June 5, 2010


ME + me:  Film, poetry and mathematics, and beauty too


This is another brief piece mostly consisting of links, but interesting they are - and I think I crosspost this to the new forum as well, that's as yet a bit private but very nice and very promising (*) - and indeed my title is fully justified:

This is the link to the beginning of what seems a very good documentary about ME, with - parts from - interviews present of some of the key persons involved with the science of ME, like professor Malcolm Hooper and Dr. Judy Mikovits.

And here is a link for Dutch readers to a part of Hillary Johnson's Osler's Web site

To explain it for those without Dutch, I take the freedom of quoting the present opening words of Hillary Johnson's site:

"Sif-Sac, Wederom" and "Vaarwel Havik"

A talented Dutch-English translator, EVS, will be translating selected OslersWeb.com blogs and features for Dutch/​Flemish native speakers. I extend a warm welcome to readers in the Netherlands and Belgium. It's our hope that these scrupulous, brilliantly-done translations will help build solidarity among patients in the United States and Europe. To read the new translation of my latest blog, "Sif-Sac, Again," about the latest meeting of the American government's committee on ME/CFS, "Sif-Sac, Again," ("SIF-SAC, WEDEROM"), follow this
link . To read my farewell to William "Hawk" Reeves ("WAARWEL HAVIK"), former chief of "cfs" research at the U.S. Centers for Disease Control, follow this link .

Hillary Johnson

And her Osler's Web site contains a lot of interesting things in English about and around ME and about her career - Rolling Stone and other journalism - and other writings.

That was the film and the ME - and now for poetry, mathematics and beauty:

This is an excellent piece by Joel E. Cohen on precisely what the title says - and its also real poetry and real mathematics (mind you!). It also has some quite amazing mathematical theorems, generalizations, patterns, and questions.

I wrote about the relation between poetry and mathematics here, in Dutch: Een klein beetje Principia Mathematica poŽzie (= A little bit of Principia Mathematica poetry), but Joel E. Cohen goes much further and deeper.

P.S. There is much more (*) I could say, also about forums, their ways and effects, but I won't, now.

As to ME/CFS (that I prefer to call ME):

1. Anthony Komaroff

Ten discoveries about the biology of CFS (pdf)

3. Hillary Johnson

The Why

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf)
5. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

6. William Clifford The Ethics of Belief
7. Paul Lutus

Is Psychology a Science?

8. Malcolm Hooper Magical Medicine (pdf)

Short descriptions:

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:
   "it is wrong always, everywhere, and for anyone, to believe anything upon
     insufficient evidence
7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.

"Ah me! alas, pain, pain ever, forever!

No change, no pause, no hope! Yet I endure.
I ask the Earth, have not the mountains felt?
I ask yon Heaven, the all-beholding Sun,
Has it not seen? The Sea, in storm or calm,
Heaven's ever-changing Shadow, spread below,
Have its deaf waves not heard my agony?
Ah me! alas, pain, pain ever, forever!
     - (Shelley, "Prometheus Unbound") 

    "It was from this time that I developed my way of judging the Chinese by dividing them into two kinds: one humane and one not. "
     - (Jung Chang)

See also: ME -Documentation and ME - Resources

P.P.S. ME - Resources needs is a Work In Progress that hasn't progressed today.

(*) Except for some quite sad personal news, not fit for this place, and not about me personally but about someone I feel quite close to (for reasons that are rather deep).

Maarten Maartensz

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