June 6, 2010


ME + me:  I'm sad


This is very brief, since I am quite sad about something that is not fit for explanation here. (*)

So I won't write here today, except for saying I really am sad - and for saying that, at long last, I did not only see but also heard the video

and that the song that goes with it is very good indeed.

P.S. There is much more (*) I could say, also about forums, their ways and effects, but I won't, now.

But yes - it's about excellent people risking destruction because of their excellent qualities, and no, it's not about me at all, even if it is about ME.

And I'm sorry if I sound incoherent, but then I am sad - and angry too, and I may return to that later, for it is not only the fate of human excellency that upset me but also the uncaring, indifferent and crude and cruel ways in which this happened and happens, and indeed often did and does in human history.

As to ME/CFS (that I prefer to call ME):

1. Anthony Komaroff

Ten discoveries about the biology of CFS (pdf)

3. Hillary Johnson

The Why

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf)
5. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

6. William Clifford The Ethics of Belief
7. Paul Lutus

Is Psychology a Science?

8. Malcolm Hooper Magical Medicine (pdf)

Short descriptions:

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:
   "it is wrong always, everywhere, and for anyone, to believe anything upon
     insufficient evidence
7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.

"Ah me! alas, pain, pain ever, forever!

No change, no pause, no hope! Yet I endure.
I ask the Earth, have not the mountains felt?
I ask yon Heaven, the all-beholding Sun,
Has it not seen? The Sea, in storm or calm,
Heaven's ever-changing Shadow, spread below,
Have its deaf waves not heard my agony?
Ah me! alas, pain, pain ever, forever!
     - (Shelley, "Prometheus Unbound") 

    "It was from this time that I developed my way of judging the Chinese by dividing them into two kinds: one humane and one not. "
     - (Jung Chang)

See also: ME -Documentation and ME - Resources

P.P.S. ME - Resources needs is a Work In Progress that hasn't progressed today.

(*) Except for some quite sad personal news, not fit for this place, and not about me personally but about someone I feel quite close to (for reasons that are rather deep).

Maarten Maartensz

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