm with days of "tropical temperatures" both present and announced, and indeed I do not handle that well at all, what with ME, but then I used the occasion to view and listen some videos over the last days - which I don't do often...

...with possibly shocking consequences:

1. Shocking...
2. ...Freaks!

1. Shocking...

Here are the shocking consequences (?) illustrated by the attendance of my site over the last six days:

Is it my language? Is it the videos (most people with ME for years know for years, presumably)? Is it he heat?  Is it perhaps that people do care so frightfully much about soccer? Or have I been too explicit and unforgiving about man's inhumanity to man - which indeed is a basic theme of my site, and which is not a theme most men like to see discussed adequately and truly, because of its...

...all-too-human melancholy inducing properties?

I don't know, but I won't improve my ways to suit my readers, if that's it (though I doubt it: it is probably mostly soccer + holidays + heat ) but speaking of man's inhumanity to man ....

2. ... Freaks!

Here is a link to - what I think is - a full copy of (the released version of) one of the most amazing and impressive films I have ever seen:

  • Freaks

    64 min - 23 mei 2006 - GeŁpload door Metro-Goldwyn-Mayer
    Filmed in 1932, Directed by Tod Browning Also Known as, "Forbidden Love", "The Monster Show", "Nature's Mistakes"

Prepare yourself to be shocked and awed - this is one of the great films of all time.

If you want some background: Here is one of its most memorable actors

Prince Randian
ca. 1871-1934

who has his own Wikipedia-entry

and who indeed he was a most amazing man any human being can learn from. The film itself also has its own Wikipedia-entry:

Ostensibly, the movie is given to this theme:

but in fact its theme is man's inhumanity to man - about which, for a change, also having been made with real experts, it is truthful and honest. And bitter.

P.S. Then why am I smiling, what with this shocking decline and these freaks and this heat?
Because it is a powerful film, and because I believe the developments around XMRV are hopeful for persons with ME, whether or not ME is (partially) causal for (subgroups of) patients with ME.

As to ME/CFS (that I prefer to call ME):

1. Anthony Komaroff

Ten discoveries about the biology of CFS (pdf)

3. Hillary Johnson

The Why

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf)
5. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

6. William Clifford The Ethics of Belief
7. Paul Lutus

Is Psychology a Science?

8. Malcolm Hooper Magical Medicine (pdf)
9. SleepyDust (patient) M.E. / Chronic Fatigue Syndrome (video)
10. Laurel (patient) Laurel's October 2009 CFS/CFSAC Testimony (video)

Short descriptions:

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:
   "it is wrong always, everywhere, and for anyone, to believe anything upon
     insufficient evidence
7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.
9. SleepyDust explains what life with ME/CFS is like for patients
10. Laurel explains what life with severe ME/CFS is like for patients

"Ah me! alas, pain, pain ever, forever!

No change, no pause, no hope! Yet I endure.
I ask the Earth, have not the mountains felt?
I ask yon Heaven, the all-beholding Sun,
Has it not seen? The Sea, in storm or calm,
Heaven's ever-changing Shadow, spread below,
Have its deaf waves not heard my agony?
Ah me! alas, pain, pain ever, forever!
     - (Shelley, "Prometheus Unbound") 

    "It was from this time that I developed my way of judging the Chinese by dividing them into two kinds: one humane and one not. "
     - (Jung Chang)

See also: ME -Documentation and ME - Resources

P.P.S. ME - Resources needs is a Work In Progress that hasn't progressed today.

Maarten Maartensz

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