June 2, 2010


Studies in MEdical sadism - 10: Some strong and graphic evidence


I always do my own thinking, inferring and concluding, for my own reasons, and everything I've written about ME since October 2009 on this site, when I head for the first about the XMRV virus (*) and not long after that first found the Phoenix Rising site and then the Phoenix Rising (PR) Forums (PR-F), that I became a member of on January 7 and left on May 22 2010, for reasons expounded in Nederlog in the month May.

There will be some more about PR-F in the next Nederlog, but this Nederlog is given to my Studies in MEdical sadism that I started in January: Studies in MEdical Sadism - 0 since I had come to conclude that I could only explain quite a lot I had learned about ME since October 2009 by assuming that intentional and unintentional sadism on the part of medical people - including nurses, paramedics, medical doctors, psychotherapists, psychiatrists and also health-bureaucrats, civil servants etc. - played a much larger role than I and almost anyone else had assumed (**).

Next, I should add that (1) I had made that hypothesis much earlier about my own case, but my own case is quite special, and the treatment and discrimination I received, while connected with ME because that is the disease I have since 32 years, were not so much due to my having ME as with my being me with ME in Amsterdam, which is a pretty unique case and background, that goes beyond ME onto various other ill or corruptly regulated matters in Holland, notably education and drugs, but (2) had not extended it further because I did not have fast internet until July 2009, and very bad internet from 2002-2009, and therefore did not know very much about and around ME that I have since learned.

Most notably (3) professor Malcom Hooper's writings about ME (see below) were unknown to me until October 2009, and he was the first man I read who thought mostly about ME as I had come to do on my own, from my own case and what I had learned on the internet through a slow telephone-modem, except that he knows much more about than I do, and very much more about the decades of abuse of especially but not solely English patients with ME.

This quite radically changed my perspective, and in fact to a much more bitter one than I had before - see here, in Dutch: ME-disch sadisme op wereldschaal: Zeer verbitterend nieuws - because until October 2009 I had tended to assume that the largest part (**) of my ill-treatment with ME in Amsterdam were not due to my having ME but to my being me, and having very strongly, radically and satirically having criticized the drugs-corruption in Amsterdam and the educational decline in Holland and in particular the corruption, mismanagement and politicization and moronification of educatuon at the University of Amsterdam (whence I was thrice removed "because of your outspoken opinions", as I was gassed and threatened with murder by drugsmaffiosi the mayor of Amsterdam and the city-police protected and positioned on the bottom floor of the house where I tried to survive with ME, after having been evicted from another because I received no dole and no study-loan for half a year, probably also to teach me to respect Amsterdam and Dutch authorities).

Anyway... to arrive at my subject: Here are some links of videos on Youtube about ME I first saw today that very strongly support my own conclusions about MEdical sadism that I came to for my own reasons:

Please note Dr. McIntyre has ME; like Ean Proctor (about whose compos mentis I had seen a member of PR-F I suspect of trolling raise questions months ago); Liz Gilderdale had ME and died because of it; and Sophia Mirza had ME and was effectively murdered through medical maltreatment.

P.S. Otherwise I have no comment for the videos are very strong evidence in themselves, besides being in some ways very unpleasant if very fair and justified (though especially Mrs Criona Wilson, Sophia Mirza's mother, is an amazingly courageous and mentally clear person).

P.P.S. The next issue - the fourth of today - has news about ME forums.

As to ME/CFS (that I prefer to call ME):

1. Anthony Komaroff

Ten discoveries about the biology of CFS (pdf)

3. Hillary Johnson

The Why

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf)
5. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

6. William Clifford The Ethics of Belief
7. Paul Lutus

Is Psychology a Science?

8. Malcolm Hooper Magical Medicine (pdf)

Short descriptions:

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:
   "it is wrong always, everywhere, and for anyone, to believe anything upon
     insufficient evidence
7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.

"Ah me! alas, pain, pain ever, forever!

No change, no pause, no hope! Yet I endure.
I ask the Earth, have not the mountains felt?
I ask yon Heaven, the all-beholding Sun,
Has it not seen? The Sea, in storm or calm,
Heaven's ever-changing Shadow, spread below,
Have its deaf waves not heard my agony?
Ah me! alas, pain, pain ever, forever!
     - (Shelley, "Prometheus Unbound") 

    "It was from this time that I developed my way of judging the Chinese by dividing them into two kinds: one humane and one not. "
     - (Jung Chang)

See also: ME -Documentation and ME - Resources

P.P.S. ME - Resources needs is a Work In Progress that hasn't progressed today.


(*) A bit overly much in that the last two letters in "XMRV" also stand for "retrovirus", but OK: Now we know but such is usage, so far.

(**) This is difficult to quantify, for my history with ME extends over 32 years and comprises very many incompetent medical doctors, civil servants, university bureaucrats and what not, and various - very many, almost all completely unanswered - requests and pleas for help with many institutions.

In some cases, such ill treatment, refusals to help, lies, denigrations, defamations and discriminations I received had only to do with my having ME (and not another disease or other reason); in some cases it had only to do with me being me in Amsterdam (mostly for political reasons in Amsterdam and with the UvA, and sometimes for personal reasons because I do not take personal shit lying down and am far more intelligent than the idiots who think they can abuse me without risk); in most cases - notably all the Dutch Ombudsmen, both national and of Amsterdam, the Amsterdam medical organization GGD, the Stichting 40-45, everybody I had to deal with as mayors, aldermen or council-members in Amsterdam - it was both, in various proportions.

And one point to keep in mind is that my own position and experiences and personal history with ME in Amsterdam is quite unique and must be quite different from whatever horrors other Dutchmen with ME and without help had to live through, albeit in their case medical and bureaucratical incompetence and indifference and malice probably played large roles as well.

Maarten Maartensz

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