17 april 2010


ME: Flying around on the Phoenix Forums

Yesterday I wrote rather a lot on the Phoenix Forums about ME and so I did today, so to be able to do more of the same myself while allowing my readers here to read more of me elsewhere here are just some links to the Phoenix Forums and some choirsinging exercises

A. Links:

B. QuEST: Quire-singing Exercising Singing Therapy (*) (%)

Why GET is BAD for patients with ME

1. Kim clarifies

Cognitive Behavioral Therapy and Graded Exercise Therapy
and you cannot speak of one without addressing the other

!!! Are Dangerous !!!

There are grave risks that it will worsen symptoms for PWC
There are no means to predict who it will harm
It could be you
It could be me

For a mere 10-20% chance of improvement
You risk 100% decline


2. Maarten illustrates

For more visual instructions:
Studies in MEdical Sadism - 6: Herr Professor & Frau Doctor Wessely

See also

And some of the evidence that Herr Professor & Frau Doctor Wessely vom Weasel zum Weisel are mentally sane if and only if (iff) I am not - as they wholly agree, miraculously almost!

But see here which of the two logical alternatives a true iff comprehends applies:

1. Anthony Komaroff

Ten discoveries about the biology of CFS (pdf)

3. Hillary Johnson

The Why

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf)
5. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

6. William Clifford The Ethics of Belief
7. Paul Lutus

Is Psychology a Science?

8. Malcolm Hooper Magical Medicine (pdf)

Short descriptions:

1. Ten reasons why ME is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:
   "it is wrong always, everywhere, and for anyone, to believe anything upon
     insufficient evidence
7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.

"Ah me! alas, pain, pain ever, forever!

No change, no pause, no hope! Yet I endure.
I ask the Earth, have not the mountains felt?
I ask yon Heaven, the all-beholding Sun,
Has it not seen? The Sea, in storm or calm,
Heaven's ever-changing Shadow, spread below,
Have its deaf waves not heard my agony?
Ah me! alas, pain, pain ever, forever!
     - (Shelley, "Prometheus Unbound") 

    "It was from this time that I developed my way of judging the Chinese by dividing them into two kinds: one humane and one not. "
     - (Jung Chang)

O yes: I am proud to be friends with Kim and Dr. Yes: who hurts them hurts me. They are great and good human beings, and highly gifted intellectually and morally.

P.S. As I write this Dr. Yes is still in his asylum, but alive and his witty self, Kim is still ill and her witty self, and I was here again to report that Yes, there are truly humane beings! But some of the best of them are threatened with extinction.

"Ah me! alas, pain, pain ever, forever!

No change, no pause, no hope! Yet I endure.
I ask the Earth, have not the mountains felt?
I ask yon Heaven, the all-beholding Sun,
Has it not seen?

Completely back in Nederlog on 17 april 2009:

The Phoenix Forums about ME have many sides and many surprises, almost all pleasant, as the reader may have gleaned...

Meanwhile, this is where it stands at the moment, and if you want to read more about it, here is where it all starts about dreams and dreaming...

P.S. The reader should realizing that Hoping and I must be absolutely mad by KCL-criterions and according to professor Simon Wessely, currently employed there. Just a passing thought...in my raving insanity.

(*) Shorter OED - vol II p 1643:
"Quire 1. (..) any collection or gathering of leaves, one within the other (...) 2. A small pamphlet or book (..)

(%) In re QuEST: Cort EST and Kim est (while Kim & me et al acronymize fondly).

Maarten Maartensz

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