June 14, 2010


ME: Blood Feud


And I am still not well at all and sad, and not much inclined to write about various topics. Besides, I have been busily occupied on the other forum, that still is being surrected. As I am very..."fatigued", here just two references, namely to parts I and II on a new Blog about ME, namely CFS Central:

These tell the story of what happened around ME since the paper in Science about XMRV last October. It is by an American journalist, Mindy Kitei, who is quite informed and writes well, if like a journalist: There is a lot there, rendered quite clearly, in a relatively brief compass, with quite a few helpful links also.

The title is well chosen, for it is both metaphorically and literally true, on several levels also.

In any case, this is good reporting on a complex story, by someone who must have read quite a lot of the relevant background materials. There is more to follow, and the Blog seems just started, although it was picked up by both forums about ME I read.

P.S. The new forum? As I already said or implied: It's in the process of being born. On Phoenix Rising - now with ads hanging around the poor beastie's neck - there is a rather curious discussion about it, under the title Where has everyone gone? Why is this site so empty? (yes, it's a link) that's also interesting on various levels and from various points of view (psychologically, rhetorically, logically, morally, humanly...), but that's just for the record for the moment.

As to ME/CFS (that I prefer to call ME):

1. Anthony Komaroff

Ten discoveries about the biology of CFS (pdf)

3. Hillary Johnson

The Why

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf)
5. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

6. William Clifford The Ethics of Belief
7. Paul Lutus

Is Psychology a Science?

8. Malcolm Hooper Magical Medicine (pdf)

Short descriptions:

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:
   "it is wrong always, everywhere, and for anyone, to believe anything upon
     insufficient evidence
7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.

"Ah me! alas, pain, pain ever, forever!

No change, no pause, no hope! Yet I endure.
I ask the Earth, have not the mountains felt?
I ask yon Heaven, the all-beholding Sun,
Has it not seen? The Sea, in storm or calm,
Heaven's ever-changing Shadow, spread below,
Have its deaf waves not heard my agony?
Ah me! alas, pain, pain ever, forever!
     - (Shelley, "Prometheus Unbound") 

    "It was from this time that I developed my way of judging the Chinese by dividing them into two kinds: one humane and one not. "
     - (Jung Chang)

See also: ME -Documentation and ME - Resources

P.P.S. ME - Resources needs is a Work In Progress that hasn't progressed today.

Maarten Maartensz

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